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Hairloss After gluten-free And Iron Supplementation?


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#1 designerstubble

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Posted 05 December 2012 - 11:22 AM

Hello
Just wondered if anyone would know why my hair is falling out so badly...
It has thinned considerably in last 2 years, obviously as I have since found out that I had a ferritin level of 2.4. I have been gluten-free (inc shampoo) for 10 weeks and on iron supplements too, but the hairloss is really increasing and I'm now frightened to wash my hair. My once crowning glory is virtually a 'comb over' trying to disguise the gaps and scalp. Why would I suddenly start losing even more hair now that my body is getting the iron?? Hormones tested ok, also thyroid/thyroid antibodies ok too. I have also been taking biotin (thought that's supposed to help?)
I almost burst into tears today when I saw it all just fall to the floor... Anyone know what else it could be???
Thanks guys
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Diagnosed Celiac Oct 2012 (Blood and Biopsy)
Gluten free / Dairy free / Caffeine / Almost sugar free / Tobacco free 2012. Corn free 2013
Vegetarian since 1986 / Asthmatic since 1990 / Migraines since 1998

 

Symptoms: Classical GI symptoms. Fibromyalgia. Odd pains. Bone aches. Severe headaches. Severe depression. Anxiety. Diagnosed with severe anaemia. Severe Vit D deficiency. Boderline Folate & B12 Defiency.

 

Since being gluten free... initially felt better for a month, still suffer with loose bowels, am currently struggling with many more allergies and intolerances to foods, such as dairy, egg, celery, oranges, tomatoes, quinoa, seeds,... Pressure hives (from Feb 2013) / Having bad leg aches during periods (June 2013)

(Marked in bold, these problems have been resolved)


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#2 Kamma

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Posted 05 December 2012 - 12:35 PM

Hello
Just wondered if anyone would know why my hair is falling out so badly...
It has thinned considerably in last 2 years, obviously as I have since found out that I had a ferritin level of 2.4. I have been gluten-free (inc shampoo) for 10 weeks and on iron supplements too, but the hairloss is really increasing and I'm now frightened to wash my hair. My once crowning glory is virtually a 'comb over' trying to disguise the gaps and scalp. Why would I suddenly start losing even more hair now that my body is getting the iron?? Hormones tested ok, also thyroid/thyroid antibodies ok too. I have also been taking biotin (thought that's supposed to help?)
I almost burst into tears today when I saw it all just fall to the floor... Anyone know what else it could be???
Thanks guys


When my hair was falling out I also increased my vitamin D intake to 4000 ius. That helped. There is current research showing that vitamin d affects the receptors in the hair follicle. Also, on the off chance you don't know, I'll also mention that calcium inhibits iron absorption and the two should be injested a couple of hours apart. I take my iron pill first thing when i wake up and then eat/other vitamins a couple of hours later.
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#3 designerstubble

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Posted 05 December 2012 - 12:51 PM

Thanks for that. I'm actually awaiting vit d blood results do that will be interesting. Also I have also stopped dairy which might lower my vit d levels.... Interesting... There's so much to learn, just hope I don't go completely bald before I sort it out... It's quite distressing to loose your hair, I'd never even given it a thought before.
I wonder, did your hair loss stop with increased vit d? Were you also anaemic? Sorry for questions!
Thank you again for your help
  • 0

Diagnosed Celiac Oct 2012 (Blood and Biopsy)
Gluten free / Dairy free / Caffeine / Almost sugar free / Tobacco free 2012. Corn free 2013
Vegetarian since 1986 / Asthmatic since 1990 / Migraines since 1998

 

Symptoms: Classical GI symptoms. Fibromyalgia. Odd pains. Bone aches. Severe headaches. Severe depression. Anxiety. Diagnosed with severe anaemia. Severe Vit D deficiency. Boderline Folate & B12 Defiency.

 

Since being gluten free... initially felt better for a month, still suffer with loose bowels, am currently struggling with many more allergies and intolerances to foods, such as dairy, egg, celery, oranges, tomatoes, quinoa, seeds,... Pressure hives (from Feb 2013) / Having bad leg aches during periods (June 2013)

(Marked in bold, these problems have been resolved)


#4 Kamma

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Posted 05 December 2012 - 01:55 PM

I understand about the terrible devestation you feel when you comb your hair and there's just chunks of it sitting in the brush or you pull your hand through your hair and strands of it come away in your fingers. It's horrible. It got to the point where I wouldn't even comb my hair cause I dreaded what I would see.

I have low iron, low calcium which apparently is status quo for those with problems with gluten/malabsoption. I take supplements for both but at separate times as mentioned before. The increase in Vitamin D is what helped me. Some people also try zinc. But again, I believe calcium affects the rate of zinc absorption so you have to be very careful and research what you are doing.

No worries about the questions. :) Ask and/or share away!
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#5 designerstubble

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Posted 06 December 2012 - 12:30 AM

Thank you! I will defo try the vit d!
Really appreciate your help, you described me also, I dread even touching my hair as it is falling away, everyday, tons of it :( utterly devastating
Have you been gluten-free for long, how long before you saw results taking vit d? I know it's obviously not a quick thing... Also, what's your hair like now? Is it back to what it should be like or just 'better'? I long to have my thick hair back!
Thank you again a million times!
  • 0

Diagnosed Celiac Oct 2012 (Blood and Biopsy)
Gluten free / Dairy free / Caffeine / Almost sugar free / Tobacco free 2012. Corn free 2013
Vegetarian since 1986 / Asthmatic since 1990 / Migraines since 1998

 

Symptoms: Classical GI symptoms. Fibromyalgia. Odd pains. Bone aches. Severe headaches. Severe depression. Anxiety. Diagnosed with severe anaemia. Severe Vit D deficiency. Boderline Folate & B12 Defiency.

 

Since being gluten free... initially felt better for a month, still suffer with loose bowels, am currently struggling with many more allergies and intolerances to foods, such as dairy, egg, celery, oranges, tomatoes, quinoa, seeds,... Pressure hives (from Feb 2013) / Having bad leg aches during periods (June 2013)

(Marked in bold, these problems have been resolved)


#6 Kamma

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Posted 06 December 2012 - 10:35 AM

I finished my gluten challenge at the end of December last year and aside from a few accidental glutenings, I've been on the straight and narrow. Within weeks of upping my vitamin D, my hair stopped the massive migration down the drain. I have very long hair, down to my bum, and while it has thinned out I have new growth from the top of my head. It will take forever to grow out but I'm just glad I'm not losing it anymore.

Just as you will be when you get the iron, calcium, zinc and vitamin D nutrients/levels figured it out. It will all work out and you'll actually look in the mirror and enjoy your hair rather than cringing. :lol:

When do you get your testing back for vitamin D?
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#7 nvsmom

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Posted 06 December 2012 - 09:23 PM

(hugs) I understand your frustration. I was getting some good regrowth on the gluten-free diet and then it started falling out at an unprecedented rate. I too have a comb over and a few bald spots... it's hard to handle.

Unfortunately, I am almost sure that my hair loss was related to starting thyroid treatment or a rhuematic AI disease. I hope it's my body reacting to changing hormones but I suspect it's another AI.

If you are following the gluten-free diet, I wouldn't think hairloss would increase unless some gluten slipped in. It's possible that following the gluten-free diet gave your body a chance to breathe so another problem showed itself.... Are you having any other symptom increases other than the hair loss?

I wish you the best... I know it's awfully frustrating when you are doing everything right and wrong things still happen. :(
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ITP - 1993
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Hypothyroid - August, 2012

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#8 designerstubble

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Posted 07 December 2012 - 05:37 AM

@kamma
I hope you are right, am trying my hardest not to stress as I know it doesn't help.
Funnily enough my bloods came back for vit d yesterday eve! I am very deficient!
I have a level of 40 (normal range 75-110)
So... Vit d here I come... Perhaps it may sort some of the aches and pains I have been experiencing along with this horrid horrid hairloss. I really appreciate all your support, thank you :)

  • 0

Diagnosed Celiac Oct 2012 (Blood and Biopsy)
Gluten free / Dairy free / Caffeine / Almost sugar free / Tobacco free 2012. Corn free 2013
Vegetarian since 1986 / Asthmatic since 1990 / Migraines since 1998

 

Symptoms: Classical GI symptoms. Fibromyalgia. Odd pains. Bone aches. Severe headaches. Severe depression. Anxiety. Diagnosed with severe anaemia. Severe Vit D deficiency. Boderline Folate & B12 Defiency.

 

Since being gluten free... initially felt better for a month, still suffer with loose bowels, am currently struggling with many more allergies and intolerances to foods, such as dairy, egg, celery, oranges, tomatoes, quinoa, seeds,... Pressure hives (from Feb 2013) / Having bad leg aches during periods (June 2013)

(Marked in bold, these problems have been resolved)


#9 designerstubble

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Posted 07 December 2012 - 05:51 AM

@nvsmom
Hugs to you too.
What happened to your thyroid? Is that since being gluten free?
I am pretty sure I haven't ingested any gluten as I have no other gi symptoms... Unless of course it's possible that it would affect my hair?
I have some really odd symptoms since being gluten free from odd moving pains, joint aches, pinching gland pain to funny moving lump in my throat, night sweats and sharp pains in my upper abdomen (just to mention a few!)...
Though each symptom has only been lasting 7-10 days and then resolving on it own. I have been gluten-free for about 10 weeks. My hair has been thinning over the last 2 years, slowly but surely... But I hoped that being gluten-free may stop the shedding.
However, my ferritin dropped to 2.4. Pretty pathetic. Have been on iron for a while and feel much better for it but the hairloss has increased? I would've thought that it may have slowed. But.. It seems vit d plays an important part too... And I'm deficient... So fingers crossed.
What are your vitamin stats like?
I feel for you, for us, it's so sad to come your hair just to disguise and hide the scalp. I don't know how old you are but I wasn't expecting this at the age of 39!
Big hugs
  • 0

Diagnosed Celiac Oct 2012 (Blood and Biopsy)
Gluten free / Dairy free / Caffeine / Almost sugar free / Tobacco free 2012. Corn free 2013
Vegetarian since 1986 / Asthmatic since 1990 / Migraines since 1998

 

Symptoms: Classical GI symptoms. Fibromyalgia. Odd pains. Bone aches. Severe headaches. Severe depression. Anxiety. Diagnosed with severe anaemia. Severe Vit D deficiency. Boderline Folate & B12 Defiency.

 

Since being gluten free... initially felt better for a month, still suffer with loose bowels, am currently struggling with many more allergies and intolerances to foods, such as dairy, egg, celery, oranges, tomatoes, quinoa, seeds,... Pressure hives (from Feb 2013) / Having bad leg aches during periods (June 2013)

(Marked in bold, these problems have been resolved)


#10 designerstubble

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Posted 07 December 2012 - 05:53 AM

Oops should have said 'comb' not come! I'll blame it on the brain fog! ;)
  • 0

Diagnosed Celiac Oct 2012 (Blood and Biopsy)
Gluten free / Dairy free / Caffeine / Almost sugar free / Tobacco free 2012. Corn free 2013
Vegetarian since 1986 / Asthmatic since 1990 / Migraines since 1998

 

Symptoms: Classical GI symptoms. Fibromyalgia. Odd pains. Bone aches. Severe headaches. Severe depression. Anxiety. Diagnosed with severe anaemia. Severe Vit D deficiency. Boderline Folate & B12 Defiency.

 

Since being gluten free... initially felt better for a month, still suffer with loose bowels, am currently struggling with many more allergies and intolerances to foods, such as dairy, egg, celery, oranges, tomatoes, quinoa, seeds,... Pressure hives (from Feb 2013) / Having bad leg aches during periods (June 2013)

(Marked in bold, these problems have been resolved)


#11 Kamma

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Posted 07 December 2012 - 06:36 AM

@kamma
I hope you are right, am trying my hardest not to stress as I know it doesn't help.
Funnily enough my bloods came back for vit d yesterday eve! I am very deficient!
I have a level of 40 (normal range 75-110)
So... Vit d here I come... Perhaps it may sort some of the aches and pains I have been experiencing along with this horrid horrid hairloss. I really appreciate all your support, thank you :)



Oooo that is low! Bring on the Vitamin D! The research that is coming out nowadays is there are huge deficiencies in the populations levels as more people are staying inside and not getting replenished by the sun. What dosage has been recommended to you?
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#12 JNBunnie1

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Posted 07 December 2012 - 07:40 AM

Also Vit C helps iron absorption, I take them together.
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#13 nvsmom

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Posted 07 December 2012 - 07:45 PM

@nvsmom
Hugs to you too.
What happened to your thyroid? Is that since being gluten free?
I am pretty sure I haven't ingested any gluten as I have no other gi symptoms... Unless of course it's possible that it would affect my hair?
I have some really odd symptoms since being gluten free from odd moving pains, joint aches, pinching gland pain to funny moving lump in my throat, night sweats and sharp pains in my upper abdomen (just to mention a few!)...
Though each symptom has only been lasting 7-10 days and then resolving on it own. I have been gluten-free for about 10 weeks. My hair has been thinning over the last 2 years, slowly but surely... But I hoped that being gluten-free may stop the shedding.
However, my ferritin dropped to 2.4. Pretty pathetic. Have been on iron for a while and feel much better for it but the hairloss has increased? I would've thought that it may have slowed. But.. It seems vit d plays an important part too... And I'm deficient... So fingers crossed.
What are your vitamin stats like?
I feel for you, for us, it's so sad to come your hair just to disguise and hide the scalp. I don't know how old you are but I wasn't expecting this at the age of 39!
Big hugs


I found out I had Hashimoto's when I requested a TSH test, along with nutrient levels tests, when I found out I was a celiac. I've suspected that I was hypothyroid for about 15 years but my doctors always told me that I was normal, or just a bit high, and not to worry about it... I've since learned not to be so trusting and request the lab results because I found out that I was hypothyroid but they did no further testing.

Your symptoms do sound quite a lot like a thyroid problem. I too have a lot of joint pains. It will hurt in a spot (bothe sides of the body for a few months, stiffen up and then fade, and then a few months later it hits again somewhere else... or the same spots. Night sweats are often a hyperthyroid symptom (if your thyroid is distressed it can over or underwork) and the painful lump in the throat (if it's near the base of your neck) could be a thyroid problem.... Or it could be something else entirely. So many of the Ai diseases overlap, and we all bring our personal experiences into our responses... that's why I often suspect thyroid issues. That and because it's the most common AI disease out there.

My vitamin levels are excellent for a normal person, nevermind a celiac... I have absolutely no idea why that is. LOL I was near the low end of the normal range for vitamin D many months back when diagnosed but I quadrupled my D intake and switched to sublingual tablets (for better absorption) as well as extra cod liver oil, evening promrose oil, and salmon oil...so hopefully it went up. Everything else was average. My cholestrol was stellar, and I exceeded the normal range for B12. My doctor refused to test ferritin because he said we'd see anemic problems in my RBC count, which was pretty close to average. I doubt my hairloss is a vitamin thing because it happened at a higher rate when many other symptoms increased and I felt flu-like. It was an autoimmune attack of some sort possibly caused by my shifting thyroid hormone levels (because I started treatment) or another issue.

And I'm younger than you, I'm 38. LOL

You might want to try the sublingual D tablets and add fish oils to your diet. They help. I won't get it from the sun since I'm up by the Rockies in Canada and we only get about 8 hours of daylight now... and it's -15C so there's not much skin in the sun. LOL ;)

Best wishes to you.
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ITP - 1993
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Hypothyroid - August, 2012

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#14 motorchicked

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Posted 08 December 2012 - 07:10 AM

I have some of your same symptoms...night sweats, hair loss, low Vit D, low iron. I also sweat easily just walking around the rooms I'm in at work or home and I have some aches and pains that come and go, in my back, neck, knees, ankles shoulders. I went to a Natropath and had an blood test done - found out I had a lot of other food intolerances besides dairy and gluten. She also wanted some additional blood tests done and those showed some odd thyroid numbers in addition to a couple of other too high interesting things.

I started googling everything on my blood test that was abnormal and starting reading and reading, putting it down for a while and reading again. After I felt let down by my regular general practice doctor, I got lucky and found the doctor I am now going to. He lists his specialities as endocrinology, diabetes, and metabolism. I think after many doctors I may have found a good one. On my last blood test, at the bottom, it said more tests are needed but pseudo-cushing's is suspected. i've read that Cushing's Syndrome is also another disease that Celiacs can get. I've been changing my diet hoping the next test will show some good change. (it's in two weeks.)

I'm at the point where right now (well I've felt this for a while), if I don't start eating only organic, raw, vegan, fruits, seeds, nuts, mostly leafy greens in a (e-bay cheap) Vitamix blender, in addition to cultured or sometimes eating lightly steamed or baked, veggies, with no-sugar, no-grains, and some additional supplements like sublingual B12... if I don't change my eating, I will in essence, be torturing myself into a shorter lifespan.

Luckily I know a woman who cured her ovarian cancer by eating raw healthy fruits, veggies, plus supplements. I also saw a movie called "May I be Frank" about a guy who was cured of his hepatitis (don't know which kind) by eating raw fruits, veggies, seeds and nuts. She has a web site where she lists the 100 things she did to get healthy. I totally applaud her for changing her diet so drastically in 2 weeks, and keeping herself healthy. Glad she lives near me and I met her, and took some classes on culturing and dehydrated food. She has a website with lots of links, she makes nothing off any of her advice, Jane Van Benthusen.

Good luck on your quest to get better and feel healthy...I'm right there with you.
Karen
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#15 designerstubble

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Posted 09 December 2012 - 01:38 AM

Wow nvsmom, your bloods are great then really! Good for you! I wonder then if being hypo is directly related to celiac or whether if you feel you had it anyway for 15 years perhaps it's a coincidence? I would love to know how long I've been celiac. My doc reckons I must have been for a very long time as my ferritin is so low. Hmmm.
I've actually been free of any symptom for 3 days now is a first for me (not even taking vit d yet!) but isn't it great when you feel normal for a bit?
As for the sunshine, I dont know how bad it is there in Canada, but it surely isn't any better here in the UK!! Grey grey grey, and more grey! We only have 6-7 hours daylight (if you can call it that!) at the most. Very grim! No wonder we are all deficient, let's all move to Spain and live the good life!
Thanks for all you help, really lovely to such support, cheers :)
  • 0

Diagnosed Celiac Oct 2012 (Blood and Biopsy)
Gluten free / Dairy free / Caffeine / Almost sugar free / Tobacco free 2012. Corn free 2013
Vegetarian since 1986 / Asthmatic since 1990 / Migraines since 1998

 

Symptoms: Classical GI symptoms. Fibromyalgia. Odd pains. Bone aches. Severe headaches. Severe depression. Anxiety. Diagnosed with severe anaemia. Severe Vit D deficiency. Boderline Folate & B12 Defiency.

 

Since being gluten free... initially felt better for a month, still suffer with loose bowels, am currently struggling with many more allergies and intolerances to foods, such as dairy, egg, celery, oranges, tomatoes, quinoa, seeds,... Pressure hives (from Feb 2013) / Having bad leg aches during periods (June 2013)

(Marked in bold, these problems have been resolved)



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