16 Month Old Just Got Diagnosed With Celiac. Now What?!
Posted 05 December 2012 - 12:20 PM
My name is Raegan and my son Harrison was just diagnosed with celiac. He was born fussy. He had colic, vomiting, gas, foul stools, and most recently weight loss and failure to thrive. He has a mild IGa deficiency and due to continued weight loss the drs at Children's performed a scope Monday morning (not my favorite morning) and we got the results back today as indicative for celiac. I am actually fairly familiar with celiac and understand the basics. However I am unsure of how throuough I need to be. Do I get rid of my toaster? I am planning to just be gluten free in this house at least at first to minimize the accidental exposure. I am nursing so i know I need to be strictly gluten-free until i am done. If someone could give me a few pointers on what to do specfifically around the kitchen to prepare for this new lifestyle. We are already egg and dairy free due to allergies so the actual food part will be easy enough. Thanks!
Posted 05 December 2012 - 02:02 PM
Look at the bright side, it got caught relatively early
Posted 05 December 2012 - 04:16 PM
You need to be as careful as you can be. There just is no way to tell you how much exposure is safe. It is the amount your son's immune system recognizes as gluten that triggers the response. Some people are very sensitive with violent gut reactions and some people have really no sysptoms and get diagnosed later in life for anemia.
It is going to be a bit harder with the egg free- dairy free restrictions for gluten free, but it is doable.
Posted 05 December 2012 - 04:48 PM
Posted 05 December 2012 - 05:34 PM
Posted 05 December 2012 - 05:51 PM
Posted 05 December 2012 - 08:04 PM
gluten free name of item you are wanting to purchase
such as "gluten free baby lotion"
I have very sensitive skin and have been known to react to unknown ingredients in some baby stuff such as the (probably) cross contaminated cornstarch in non-talc baby powders, some "natural" deodorants , shampoos with wheat (triticum) or cross contaminated oats (sativa), etc. I got so frustrated with some of these expensive, supposedly "allergy-free" baby product companies which kept changing their ingredients lists from one status to another, (yes, I am pointing to you, "Burt's Bee's, and that soy crap you now use, because I have a dog with allergies and I don't want to cross contaminate HIM if he licks me) I have an emergency fallback system of using just a few ingredients and actually getting BETTER results, anyway.
Deodorant in a pinch: dry baking soda. It seems this would not work, but it works really, really well.
Hair rinse: pure apple cider vinegar, mixed 1 part to 7 parts water, (and in a spray bottle for a detangler) this corrects the pH and makes hair shiny and ease to comb out, and it's CHEAP, besides that
hair conditioner: pure shea butter or pure coconut oil, a tiny pea sized dab rubbed into your hands and then thru your hair, after the cider rinse
moisturizer: pure shea butter or pure coconut oil or pure almond oil
Soap: been using some Alaffia African liquid soaps (some of these are labeled gluten free) or the Dr. Bronner's liquid soaps, or plain Ivory bar soap. There are other shampoos and soaps that are also gluten free, but these are available at the places I am purchasing the gluten free ingredients I use in baking, and they will lather in our well water, which is another characteristic that most people here are not having to deal with.
My husband uses Dove brand shampoos because they are supposed to call out the gluten on their labels, but, they really a bit too perfumey for me. He has super short hair so he isn't having to deal with my hair, which is longer, thicker, more ornery, drier, colored, and seemingly water and soap repellant, trying to get something shampoo- like to actually make suds in it. Good Gosh, I would have to use a quarter cup of shampoo and half the water heater tank to then get it out ! Some people with this type of hair will just rinse their hair with plain water daily, or a little bit of baking soda in water, then condition it, which works well in the summer for me. (You can also visit the Long Hair Community blog, category "natural hair care," or "co conditioning" for more ideas, which also work for shorter hair. Uh oh, I just checked their site and they are having an ongoing upgrade right now which has made some of their old threads disappear. Anyway, some people don't use shampoo very often, as I have explained, just conditioned and then rinsed well with water and then used vinegar and a small amount of oil. )
As for the kitchen, if you are having to work thru your kitchen items, at the minimum get a new toaster and the toaster oven is handy as the racks can be washed or scrubbed. New colander for gluten free pasta. New cutting board. New spatula. New dish sponge/scrubbie type of thing. If your old sharp knife holder is full of crumbs, out it goes. New plastic storage type containers for leftovers. (if you like Cool Whip, you're in luck, as these make handy ones). I also got new potholders and new bakeware, but not all at once, just what I had to have. If you have old teflon, it goes bye- bye. If you have old cast iron, burn off the old finish in the oven, and re- season it. (I clean dedicated cast iron with water, baking soda, and cider vinegar and a paper towel). As you purchase these, get a pack of sharpie pens and make each new item gluten-free or GLUTEN FREE so there is no question by other people on its status. If you need to roll out a pie crust, use wax paper and a regular drinking glass, this will save you having to replace the rolling pin right away.
If you want to test out recipes for breads and cakes, I suggest using the bun-in-a-cup type recipes (with the substitute for egg, of course) that are baked in the microwave in about a minute and a half, using small, single serving ceramic dishes which are easy to clean. This will keep you from making a large batch of something that you end up not liking, and then spending a big gob of money on it. This way, also, if you keep the ingredients on hand, you can then quickly make up a fresh sandwich bun or two if you are far away from the store and need it in a hurry.
Gluten free rice cakes and corn tortillas are very versatile and can be used for most bread situations in a pinch, as can rice pasta, so don't worry. This is do- able.
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