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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Is It Celiac?
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Immunoglobulin A, Qn, Serum: value, 65 reference range: 91-414

t-Transglutaminase (tTG) IgG: value, <2 Reference range: 0-5

t-Transglutaminase (tTG): value <2 reference range: 0-5

Deamidated Gliadin Abs, IgA: value 2units reference range 0-19

Deamidated Gliadin Abs, IgG: value 9units reference range 0-19

Okay. So. Here I am three months later still in pain. want to know the story?

I start passing out at work. Abdominal pain. shaking chills sweating etc. EVERYTHING I EAT MAKES ME SICK.

9 ER VISITS.

5 CT scans.

3 ABDOMINAL XRAYS

1 ENDOSCOPY

2 ULTRA SOUNDS

all normal.

Except the HIDA scan, that was normal except for increased pain. So they removed my gallbladder. It went badly. Hospitalized for a week. They kept telling me to wait, not getting better. go to a specialist. says I have IBS, does full celiac panel everything is normal except my immunoglobulin A is 65 and normal range is 90-414

Is my low immunoglobulin a causing a false negative for celiac? i just can't take this anymore.

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Here is an email from my doctor regarding the test:

Your total IgA (Immunoglobulin) was a little low, it's indicative that your immune system isn't overly active. The other two values that are part of the Celiac panel were negative and those are the improtant ones to look for when trying to identify Celiac disease. We can discuss it further at your follow up as far as what it all means in regards to your symptoms. With these findings and also knowing you had a normal appearance of the small bowel tissue on EGD, it's very unlikely that you have Celiac disease.

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I am very new to this, but my understanding is that a low Immunoglobulin A count can cause the ttg (and other?) count(s) to appear low or normal in people who, in fact, do have celiac disease. I think that is why the total Immunoglobulin A count is taken. That is not to say that low IgA *is* causing a false negative, but I think it *can* contribute to or lead to a false negative.

The negative/normal endoscopy would lead me to think that you do not have celiac disease, but even with endoscopy several samples must be taken from suspect tissue in order to maximize the likelihood of finding extant disease, and I think it is still possible to miss damaged tissue when taking the tissue samples for biopsy.

Do not take my words to the bank... check back often and I suspect several people more knowledgeable than me will post replies. Best of luck with all this.

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Well thank you. According the the endoscopy report I have chronic gastritis and they only did a biopsy for Hpylori as far as I know.

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Not nessisarily, the low iga can throw off the TTG tests (the iga one i believe). There are some on here that have had that happen.

Ask for another endoscopy and get a biopsy done. Also consider getting the genetic test done as well.

Then regardless of those tests outcome, go gluten free for a good 3-6 months. Do this after you have finished testing. If it clears up, you have your answer.

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