Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

When I Get Glutened...
0

13 posts in this topic

I am STILL suffering from the glutening I got from the cookie crumbs. My gut is OK, my psoriasis has quieted down, but whenever my jaw pain and swelling flares up, it lasts for three or four weeks.

I am in SO much pain right now. This morning when I got up I was really grumpy. I'm so TIRED of hurting!

But I picked up my banjo and started playing Christmas music on it. My banjo is so much fun! I swear, even though I have some incredibly expensive guitars, if there were a fire, I'd grab the banjo first. So as grumpy and full of pain as I was this morning, that banjo not only had me smiling, but I was giggling!

What do you do to distract yourself when you're feeling bad?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Take a hot soak in the tub, drink lots of liquids (especially peppermint tea), listen to music, read, play stupid computer games, exercise, wish I could play banjo. Sometimes I color designs with colored pencils or research weird things on a search engine, like how to make hand sewn curtains. I have little intenton of making curtains, but it was amazing to see the results.

Anything to get my mind off of "it" and on to what's next.

1

Share this post


Link to post
Share on other sites

OH! I forgot all about colored pencils! I used to love to draw cartoonish pictures with colored pencils. I have a bunch of them stuffed away in a drawer somewhere. I'll have to dig them out and start using them again.

When I was married, we used to wrap all Christmas presents in plain white paper and then do funny Christmas cartoons on the paper. My niece still has one I did for her of Peter Rabbit in a Santa hat carrying a stocking full of carrots. She was a little kid then, and she's in college now!

1

Share this post


Link to post
Share on other sites

Sigh. Wine. Wine and baths.

Doesn't work at the office, though. Then it's artisinal tea (www.teance.com is my source) and praying that no one comes over to talk to me, or if they do that I can pretend to be a normal person long enough until they go away.

0

Share this post


Link to post
Share on other sites

I'm a WoW addict. WoW being World of Warcraft. It is a great way to keep my mind off of what ails me. When you're busy saving the world from dragons, there is little time for feeling like crap. What can I say? I'm a dork.

1

Share this post


Link to post
Share on other sites




I see i'm not the only gamer :) though i'd rather do systems over computer games.

0

Share this post


Link to post
Share on other sites

I do own a Wii, which is like the red-headed step child of game systems, I know. But, Kirby's Epic Yarn. Between being Zelda fans and frankly not personally being a fps fan we've just never gotten another system. (We're just too poor to own more than one I guess.) I also love Steam sales, it is really the only time I get new games. The holiday sales and such is when I get my presents in game form and try new things. To be honest though, it was Blizzard that got me hooked and nearly two decades later here I am still a Blizzard girl. My game time is pretty evenly distributed between WoW and Diablo 3. Whatever brings on the endless slaughter of bad guys. :D

0

Share this post


Link to post
Share on other sites

mmm i've got a wii (its blue <3) and a few other systems. I can certainly understand that. I rarely get new games anymore (currently doing my Majora's mask run on the wii virtual console, if i can ever get my homework done), but when i do i try to find rare rpgs. Mainly ps2, gamecube, and wii ones. Until my other system gets more games (ps3) that i adore, i won't upgrade its library. I do handhelds as well. I may start getting older generation ones (ps1 and NES games), but we'll see.

I do play on the computer for things like roller coaster tycoon. But as it stands right now, my computer is dedicated to schoolwork.

0

Share this post


Link to post
Share on other sites

I play a lot of Yahtzee and watch a lot of bad tv. I was glutened last night, so that's what I've been doing all day. May get the strength to make some soy vanilla chai in a bit though :)

0

Share this post


Link to post
Share on other sites

I just try to act normal and get my school, housework, and caring for children done.

0

Share this post


Link to post
Share on other sites

Bad tv for me too, if I am up. If I am in bed I listen to BBC Radio 4, which is talking, news, plays. It helps me feel a bit more connected.

Small kids mean I have to keep going. And the cat that wants to sleep on my head.

I used to have coloring books, adult ones like tiffany stained glass, Celtic knot work, but my kids pinched those :) fairies and tractors don't do it for me quite the same.

I don't do computer games because I was horribly addicted in my 20s :o would do if I didn't get woken at 6 every morning.

Chatting to friends by phone.

Popping in here to keep sane ;)

Get well soon, enjoy kitty cuddles x

0

Share this post


Link to post
Share on other sites

I got glutened over TG and am still suffering. Usually it seems like it only takes 3 to 5 days but this is a doozy. It's like fibromyalgia pain and fatigue....oh and a pinched nerve on top of it.

So, the upshot is since I am a SAHM and my family is fairly sympathetic I've been watching a lot of t.v. and going to bed around 7:30 at night. This is coming to an end as Christmas is looming and my house is wrecked. I've made a ton of green drinks, I'm eating paleo and only what I cook. I did eat at PF Chang's one time, but other than that I feed myself. Lots of water, magnesium, fish oil, d3, B complex...and a few nights with codeine left over from my gluteny past where this happened all the time.

Hope you feel better soon...I'm getting there.

Oh yes...more time on this board too getting some support :)

0

Share this post


Link to post
Share on other sites

OH! I forgot all about colored pencils! I used to love to draw cartoonish pictures with colored pencils. I have a bunch of them stuffed away in a drawer somewhere. I'll have to dig them out and start using them again.

When I was married, we used to wrap all Christmas presents in plain white paper and then do funny Christmas cartoons on the paper. My niece still has one I did for her of Peter Rabbit in a Santa hat carrying a stocking full of carrots. She was a little kid then, and she's in college now!

I find coloring very therepeutic. I tried knitting after I read a study that women achieve about the same biorythmic patterns from knitting as they do from Yoga (sorry, monitors, I can't attribute the source). Knitting exasperated me. I kept dropping stitches. And once the yarn was cut in the middle of a skein! (Kind of like breaking a guitar sting in the middle of a good lick maybe?)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,644
    • Total Posts
      921,583
  • Topics

  • Posts

    • The first two tests (at least in the US and most of the EU) have been replaced by the DGP tests (at the bottom) of GFinDC's list of celiac tests.  Not all celiacs test positive to the common Screening TTG.   The TTg is good and catches most and it was cheaper to run the best one (it is all about the money), but researchers realized they were not catching all celiacs.  Here is a link to the University of Chicago's celiac website.  When I was diagnosed three years ago, this site recommended just the TTg (as did the American GI Association).  Now they have expanded the list of celiac tests.   http://www.cureceliacdisease.org/screening/ Luckily, my GI must have just attended a GI conference and he ordered the complete panel for me.  ($400). It paid off.  Only my DGP IGA was positive and the rest of the blood panel (including the popular TTG test) was negative.  My biopsies revealed some severe intestinal damage.  My new health provider only allows PCP/GP doctors to only order the TTG.  So, if I want the follow-up testing to see if I have improved or had a gluten exposure, I must go to my New GI.  Yep, it is all about the money!   Keep eating gluten and make sure your  GI takes four to six samples during the endoscopy.  Maintain copies of all your results.   Your symptoms?  Yes, there are over 300 celiac disease symptoms.  celiac disease does not just affect the gut, but mis-informed and those who do not keep up with the latest in medical, do not seem to know that!   Do not give up!  
    • It's great to hear from you, Nightsky.  Glad to also hear of your steady progress.  Living gluten free is definitely a learning process, and even the baby steps are times to celebrate.  Wish you all the luck in the world as you continue to heal for the glutenization.  
    • Hi Nicky, When you first go gluten-free your symptoms often do change.  Feeling better or worse is possible.  The healing process is a major change in our gut and that means a big change in the gut flora is likely,  which can cause symptoms by itself.  Additionally the immune system doesn't stop making antibodies on a dime.  the immune system keeps working  to defeat the gluten invaders until it is darn good and ready to take a break. You really shouldn't start the gluten-free diet until all testing is completed.  That includes a full celiac disease panel and an endoscopy with biopsy samples.  It's much easier to complete testing while still a gluten eater than it is to stop gluten and go  back on it for testing later.
    • Hi Kircket, Welcome to the forum! Yes, he could be wrong.  Not everyone passes the blood tests.  And they are just one part of the diagnostic process anyway, although an important one.   Did you have the complete celiac antibodies panel? Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA If you didn't have the full celiac disease antibodies test panel, I'd insist on getting it done.  There have been numerous people on the forum who tested positive on one antibody but not on others.
    • Three years ago I lost about 40kgs (Aussie lol) by better diet & exercise. All was going great til I stopped losing. I upped my exercise but bizarrely started gaining weight. One night a week of not being able to sleep soon became two, then virtually every night with either 1-2hrs tops or none at all. These weird symptoms started about two years ago, becoming worse in say, the last 9mnths. Then I started to get diarrhea. Occasionally then weirdly 2-3 days with multiple occurences then a day or two with nothing, then back to loose & offensive. My GP ran tests, including the TTga (hope that's  right) antibody blood test. Negative so he tells me that's not it. After 9mnths of this he shrugs and says, "I don't know what it is I've run out of ideas what ideas do you have?" Finally refers me to a gastrointerogist.  Private, of course and can't really afford it but we (my fiance and I) go. Stools and blood samples are ordered, basically bye, see you in a month. I have looked my symptoms up and they seem to point to Celiac. Today we went back. I have been having bloated stomach, sore back and limbs,  lovely burps, constant urination and crushing anxiety attacks folowed by depression (which I have never had before in my life). Admitted over the last weekend I didn't sleep for two and a half days and found myself hallucinating and crying to just be able to sleep. Mr fancy pants gastrointerogist says," Hey great news, the stools samples rule out parasites and Crohns!" I tell him how excrutiating the last month has been to which he replies, "It's not Celiac disease, (points at negative blood test results). Celiac doesnt present with diarrhea, anxiety and frquent urination all together." I also had a fecal occult blood test which showed positive & notes say are maybe due to a lower gi bleed, and a ct scan that says shows some damage which, in their words, could be due to a condition such as Celiac disease. He has booked me for a double scope as the next step, has a few ideas what it could be (won't tell me because he doesn't want me to be 'anxious'). Told me to consider that all these symptoms could be me just worrying and being anxious. Told him when this started I was not worried about anything, shrugged and said, It could stil have happened, hey, sometimes we never find out what causes it and your just stuck with diarrhea forever." Then as I was leaving he slapped me on the back and said, "Don't worry so much, see you soon." I need to have the scopes done but is it me or are the things I was told today not true?  I would honestly love it not to be Celiac disease but could he be wrong?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,651
    • Most Online
      3,093

    Newest Member
    Kricket73
    Joined