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When I Get Glutened...
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I am STILL suffering from the glutening I got from the cookie crumbs. My gut is OK, my psoriasis has quieted down, but whenever my jaw pain and swelling flares up, it lasts for three or four weeks.

I am in SO much pain right now. This morning when I got up I was really grumpy. I'm so TIRED of hurting!

But I picked up my banjo and started playing Christmas music on it. My banjo is so much fun! I swear, even though I have some incredibly expensive guitars, if there were a fire, I'd grab the banjo first. So as grumpy and full of pain as I was this morning, that banjo not only had me smiling, but I was giggling!

What do you do to distract yourself when you're feeling bad?

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Take a hot soak in the tub, drink lots of liquids (especially peppermint tea), listen to music, read, play stupid computer games, exercise, wish I could play banjo. Sometimes I color designs with colored pencils or research weird things on a search engine, like how to make hand sewn curtains. I have little intenton of making curtains, but it was amazing to see the results.

Anything to get my mind off of "it" and on to what's next.

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OH! I forgot all about colored pencils! I used to love to draw cartoonish pictures with colored pencils. I have a bunch of them stuffed away in a drawer somewhere. I'll have to dig them out and start using them again.

When I was married, we used to wrap all Christmas presents in plain white paper and then do funny Christmas cartoons on the paper. My niece still has one I did for her of Peter Rabbit in a Santa hat carrying a stocking full of carrots. She was a little kid then, and she's in college now!

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Sigh. Wine. Wine and baths.

Doesn't work at the office, though. Then it's artisinal tea (www.teance.com is my source) and praying that no one comes over to talk to me, or if they do that I can pretend to be a normal person long enough until they go away.

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I'm a WoW addict. WoW being World of Warcraft. It is a great way to keep my mind off of what ails me. When you're busy saving the world from dragons, there is little time for feeling like crap. What can I say? I'm a dork.

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I see i'm not the only gamer :) though i'd rather do systems over computer games.

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I do own a Wii, which is like the red-headed step child of game systems, I know. But, Kirby's Epic Yarn. Between being Zelda fans and frankly not personally being a fps fan we've just never gotten another system. (We're just too poor to own more than one I guess.) I also love Steam sales, it is really the only time I get new games. The holiday sales and such is when I get my presents in game form and try new things. To be honest though, it was Blizzard that got me hooked and nearly two decades later here I am still a Blizzard girl. My game time is pretty evenly distributed between WoW and Diablo 3. Whatever brings on the endless slaughter of bad guys. :D

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mmm i've got a wii (its blue <3) and a few other systems. I can certainly understand that. I rarely get new games anymore (currently doing my Majora's mask run on the wii virtual console, if i can ever get my homework done), but when i do i try to find rare rpgs. Mainly ps2, gamecube, and wii ones. Until my other system gets more games (ps3) that i adore, i won't upgrade its library. I do handhelds as well. I may start getting older generation ones (ps1 and NES games), but we'll see.

I do play on the computer for things like roller coaster tycoon. But as it stands right now, my computer is dedicated to schoolwork.

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I play a lot of Yahtzee and watch a lot of bad tv. I was glutened last night, so that's what I've been doing all day. May get the strength to make some soy vanilla chai in a bit though :)

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I just try to act normal and get my school, housework, and caring for children done.

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Bad tv for me too, if I am up. If I am in bed I listen to BBC Radio 4, which is talking, news, plays. It helps me feel a bit more connected.

Small kids mean I have to keep going. And the cat that wants to sleep on my head.

I used to have coloring books, adult ones like tiffany stained glass, Celtic knot work, but my kids pinched those :) fairies and tractors don't do it for me quite the same.

I don't do computer games because I was horribly addicted in my 20s :o would do if I didn't get woken at 6 every morning.

Chatting to friends by phone.

Popping in here to keep sane ;)

Get well soon, enjoy kitty cuddles x

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I got glutened over TG and am still suffering. Usually it seems like it only takes 3 to 5 days but this is a doozy. It's like fibromyalgia pain and fatigue....oh and a pinched nerve on top of it.

So, the upshot is since I am a SAHM and my family is fairly sympathetic I've been watching a lot of t.v. and going to bed around 7:30 at night. This is coming to an end as Christmas is looming and my house is wrecked. I've made a ton of green drinks, I'm eating paleo and only what I cook. I did eat at PF Chang's one time, but other than that I feed myself. Lots of water, magnesium, fish oil, d3, B complex...and a few nights with codeine left over from my gluteny past where this happened all the time.

Hope you feel better soon...I'm getting there.

Oh yes...more time on this board too getting some support :)

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OH! I forgot all about colored pencils! I used to love to draw cartoonish pictures with colored pencils. I have a bunch of them stuffed away in a drawer somewhere. I'll have to dig them out and start using them again.

When I was married, we used to wrap all Christmas presents in plain white paper and then do funny Christmas cartoons on the paper. My niece still has one I did for her of Peter Rabbit in a Santa hat carrying a stocking full of carrots. She was a little kid then, and she's in college now!

I find coloring very therepeutic. I tried knitting after I read a study that women achieve about the same biorythmic patterns from knitting as they do from Yoga (sorry, monitors, I can't attribute the source). Knitting exasperated me. I kept dropping stitches. And once the yarn was cut in the middle of a skein! (Kind of like breaking a guitar sting in the middle of a good lick maybe?)

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
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