Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Nocturnal (Nighttime) Diarrhea And Nausea
0

7 posts in this topic

I'm a 52 year old white male.

After several months of nausea and occasional diarrhea, I had two >225 antibody tests. At the suggestion of my doctors went gluten free. I was better right away. Instead of having 6-7 bad days a week, I was done to 1-2.

I'm quite careful about avoiding gluten and mostly make all of my food at home. But I still have occasional nocturnal diarrhea. It's almost always between midnight and 3:30 am. I wake up with a rumbling stomach and nausea, and then I have diarrhea, very soft stool, sometimes mucous, etc.

It's exhausting, as many of you know. I live in a state with poor medical care, and don't have my next appointment with a GI until mid February. Does anyone have any insight? I'm new on this site, but have learned much from so many of you already. This place has been a real life line for me in making these adjustments.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'm a 52 year old white male.

After several months of nausea and occasional diarrhea, I had two >225 antibody tests. At the suggestion of my doctors went gluten free. I was better right away. Instead of having 6-7 bad days a week, I was done to 1-2.

I'm quite careful about avoiding gluten and mostly make all of my food at home. But I still have occasional nocturnal diarrhea. It's almost always between midnight and 3:30 am. I wake up with a rumbling stomach and nausea, and then I have diarrhea, very soft stool, sometimes mucous, etc.

It's exhausting, as many of you know. I live in a state with poor medical care, and don't have my next appointment with a GI until mid February. Does anyone have any insight? I'm new on this site, but have learned much from so many of you already. This place has been a real life line for me in making these adjustments.

Welcome! I am a 53 year white female so maybe I can help! ;)

Nocturnal diarrhea is very indicative of gluten but it may be that you have additional food issues that are causing this. Have you tried eliminating dairy? Many Celiacs have trouble with dairy in the beginning because the enzyme used to break down lactose is produced in the tips of the villi and when those villi are blunted or gone, you cannot digest milk products. I still have to eat dairy light after almost 8 years gluten-free. I went too long without a Celiac diagnosis so when it happened, I think my gut was just too compromised. Some people get their ability to digest milk back, others do not. This is extremely common so when people complain of stubborn symptoms not going away entirely, you look first at dairy. I know, not something many want to hear but it isn't always forever. Either that, or you are inadvertantly ingesting small amounts of gluten somewhere and it's still causing you grief. This diet takes a while to nail down completely. I know how exhausting it is because that was my main issue when I got really sick...nocturnal diarrhea. Sleep is totally disrupted.

How long have you been gluten-free?

0

Share this post


Link to post
Share on other sites

Have you tried eliminating dairy?

How long have you been gluten-free?

Thanks for your reply. I've been gluten free for 8 weeks and I've been off diary for the same amount of time. (Before my diagnosis I was getting ill from milk and ice cream especially.)

Continued good luck to you!

0

Share this post


Link to post
Share on other sites

As an "older" diagnosed Celiac, It takes a lot longer than 8 weeks to get everything healed and back on track. It could be something else you are eating, like a really cheesy dinner with ice cream or maybe you just need more time.

Whoopes! Just saw you are off dairy, but you get the idea. In the beginning a lot of corn products would do that tp me, too. Corn Chex for breakfast, Corn chips at lunch and corn tortillas and frozen corn at dinner. You may find its something like that.

0

Share this post


Link to post
Share on other sites

As an "older" diagnosed Celiac, It takes a lot longer than 8 weeks to get everything healed and back on track.

I appreciate your input! I am keeping a good food diary and indeed too much fiber makes me worse, too much fruit, for example. Pork and beans is hard on my stomach. My go-to food is rice. It can be fixed a number of ways and it never seems to bug me. I love this forum. I've learned so much.

0

Share this post


Link to post
Share on other sites




I appreciate your input! I am keeping a good food diary and indeed too much fiber makes me worse, too much fruit, for example. Pork and beans is hard on my stomach. My go-to food is rice. It can be fixed a number of ways and it never seems to bug me. I love this forum. I've learned so much.

Yeah.....2 months is not very long and other foods, even gluten-free ones, will cause grief at times. I still, after 8 years, have bad days when I eat something that is harder to digest like a greasier meal or heavier foods. We just have very sensitive tummies and probably always will but it does get much, much better the longer you are gluten free. Just keep it plain and simple for awhile and add things back in slowly.

0

Share this post


Link to post
Share on other sites

Welcome ABQ! I too am sensitive to many foods--and have a short list that I can eat. After a bit of time--my tummy problems got much better, but it took awhile. I found that I was still eating foods that I shouldn't be, and that as I get better at knowing the "good foods" for me--my tum does much better. I agree that we all seem to be quite "sensitive" souls with equally sensitive bodies! :D

Keep checking in regularly here--You will find *amazing* support, advice, and some laughs (which we all need too) as well!

Welcome again! :lol: :lol:

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,374
    • Total Posts
      920,569
  • Topics

  • Posts

    • Today was the big day when I went to the GI and this is the first time I have felt heard about and well taken care of.  I told him about the two celiac blood tests  (in my first post) normal, he said that often happens, even with people who do have celiac and he needed to see the report and pictures from my endoscope.    I had filled out the appropriate Kaiser paperwork for Sutter to send all my medical records, but they ended up sending a celiac disease to me with the records, which Sutter said they could not use.  We also talked about gluten sensitivity v. celiac, and he said a lot of people are sensitive to gluten even if they don't have celiac. He said that my symptoms sound like classic IBS, which can be caused by any number of things.  He asked if I would try the FODMAP diet, which limits certain foods and requires no gluten due to what being He said my symptoms sound like classic IBS, which he said can be caused by any number of things, including gluten sensitivity.  He has asked if I would try the FODMAP diet, which has restricted foods as well as no gluten because most gluten products have wheat in them.  So, since I am planning on going gluten free anyway, and I don't want another endoscope or blood tests if absolutely necessary, I am going to try the FODMAP diet and see what happens. I filled a consent form at the GI office today to have all my records sent to him so he can view the endoscope pathology report and photos.  I have an appointment with a Registered Dietician on September 30, and follow up appointment the GI in 4 months. 
    • gluten-free andee, according to an article on celiac.com  that talks about this subject see this link http://www.celiac.com/articles/24406/1/Celiac-Diease-and-Other-Autoimmune-Diseases-Equals-Low-Inflammatory-Diet/Page1.html Quoting the author "In the author's personal experience, a gluten-free diet has many limitations. The reactivity between alpha gliadin and corn, millet, oats, rice and dairy has been denounced as invalid by gastroenterologists and celiac disease researchers. While at a medical school in Missouri, biopsies did not show improvement in villous atropy until all alpha gliadin sources and corn, millet, rice and oats were removed from the diet."  Note this research is two years old but hilites the problem with non-gluten rice protein that you are having. It is the alpha gliadin sources that it causing the cross reactivity you are experiencing when you eat rice protein's. She says quoting "Celiac disease has gotten the most attention in antibody research, but the current data on cross-reactivity of antibodies is allowing a better understanding of gluten sensitivity. Antigen reactivity to alpha-gliadin can trigger immune attacks on many individuals beyond those with positive DQ 2, DQ 8 and TTG test results. She goes on to say "A low inflammatory diet customized to each person through testing for cross-reactivity or elimination diet protocols is needed to restore a state of health and well-being."  which sounds exactly like what you are doing. If you are still having problems after elminating rice a 30 day elimination of all the alpha gliadin proteins might be in order.  Corn is a common reactivity problem I hear with a gluten allergy from my friends as well as the obvious lactose problems that can be common among celiacs.  But rarely do you hear Rice allergy's brought up in context of a gluten allergy. I am glad you are making progress on finding your triggers. Read the whole article for yourself to see if there are nuggets of truth I did not highlight in my response. I hope this is helpful. Good luck on your journey to health. Posterboy,
    • One other thing - you might be able to tolerate some dairy if it's only the FODMAPs problem. I discovered that many cheese such as cheddar have effectively no lactose. And my wife sometimes makes 24 hour yoghurt, which also has effectively no lactose. Those have been fine for my tummy.
    • I'm new to the forum, so this topic may already have been covered....please forgive me, if that's the case.  I am in the beginning stages of guiding the development of a 504 plan to file for my 6th-grade daughter who was diagnosed with Celiac Disease 2 weeks ago. The diagnosis was made with a biopsy. My first question...A 504 is what's necessary....not just the IHCP, correct or no? I have the Physician's Statement & the Medical Evaluation report from our GI specialist. What else do I need to have at the ready? The team has requested we go ahead and write the IHCP & then include it with the 504.  And my second question...What accommodations have others found relevant to include on the IHCP  & 504? I just watched a 504-Plan webinar I found on this forum & it recommends the following: -access to gluten-free food in classroom & cafeteria - excused absence from activities that use gluten-containing foods or materials -  prevent cross-contamination in school food service - use of microwave to heat personal meals -  bathroom priveleges Is there anything I need to consider adding? My daughter does prefer eating school meals rather than packing a lunch from home & I am concerned about special events, overnight field trips etc. My learning curve is steep. What am I missing? Teach me, please & thanks so much! This forum has already helped me tremendously these past few weeks.
    • SIBO, microscopic colitis, probably celiac here (celiac's a self diagnosis, was gluten-free before getting tested). Now my doctor is suspecting hashimoto's due to low heart rate, so getting tested for that probably tomorrow. Anyway, I feel your pain... Low FODMAPs on top of gluten-free is tough. One thing that has helped me a lot is betaine HCl with meals. I can actually eat some onions, garlic, and fruit again with much less trouble. Make sure you get a safely gluten-free brand. Country Life is certified gfco, so is tested to less than 5ppm and is what I take. Good luck!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,450
    • Most Online
      1,763

    Newest Member
    Chellygirl
    Joined