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I'm New To This & I Really Need Help!
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Hi everyone, my name is Josh and I'm 23 years old. I'm new to this forum and to Celiac disease, I haven't got an official diagnosis yet but I know I'm barking up the right tree.I used to weigh 310. I've lost 80 pounds in the last 8 months but I started having symptoms about 3 months ago, It was hell on earth. I just woke up one day with really bad brain fog, diarrhea and mucus in my stool (Sorry if TMI) and I just felt really lethargic and had. I had light sensitivity and a host of other symptoms. As the next few days went on things just got incredibly worse. I went to the ER and they told me I was dehydrated and my potassium was low, gave me a saline drip and sent me home. Went two more time in the next couple of months and nothing. I went to my doc and he ran some tests and my thyroid levels were:

TSH 0.63 uIU//mL

Free T4 0.82 ng/dl

Free T3 2.50 pg/mL

My doctor said it was fine. One day I realized that I always felt really bad after I ate. If I ate something high in gluten I would have a physical allergic reaction and get so mad for no reason. So I did some research and I tried to elimnate gluten as much as possible. I started to feel better but not back to normal. The brain fog lightened up, the light sensitivity went away, my stool was more normal and I had a little more energy and I wasn't getting mad. I only got the mucus if I got glutened. This lasted for a couple of weeks and now it's almost like being back at square one. I'm not eating gluten but I get the mucus and the brain fog has gotten a little worse, I'm fatigued. This biggest thing for me is the brain fog and memory issues. My short term and long term memory haven't been good. Sometimes I have to work hard to remember details from a couple of days before. I remember things that happened a long time ago but my thought a really fuzzy so it makes it difficult. I've also lost interest in things I used to love.

I'm seeing a new doctor and he sys it sounds like some sort of malabsorption. He was the first doctor to actually listen. It felt so great to have someone take me seriously. He ordered test for my B12, Folic Acid, Vitamin D, Iron, Ferratin, and 3 gluten antibody tests. It's been a few days and I'm still waiting to get them back but they shouls come soon. I also have a lot of undigested food in my stool. If I eat spinach, I see spinach, I saw a whole sweet pea one time. I bought some plant based digestive enzymes but they haven't arrived yet. Do you think they will work? I know I need to get some vitamins but I'm very low on cash so I only ordered the enzymes because I felt they would help to get to the source of the problem. Has anyone else had memory issues? If so how long did you deal with it, how bad was it and did you recover? I just want my sharp mind and clarity back.

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Was the weight loss intentional? What is your labs free t ranges?

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Be aware that if you have been eating gluten free, the blood tests will likely be negative. The antibodies will only be present if you are eating gluten.

Sounds like you are on the right track, but maybe you are still accidently getting gluten. I had a set back early in the diet and began to question if I was on the right track. Turned out that there was gluten in the B vitamin I was taking. Even the smallest amount - like from cross contamination - can keep you feeling sick.

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Thank you guys for replying. Yes, the labs were free T's and no the weight loss was not intentional. I read that as long you haven't been gluten free for too many months the antibodies will still show up. I considered cross contamination but I try to thoroughly wash everything before I use it. I'm hoping to start with a multi, B12 and some digestive enzymes asap.

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    • Welcome!   You were smart to think about cross contamination.  Although it is great that there are so many gluten-free options out there, in the beginning it is best to try a whole foods diet, until your son feels a bit better.  The learning curve for the gluten-free diet is steep.  It is better for you to get everything down before letting others feed him.   When I was diagnosed, my hubby had been gluten free for 12 years.  I thought I knew the drill and converted right over to those gluten-free goodies I baked him.  Turned out, like many of us, I had some food inolerances not related to gluten but as a result of gut damage.  So, additives like Xantham gum made me think I was getting glutened, but I was not.  So, again, try to stick to naturally gluten free foods that are less processed for a while.  When you do venture out, I use "find me gluten free" and read the reviews from celiacs (not a person who thinks gluten-free is a way to lose weight! )   Here are some great tips from out Newbie 101 thread:  
    • I have the same problem. Was told it was psoriasis but no treatments worked even injections. I was daignosed celiac in may, and noticed a year ago the palm of my hand would itch intensely then get small blisters. I believe they are both dh. Have been gluten-free since diagnosis but still have issues with both areas. Thankful digestive issues cleared but would love to know how long before they clear up? I hope we both get feed back and best wishes to you!
    • Yes it most certainly could be a false negative, and I would bet you a dozen donuts that it is (gluten free, of course.   )  At the very least you can be sure it is related to gluten.  These gluten rashes take forever to clear up.  I don't know about you, but whenever I start to doubt my gluten intolerance, I just look at my skin, and the old blood stains on my sheets, and I am reassured that it's not all in my head, and I need to avoid gluten as if it were a bucket of battery acid.
    • Hello, My fiance and I are going to Singapore for our honeymoon next year and I was wondering if anyone knew any cafes/restaurants etc that have gluten-free dishes? We previously went two years ago and enjoyed ourselves so much that we definitely wanted to go back our our honeymoon. Catch is I got diagnosed as being gluten intolerant a few months ago, negative for Coeliac though. If I eat gluten I have bad nausea, bloating, diarrhea etc. Not pretty for a honeymoon :-) I am more than happy to eat fruit at breakfast and make do with steamed rice at dinner etc but if anyone has any ideas on anywhere I can safely eat that would be much appreciated. I don't care how much it costs! Also is it possible for me to bring packaged gluten-free food into Singapore from Australia? I am not sure on the rules. Thank you!!
    • Went in and talked to the manager of our pm and asked about the gluten free pizza, and he told me he can't guarantee its 100% gluten free because of the flour in the air from the other crusts being made.  I value the honesty.   The other employee also mentioned changing gloves.   I was thinking wow great, until I walked out and got to thinking about cross contamination from everyone grabbing the toppings out of the same bins and spreading the sauce with the same utensils.    My son was just diagnosed this week so we are new to the whole lifestyle.   So any help or info is greatly appreciated.    Thanks  
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