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How Long Would It Take To Feel Different/better?
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I went gluten free 11 days ago. I'm feeling the same/worse possibly. I wonder how long it should take to feel better or at least a difference if gluten was my problem? I have had negative blood tests, inconclusive biopsy and a pill cam study that they said had nothing too concerning (whatever that means-they were looking for the source of my anemia), but I have a gene for celiac and my brother is a diagnosed celiac and I have so many symptoms.

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How long have you had symptoms?

What will you be willing to do in order to return to health? . CAn you continously pass by gluten foods inspite of social pressure?

Are you a smoker or do you drink heavily?

Will you take tests to discover which suppliments are necessary?

Are you willing to discover what other intolerances you have and avoid or minimize contact with them?

Do you have an excercise program, or are you willing to start one as you feel better?

Are you able to get some extra rest?

Are you willing to scrutinize each label on the food you buy? Some must even call companies and find out what products they use their equipment for.

I think the answer to these questions will help to decide how quickly you will heal. I can gage that if you have had symptoms for 30 years and had 5 nauseating pregnancies which nevertheless ended happily, you will be still trying to get better in 6 months. You will have some higher highs, but some awful lows too.

.

I hope you will be able to do all of the above things. Get better soon ****

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worse in the first month is common.

The honest answer to your question is days, weeks, months or years. We are all different.

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We are definitely all different, and some of the differences might depend on if you're totally gluten free and how you've gone about making the changes. I ended up going almost low-carb at first because I found it hard to figure out what to eat, and that can definitely change how you feel in hurry.

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Hi Mars817,

You should plan to stay on the gluten-free diet for 3 months at least. 6 Months is a better test. It's not an instant cure, it takes time.

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I personally noticed my stomach aches and headaches were much less within a couple of days but I went through a withdrawl of sorts so I felt extra tired and cranky. Overall, in the first two weeks I really didn't feel much better. After a month or two I really noticed a difference, especially in the gut... I no longer looked pregnant. lol. Now that I'm 6 months in, my improvements are definitely slowing down and becoming more subtle.

Hang in there. As the others said, many people need a few months to see improvements, but I hope you start feeling better soon.

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Ok I guess I had just seen a lot of, I stopped eatiing gluten this morning and I'm so much better. I think my tummy is a bit better but I still am having issues and running for the bathroom and wondering if it is something else or not.

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Ok I guess I had just seen a lot of, I stopped eatiing gluten this morning and I'm so much better. I think my tummy is a bit better but I still am having issues and running for the bathroom and wondering if it is something else or not.

So you weren't really gluten free for 11 days? Every time you start eating gluten again you set yourself back some. It only takes a small amount of gluten to start a reaction by your body. The longer you stay gluten-free the less the cravings for it will be. It is harder to resist at first because we are used to eating it. But once you get out of the habit of eating gluten and get in the habit of eating other foods, it is easier. Or just plain easy.

There are lots of plain whole foods that taste great and are better for you than refined flour and carbohydrates and sugar. Plus the whole foods have better nutrients like vitamins and minerals in them that your body needs. Gluteny foods are loaded with vitamins to make them acceptable, because otherwise people would get weak and sick from eating them too much and not getting enough vitamins in their diets. They really aren't healthy foods by themselves. Imagine a bread maker grinding up a vitamin pill and putting it in your loaf of bread. That's basically what they do with wheat flour to make it worth while to eat instead of just empty calories. They call it "vitamin enriched flour". It's like enriching a pile of sand and telling people they should eat it because it's good for them to get all those added vitamins.

And other bad things about gluten can be imagined here smiley. :ph34r:

Get back in the wagon woman, and stay gluten-free for 3 to 6 months at least. That will give your body a chance to heal and start absorbing natural vitamins and minerals from real food. That's a good thing. :)

If you want to do a gluten challenge after 2 months or 3 months that is a better time to do it. By then you will have learned how to eat right and your body is starting to heal. And you can get clearer results from a gluten challenge. Many people want to do a gluten challenge to self diagnose, I see nothing wrong with that idea. If you feel bad eating gluten it doesn't matter a whole lot what you call the condition.

All this is meant to help you evaluate your own situation, I hope it helps..

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So you weren't really gluten free for 11 days? Every time you start eating gluten again you set yourself back some. It only takes a small amount of gluten to start a reaction by your body. The longer you stay gluten-free the less the cravings for it will be. It is harder to resist at first because we are used to eating it. But once you get out of the habit of eating gluten and get in the habit of eating other foods, it is easier. Or just plain easy.

There are lots of plain whole foods that taste great and are better for you than refined flour and carbohydrates and sugar. Plus the whole foods have better nutrients like vitamins and minerals in them that your body needs. Gluteny foods are loaded with vitamins to make them acceptable, because otherwise people would get weak and sick from eating them too much and not getting enough vitamins in their diets. They really aren't healthy foods by themselves. Imagine a bread maker grinding up a vitamin pill and putting it in your loaf of bread. That's basically what they do with wheat flour to make it worth while to eat instead of just empty calories. They call it "vitamin enriched flour". It's like enriching a pile of sand and telling people they should eat it because it's good for them to get all those added vitamins.

And other bad things about gluten can be imagined here smiley. :ph34r:

Get back in the wagon woman, and stay gluten-free for 3 to 6 months at least. That will give your body a chance to heal and start absorbing natural vitamins and minerals from real food. That's a good thing. :)

If you want to do a gluten challenge after 2 months or 3 months that is a better time to do it. By then you will have learned how to eat right and your body is starting to heal. And you can get clearer results from a gluten challenge. Many people want to do a gluten challenge to self diagnose, I see nothing wrong with that idea. If you feel bad eating gluten it doesn't matter a whole lot what you call the condition.

All this is meant to help you evaluate your own situation, I hope it helps..

I guess I didn't state it right. I have been off gluten for 12 days now. My very bad tummy problem had nothing to do with gluten that day at least. All I had was ice tea before they started. That why I wonder. I'm still staying gluten free I just wonder how long I should expect to notice a difference if it is gluten that is bothering me. Like I said in 12 days I'm pretty sure I have not had any gluten yet I still feel the same, maybe even worse. Because I've dealt with it with my brother I have a pretty good idea of what is ok or not so I don't think I've been inadvertently eating any.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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