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Changes In Your Body After Diagnosis

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Hey everyone,

I have a question that I have been wanting to ask other people with this disease.

After you stopped eating gluten, what kind of changes did you experience in your body. Apart from the obvious improvement of the gut in general.

Personally I have lost quite a bit of weight in fat for my size, even though I eat more than I used to, and I am pretty skinny to start with. However, when I go to the gym, the results come much faster than before, and i

My average heart rate has dropped quite substantially.

My skin, especially in my face is much clearer and I don't get zits and things like that at all anymore.

But best of all, the stomach cramps and diarrhea are gone!

There are tons of other things that have changed, but these are just a few.

What have you experienced personally? Since symptoms and recovery seems to be very individual, it would be fun to compare.


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My Plantar Fasheitis got dramatically worse and than went away. Sometimes my bloating is down. Other than that, I need to wait and see, because I have yet to have consistency. I am 6 months gluten free.


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My stomach aches and migraines are mostly gone, and I usually had one or the other all the time. My bloating went way down in my gut... I thought I had a beer gut and was becoming apple shaped, it was bloat. My hair started to grow back in (but I lost a bunch again due to another issue). My "C" cleared up after 2-3 months but that could have been from thyroid meds. My leg cramps went away. I used to have occasional bouts of plantar fascitis (sp?) too and it hasn't come back since I've been gluten-free.

Unfortunately my joint pain and fatigue hasn't disappeared but I now know that it was due to another health issue that I am treating... I helped me discover I had other problems that needed looking into.


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    • They didn't. The labs were run two and a half weeks ago and before I got confirmation on here that it should be done despite my drs saying otherwise. I was glutened the week prior anyway so it would've been high regardless.  It's all very frustrating. So I guess I'll wait five or six months and go back and demand it vs asking about it. 
    • Did they run a DGP IGA?  While your DGP can take over a year to come down, I still think you should be getting tested every six months until you see a downward trend.  I am not making that up.  Google it.   My DGP was off the charts when I was glutened last summer.  My symtoms were severe, yet at diagnosis, I just had anemia.  It took six months for all symptoms to completely resolve (rashes and hives took the longest and three month to regain dairy).  What I am saying is that symptoms for celiac disease can change.    
    • Long pause because I wanted my latest lab results and they took forever.  Cortisol, ACTH, estadiol, vitamin a and whatever else were all fine. They are retesting my thyroid in four weeks. I definitely bought the wrong product and glutened myself a few weeks back so I guess that has to wait which really irritates me. My gliadin iga ab was greater than 100 almost two yrs ago at diagnosis so I guess sometime next yr I'll redo that and hope it's down :-/. Trying to do all the right things and get bad information from doctors.  Thanks for all the info you've shared and helped me with. I've had lab work every month since May and will next month for the thyroid again. Sigh. 
    • Hi Carle, Congrats on your symptoms going away.  I did seem to have reactions to rice for a while after going gluten-free.  But after some years on the gluten-free diet I can eat it again.  So reactions can change over time. I was searching for an article on gluten in common store products, but didn't find it.  There was a group that did testing on some common grocery products like beans, rice, corn etc that we would normally consider to be gluten-free naturally.  But they found some level of gluten in some of them.  So it's not impossible to pick up something off the shelf that ought to be naturally gluten-free and find it is contaminated.  That may have happened with the rice you ate.  A quick rinse of water before using the rice might help.
    • Hi Doit, The reference ranges to the right of the test result show the values the result ought to be in for normal readings (no celiac disease).  Your results appear to show no higher than normal results that I can see. However, you aren't following the recommended process for celiac disease blood testing.  The blood test is supposed to preceded by 12 weeks of daily gluten eating.  That is generally enough time to cause a sufficient quantity of antibodies to build up in the blood stream to be detectable by the tests. Not having antibodies in the blood stream doesn't mean you aren't being damaged.  People with DH (dermatitis herpetiformis) sometimes test negative on the standard blood tests.  My theory is possibly because the antibodies are concentrated in the skin instead of the blood.  In gut damage, it is possible the antibodies are concentrated in the gut, instead of the blood.  After some time they show up in the blood also.  The thinking is the antibodies go where the work is.  Anyway, theories aside, it takes very little gluten to kick off an immune response.  Those antibodies are not aimless soldiers.  They start doing their work and destroying gluten and gut tissue even if you don't feel symptoms.  Did you know there are some people who have no GI symptoms of celiac disease but still have it?  They call that silent celiac.  So going by symptoms is not a good way to judge actual damage in the gut. You are wise to go in for followup testing, but the followup testing is hopefully to show compliance with the gluten-free diet, and lower antibody test results.  Have your close family members been tested for celiac disease?  It sounds like they should be.   There is a 5% higher chance of them having celiac than the general population. Welcome to the forum!
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