Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Is Anyone Feeling Fine?!
0

14 posts in this topic

Silly question maybe, but today i guess I'm looking for hope!

Is anyone (whether immediately after going gluten-free or even with additional health problems) feeling good? Feeling healthy? Feeling 'normal'?! Feeling happy?

Apart from the inconvenience of strictly avoiding gluten, is life good?

I'd love to hear anybody's story, I'd really appreciate it. I've had NO silly odd symptoms for TWO days and I'm very excited (saddo!)

0

Share this post


Link to post
Share on other sites


Ads by Google:

This isn't always a super busy board, and you only gave people six hours to respond. Especially during the work day, you might not get a lot of fast responses. And your post has to be seen by the moderators so others can see it too, which takes time.

That said, I'm feeling fine. I've been gluten free for... nine years? ten? (check my siggy) Dairy free for seven. I've dealt with other issues in the meantime (vulvar vestibulitis, chronic sacro-illiac instability, fibromyalgia, chronic migraines, restless leg, dysthymia) but they had more to do with a high-stress job and other various things to work through rather than dietary issues. And they're controlled for me at this point. (I'd probably feel better if my 2.5yr would sleep through the night. Going on three years of sleep deprivation is getting rather old!)

0

Share this post


Link to post
Share on other sites

I am new to this board, and relativey new to gluten-free. I have been battling nausea and dizziness for a long time, no doctors had a clue. I am only gluten-free for a month, but in that month, I have been feeling great, better than ever. there was only one time that I had a slight issue, and that was when I did some baking with flour. I didn't realize that would have an effect, I didn't eat any, but I was elbow deep in flour and it was all over my kitchen. live and learn..

0

Share this post


Link to post
Share on other sites

Ah thanks guys...

Sorry yeah I know I wasn't being patient! I've been living on this forum lately so it felt like ages to me. I'm very pleased to hear that you are feeling good, one of you after 10 years and one after 1 month. That's fabulous! It seems that most people on here have other health issues to (mostly connected with celiac?) thanks for responding :)

0

Share this post


Link to post
Share on other sites




It all seems very variable, I have had a bit of a rollercoaster. What I do know is that I have had a couple of weeks when I have had more energy and focus than for year, and that apart from when I get glutened and feel like I have flu my 'normal' energy levels are way better.

I am down to about 1 migraine a month from 3 a week at worst, monthly symptoms that used to put me in bed for 2 days are now a few hours soreness. My moods are better and I only feel depressed when glutened. My plantar fasciitis is gone except when glutened.

I know what you mean about time flying on the forum. I am totally addicted :) . It is so good to finally find out what has been going on all these years and find other people who share my experience. With the best will in the world family and friends can only be enthusiastic about all the details for so many hours in the day!

0

Share this post


Link to post
Share on other sites

Not only am I feeling fine, I am feeling wonderful. After being sick for most of my life, I am not sick anymore. Normal healthy people really don't appreciate their lives enough. All those normal, healthy people should be going around smiling all the time. It can take some time to figure out the right diet for you, and it takes some time to heal. You will get there.

0

Share this post


Link to post
Share on other sites

My gastrointestinal symptoms and migraines are much much better! It was nice to get rid of that stuff... I didn't realize how often my gut and head hurt until it was gone! It's amazing what you get used to. ;)

I do have a few other health issues that I'm working on sorting out so I'm not fine yet, but I'm working on it! :)

0

Share this post


Link to post
Share on other sites

I spent three years that started off with mostly feeling tired and progressed to gluten ataxia. The last year was mostly spent in bed or forcing myself to move. After a year of gluten free, I'm back doing yoga, walking, going to the gym and feeling solid. Occasional problems with balance. No longer have seizures. I'm looking forward to going back to working after not being able to for three years.

I have more sensitivities to msg (and all the 'natural' forms of msg) now and have to be super clean with my eating or I get nasty vertigo, migraine and upset stomach.

I'm happy to be alive and healthy.

0

Share this post


Link to post
Share on other sites

A friend with celiac went gluten-free a year or so ago when she was diagnosed, after constant painful stomach aches, and after a few months of eating gentle foods she feels great and can eat anything (gluten-free) that she wants. No problems, no lingering issues, no symptoms of anything else lurking. Just fine. It can happen.

0

Share this post


Link to post
Share on other sites

Not only am I feeling fine, I am feeling wonderful. After being sick for most of my life, I am not sick anymore. Normal healthy people really don't appreciate their lives enough. All those normal, healthy people should be going around smiling all the time. It can take some time to figure out the right diet for you, and it takes some time to heal. You will get there.

Thank you for this post. It really gives me hope and makes ME smile, even if I'm not healthy yet.

0

Share this post


Link to post
Share on other sites

I love hearing these stories :) did any one have lingering loose bowels? Nothing I eat seems to help. Am gluten free, dairy free, caffeine free, sugar free. And vegetarian. Ugh!

0

Share this post


Link to post
Share on other sites

I definitely had problems with lingering loose bowels as well as a whole bunch of other symptoms. That is what I meant about it takes awhile to figure out the right diet and it takes time to heal.

What helps is to keep a food/symptom journal. Try to keep your diet very constant and then start a series of elimination/challenge diets. Try to only change one thing per week. It can take awhile for differences to show up. Once you find a group of foods that are safe for you, then only add one new item per week to determine whether or not that food is safe for you. Keep track of not only the foods, but their sources. For instance, I have problems with some brands of honey, but I can eat all I want of another brand.

It helps to go to a diet of produce and unprocessed meats only to start. Processed foods have a lot of different ingredients and a lot of different sources which complicate the process.

0

Share this post


Link to post
Share on other sites

No GI problems whatsoever with me so I am fine that way. However, my severe chronic back/hip/leg/calf pain has worsened lately - perhaps due to the cold -25F weather. No possible gluten ingested. But I choose not to focus on my pain which makes a gigantic difference. I used to allow it to control my life but now I do not. So, even though I am in constant pain, I can honestly tell people I am doing well because that is how I think. My coping skills have improved dramatically so in spite of pain most of my days are still good ones. A good day is when I am able to get groceries and cook a spectacular dinner and/or read a compelling book. My hobbies/interests are many which also helps.

Before you know it, your focus will not be on your health, either. It DOES get better and there is ALWAYS hope! :D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,147
    • Total Posts
      919,590
  • Topics

  • Posts

    • Hi Sarah, I agree with cyclinglady, your doctor doesn't seem to understand celiac disease.   Maybe you can check on Google for a local celiac support group.  Ask them if they know of any good celiac doctors in your area. The usual testing process for celiac is 12 weeks of eating gluten and then a blood test followed by an endoscopy later.  You are right, if you weren't eating gluten before the test it was not reliable. Welcome to the forum!  
    • Hi lolobaggins, Yes, it is not unusual to have symptoms that come and go after going gluten-free.  Edema (swelling) can also be a symptom of an allergic reaction.  Fatigue is not fun but remember your body is trying to heal a major organ, your gut.  So some rest might be a good idea.  The immune system response is going to keep going for several weeks to several months.  Each little bit of gluten kicks the immune response off again and extends the healing time.  So it's helpful to be very careful with your diet. Meats, vegetable, and nuts are good foods to eat at the beginning.  And whole foods rather than processed foods.  Dairy is often a problem until the villi are healed.  After a few weeks if things are going well you can try to add one new food a week and see how things go.  But take it slow and easy.  The fewer foods/ingredients we are eating the easier it is to identify problem foods. Welcome to the forum!
    • Welcome to the club that you never wanted to join!  (I plagiarized that from someone else here but can't recall who so I can't give credit to them.) Anyway, there is a steep learning curve to being gluten free.  It takes time to learn to read labels.  It takes time to heal (like months to YEARS).  Symptoms can wax or wane.  You just have to keep moving forward.  Give yourself time to heal and do not worry about the gym right now.  It will come back later, I promise (from a gal who cycles, swims, and runs).   Read our Newbie 101 section pinned at the top of the "Coping" section.  It contains valuable tips about cross contamination and hidden sources of gluten.  Read, read, read, the internet from reliable sources (not crazy bloggers).   You will feel better soon.  
    • Ha!    That happens to me all the time!!!!!  It drives me crazy!
    • "Accidentally marked them soy free".  Are you kidding?  That's fraud!  Consumer Reports just issued a huge report this month on supplements.   Yes, everyone thinks they are all "natural" and therefore safe.  Doctors and nurses recommend them all the time, but they can do a lot of damage.  Anyone can start making them in their bathroom and there's literally no regulation.   Geez, it is safer to buy food products (no gluten ingredients listed) from companies like Kraft and ConAgra because they are regulated more!  http://www.consumerreports.org/cro/magazine/2016/09/index.htm What about the probiotics?  Columbia University tested about 20 of them and found that over half had gluten in them.....enough to make celiacs  remain sick. https://www.sciencedaily.com/releases/2015/05/150515083232.htm Think twice about taking supplements.  Make sure you really medically need supplements.  I prefer certified gluten-free if I need to take them and I take nothing right now because all my labs are okay!  You have been on the gluten-free bandwagon for many years (member here for years).  Your doctors should be looking at other things that might be making you sick still.  Something is wrong!   That's my two cents!    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,181
    • Most Online
      1,763

    Newest Member
    Diana061
    Joined