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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Is Anyone Feeling Fine?!
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14 posts in this topic

Silly question maybe, but today i guess I'm looking for hope!

Is anyone (whether immediately after going gluten-free or even with additional health problems) feeling good? Feeling healthy? Feeling 'normal'?! Feeling happy?

Apart from the inconvenience of strictly avoiding gluten, is life good?

I'd love to hear anybody's story, I'd really appreciate it. I've had NO silly odd symptoms for TWO days and I'm very excited (saddo!)

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Nobody feeling' fine then

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This isn't always a super busy board, and you only gave people six hours to respond. Especially during the work day, you might not get a lot of fast responses. And your post has to be seen by the moderators so others can see it too, which takes time.

That said, I'm feeling fine. I've been gluten free for... nine years? ten? (check my siggy) Dairy free for seven. I've dealt with other issues in the meantime (vulvar vestibulitis, chronic sacro-illiac instability, fibromyalgia, chronic migraines, restless leg, dysthymia) but they had more to do with a high-stress job and other various things to work through rather than dietary issues. And they're controlled for me at this point. (I'd probably feel better if my 2.5yr would sleep through the night. Going on three years of sleep deprivation is getting rather old!)

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I am new to this board, and relativey new to gluten-free. I have been battling nausea and dizziness for a long time, no doctors had a clue. I am only gluten-free for a month, but in that month, I have been feeling great, better than ever. there was only one time that I had a slight issue, and that was when I did some baking with flour. I didn't realize that would have an effect, I didn't eat any, but I was elbow deep in flour and it was all over my kitchen. live and learn..

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Ah thanks guys...

Sorry yeah I know I wasn't being patient! I've been living on this forum lately so it felt like ages to me. I'm very pleased to hear that you are feeling good, one of you after 10 years and one after 1 month. That's fabulous! It seems that most people on here have other health issues to (mostly connected with celiac?) thanks for responding :)

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It all seems very variable, I have had a bit of a rollercoaster. What I do know is that I have had a couple of weeks when I have had more energy and focus than for year, and that apart from when I get glutened and feel like I have flu my 'normal' energy levels are way better.

I am down to about 1 migraine a month from 3 a week at worst, monthly symptoms that used to put me in bed for 2 days are now a few hours soreness. My moods are better and I only feel depressed when glutened. My plantar fasciitis is gone except when glutened.

I know what you mean about time flying on the forum. I am totally addicted :) . It is so good to finally find out what has been going on all these years and find other people who share my experience. With the best will in the world family and friends can only be enthusiastic about all the details for so many hours in the day!

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Not only am I feeling fine, I am feeling wonderful. After being sick for most of my life, I am not sick anymore. Normal healthy people really don't appreciate their lives enough. All those normal, healthy people should be going around smiling all the time. It can take some time to figure out the right diet for you, and it takes some time to heal. You will get there.

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My gastrointestinal symptoms and migraines are much much better! It was nice to get rid of that stuff... I didn't realize how often my gut and head hurt until it was gone! It's amazing what you get used to. ;)

I do have a few other health issues that I'm working on sorting out so I'm not fine yet, but I'm working on it! :)

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I spent three years that started off with mostly feeling tired and progressed to gluten ataxia. The last year was mostly spent in bed or forcing myself to move. After a year of gluten free, I'm back doing yoga, walking, going to the gym and feeling solid. Occasional problems with balance. No longer have seizures. I'm looking forward to going back to working after not being able to for three years.

I have more sensitivities to msg (and all the 'natural' forms of msg) now and have to be super clean with my eating or I get nasty vertigo, migraine and upset stomach.

I'm happy to be alive and healthy.

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A friend with celiac went gluten-free a year or so ago when she was diagnosed, after constant painful stomach aches, and after a few months of eating gentle foods she feels great and can eat anything (gluten-free) that she wants. No problems, no lingering issues, no symptoms of anything else lurking. Just fine. It can happen.

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Not only am I feeling fine, I am feeling wonderful. After being sick for most of my life, I am not sick anymore. Normal healthy people really don't appreciate their lives enough. All those normal, healthy people should be going around smiling all the time. It can take some time to figure out the right diet for you, and it takes some time to heal. You will get there.

Thank you for this post. It really gives me hope and makes ME smile, even if I'm not healthy yet.

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I love hearing these stories :) did any one have lingering loose bowels? Nothing I eat seems to help. Am gluten free, dairy free, caffeine free, sugar free. And vegetarian. Ugh!

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I definitely had problems with lingering loose bowels as well as a whole bunch of other symptoms. That is what I meant about it takes awhile to figure out the right diet and it takes time to heal.

What helps is to keep a food/symptom journal. Try to keep your diet very constant and then start a series of elimination/challenge diets. Try to only change one thing per week. It can take awhile for differences to show up. Once you find a group of foods that are safe for you, then only add one new item per week to determine whether or not that food is safe for you. Keep track of not only the foods, but their sources. For instance, I have problems with some brands of honey, but I can eat all I want of another brand.

It helps to go to a diet of produce and unprocessed meats only to start. Processed foods have a lot of different ingredients and a lot of different sources which complicate the process.

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No GI problems whatsoever with me so I am fine that way. However, my severe chronic back/hip/leg/calf pain has worsened lately - perhaps due to the cold -25F weather. No possible gluten ingested. But I choose not to focus on my pain which makes a gigantic difference. I used to allow it to control my life but now I do not. So, even though I am in constant pain, I can honestly tell people I am doing well because that is how I think. My coping skills have improved dramatically so in spite of pain most of my days are still good ones. A good day is when I am able to get groceries and cook a spectacular dinner and/or read a compelling book. My hobbies/interests are many which also helps.

Before you know it, your focus will not be on your health, either. It DOES get better and there is ALWAYS hope! :D

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    • Weird Reaction
      Thank  you Flowerqueen and Cristiana for your replies. I'm actually feeling much better today. I got my appetite back yesterday lunchtime (a few hours after I typed the original post) and managed to keep in/hold down some chicken and lettuce!!! I also had a "fat" coffee (as I call it) before work with MCT Oil and butter (your probably going "yuk" right now but it's really nice...really haha) and started feeling a bit better after that. The nausea went away almost immediately after that although just the thought of having all that fat nearly made me sick but I just wanted to get back to normal asap. I usually have a lot of fat in my diet anyway which is normal for me so the coffee choice isn't unusual. Plus it was also the third day which was when I started feeling better after the first time. I didn't eat til lunchtime and I was good and hungry by then so I knew I was coming out of it. That nausea and trembling feeling is something I don't want ever again. I think after the workout and tearing down muscle tissue (which is a form of stress) and then not being able to hold the nutrients in for repair affected my nervous system. My theory only but to me it makes sense. Although Vitargo also comes in flavors I always get the Natural / Unflavored one so the barley is the only ingredient. As for there being something wrong with that particular batch, well, you be on to something there. Also I'm not knocking the product because as I said, I have used it before and it did exactly what it was supposed to do. But, I will never have it again. Cristiana, my last blood test revealed I had slight anaemia which really surprised me with the amount of red meat I've eaten during my life and the anxiety thing is also new as I'm usually a happy, positive person. Life is good but after this recent reaction I think it is an indirect cause of the glutening. I'm also surprised at how sensitive I've become to it and how quickly. Also what is DX? I also follow a FODMAP eating plan (I can give you more info if you haven't heard of it) which also eliminates certain foods. It's a plan directed mostly at IBS but is well worth looking into if you are suffering any gut health, digestion issues or any ailment you may have which you can't get to the bottom of. Broccoli was one of the foods which I have cut back on and I've eaten HUGE amounts of broccoli so it is a superfood for some but apparently not for others. (I even think I read somewhere it has MSG naturally in it) It's hard to find any bad articles on broccoli so this also really surprised me. It also answered a few other questions I had. Many, many thanks again to you both for your replies. It actually settled me just reading them. I'm glad I found these forums so I don't think i'll be a stranger around here for long.   Richard
    • Confused
      Okay, I get that you are not going to follow the advice from some stranger on the internet, but please read the links that I gave you.  Your doctor is not following the standard level of care.  I am dead serious.  I have Kaiser.  My own GP doesn't have a clue about celiac disease, but my Kaiser GI does.  Please, I urge you to get properly diagnosed.  All celiac testing requires you to be on a gluten diet.  If you go gluten free even for two weeks (it will take time to get the referral and appointment), it will mess up the tests.  Your GI will put you back on a gluten diet (called a gluten challenge) for 8 to 12 weeks.    Chances are (almost 100%) you will feel more miserable!  That will just delay your diagnosis.   Symptoms not bad you say?  I had pretty severe anemia, but no tummy issues.  Two months after my diagnosis, I fractured my back DOING NOTHING!  Yep, I have osteoporosis from undiagnosed celiac disease and I am an athlete!   Please take this seriously!    
    • Silent Celiac or Non-digestive symptoms
      Oh, you might learn how to tell if you had been glutened.  I just had anemia as my main symptom.  I did not have any tummy issues at all.  I was in shock when my doctor even suggested testing me for celiac disease!   Glutenings can vary as we are all different.  For some it is just a few days, others a few weeks and others months (that would be me).  My last official glutening as supported by follow-up antibody testing lasted for three months.  Guess what?  I had vomiting, abdominal pain, the works!  Funny how celiac disease can change and evolve over time.   Welcome to the forum!  Have some patience and learn all that you can.  The good news is that you can feel better and no medications are required!  
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    • Could this possibly be related to celiac or a gluten intolerance?
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