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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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5 posts in this topic

Okay, after doing an elimination diet in April, I realized gluten was really affecting my life. Depression, anxiety, fatigue, rashes, weight loss, and stomach cramps.... These all disappeared after 7 days eating gluten free. I re-introduced gluten for about 2 months, and realized it was seriously affecting my life and my brain. I stopped eating gluten again for 2 weeks and I was healed again....

Went to the PCP and he told me he believed I was gluten intolerant. He ran 2 tests for blood work and results came back negative. He told me to continue on a gluten free diet and be happy!

My aunt had gone through testing through a naturopath to get all intolerances named. The woman who did it said it was electromagnetic testing to test for allergies. I did the testing and got my oldest daughter (5)tested and I came back gluten intolerant and my daughter is gluten and dairy intolerant.

My question is: what am I missing? Does it matter if we are Celiac or G intolerant? We've adapted and are living free of gluten and dairy for her, but I keep getting this feeling that it isn't enough to not be sure if we are Celiac.

How do I go about this with my daughter's pediatrician? Will they believe me since it was non-conventional testing?

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I've heard that the reaction to gluten between NCGI and Celiac is the same except for the no intestine damage.

You could at this point ask for the genetic testing to be done. It isn't enough for a dx of course, but it could help point in the right direction.

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When you had testing, you were gluten free.

Since testing is based on gluten antibodies present in the body, there is no way

you can get accurate testing while you are OFF gluten.

You may wish to read about valid and invalid testing for "food intolerances" and food allergies.

There are tests for wheat , dairy and other food allergies, but there are no valid tests right now for gluten sensitivity. And technically, there is no such thing as a "gluten allergy".

Celiac disease is not an allergy. It is an autoimmune disease.

....and there is NO validity to "electromagnetic testing" at all. Sorry.

http://www.scienceba...he-science-say/

http://www.allergy-c...oversial-tests/

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When you had testing, you were gluten free.

Since testing is based on gluten antibodies present in the body, there is no way

you can get accurate testing while you are OFF gluten.

You may wish to read about valid and invalid testing for "food intolerances" and food allergies.

There are tests for wheat , dairy and other food allergies, but there are no valid tests right now for gluten sensitivity. And technically, there is no such thing as a "gluten allergy".

Celiac disease is not an allergy. It is an autoimmune disease.

....and there is NO validity to "electromagnetic testing" at all. Sorry.

http://www.scienceba...he-science-say/

http://www.allergy-c...oversial-tests/

So, since I know gluten is the culprit, is it important to find out if I or my daughter are celiac?

What are the next steps for my five year old? What are the benefits of a diagnosis for her?

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If you are in the U.S., school accomodations. Under the ADA (americans with disabilities act), celiac is covered and the school would have to accomodate. For example, if she were to have a gluten incident and be forced to stay home for a week, they would have to accomodate that. Likewise with anything gluteny in the classroom or whatnot.

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      Your GI is sadly mis-informed!  You should be tested for Celiac Disease before embarking on a gluten free diet.  Celiac Disease should be ruled out first!  So many doctors think that you have to be malnourished and wasting away to have celiac disease -- not true!  You can develop celiac disease at ANY age.  Do you have any other autoimmune disorders?   Celiac disease is also genetic.  So, if you have it, your kids and sibliings should be tested even if they are symptom free!  Celiac Disease has so many other issues that come with having it.  That's why having a proper diagnosis is important.  You will get the care you need.  Also, sticking to a life-long especially when you are older and it is hard to make changes in general (hey, I'm there!).    Your GP can actually order the celiac blood panel.  In addition, I would search around for another GI (one who is celiac savvy).   Here's a link regarding the exact tests: http://www.cureceliacdisease.org/screening/ I encourage you to read up on celiac disease.  Only you can be your best health advocate!  I wish you well!  Feel free to ask any questions!  
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