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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity

    Atypical Symptoms (?), 1 Monthly Attack

    Started by pylorus,

    1 post in this topic

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    I was Dxed with hypothyroidism in 2008 and lost my once fabulous memory as of late '07 (26 at the time). Since then, I'd always assumed my memory was related to my thyroid, questioned doctors about supplemental T3, had neuropsych testing only this past spring which I'm pretty sure confirmed that I had definite short term memory losses (it was certainly obvious to me), and a clean MRI. Hashimotos encephalopthy was being considered, but never pursued (no other neuro symptoms).

    I've had a good gut all my life.

    I had a severe gut pain attack in October 2011 that I chalked up to food poisoning. Throwing up, diarrhea.

    I had another attack January 2012, another in March, May, June, July (the latter two were a month and a day apart). In June, I had gone to another endocrinologist for a second opinion about the memory thing - He recommended being tested for CELIAC'S, sleep apnea, B12 (its always been fine), maybe some other basics. He suggested celiacs without even hearing about my gut.

    I also had a terrible rash on my foot which no salve could cure.

    After the July attack, I knew it couldnt possibly be constant food poisoning and went to my GP who suggested trying the gluten-free diet. My antibody tests and others were negative including abdominal ultrasound.

    I did the diet July 19-Aug 10 and avoided my august attack. My foot rash pretty much disappeared, so I had to cancel my august dermatology appt.

    Started back on gluten. Got the attack again mid-september (1 month and a week after re-starting gluten). The pain was so bad, I called the gastro doctor's office in tears, begging for an earlier appointment. The pain is so nauseating I'll make myself throw up because the constriction offers some relief. I'm on the toilet every 10-15 minutes. Episodes usually last a whole day 7am-5pm, but I have had some shorter.. 7am-2pm. I re-started gluten-free after september. Early october, I had a club sandwich and had a much more minor attack on Oct 16th - which I truly wanted to believe was food poisoning because I had eaten 1.5 week old cheesecake (gluten-free, no less - ha!) - the pain was "different", I was able to sit comfortably for a few minutes, I also didnt have the mental and systemic fatigue that I usually do, and it lasted only a few hours.

    My theory is that possibly I have the ill-understood "gluten intolerance", where it builds up to unacceptable levels throughout the month until it reaches threshold and explodes.


    I see the gastro on Dec 10 and have been gobbling gluten since end of November in preparation.


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