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What Do You Do With Open Foodstuff Which You Now Can't Eat.
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I just discovered my buckwheat and another big bag of food are not good for me. What do I do with it? I don't dare have it here, for fear of cross contamination or reacting to it in the air. It is 30+ lbs of food in each bag. It has dollar signs of wasted stuff for me. I guess the food shelf won't take open products.

Diana

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Donate it to friends/family?

When I got diagnosed I gave my housemates all the gluteny food that had been in my cupboard. We're all students so no one cared in the slightest that some of it had been opened!

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find a friend relative, neighbor or co-worker who can use it

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Some food banks will take opened items depending on what they are. You can phone around. I was able to give away a bunch of nuts to a food bank run at a church. They put them right in a dish and people were digging in even before I left.

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If money is an issue, you could always get in touch with a local celiac or gluten free group and put up a message offering to sell the remaining food for a lower cost. Or to sell it in, say, 1 pound amounts or something like that?

When I was starting out, that's actually how I got many of my gluten-free grains. A woman had been diagnosed with gluten intolerance, bought tons of new flours and starches, and then discovered that it was something else entirely. She sold her open bags for a lower cost and just sent an email about on the local celiac message board. :-)

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    • Mnoosh,    Can you give us a link to the article you read about the increased risk after being diagnosed and maintaining a strict gluten-free diet??       IMO,   You are over reacting to a misprint or most likely a misread article.
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    • Take a deep breath and calm down!    The incidence of cancer with Celiac Disease is rare.......it can happen but the vast majority of people never have that experience.  You may have somewhat enlarged lymph nodes due to inflammation from undiagnosed Celiac but that will all calm down and go away once you get going on the diet.  Believe me, there are many of us that have things happen during the diagnosis and early recovery period and everything turned out just fine.  There is an elevated risk for some cancers with Celiac but that risk goes back to that of the general population after a couple of years on the gluten-free diet. I cannot remember the exact time frame but it is somewhere between 2-4 years, I think.  So many of us went years without a diagnosis and when it was all figured out, we have gone on to be healthy with little complications.  Really...do  not worry about this.  Concentrate on learning all the ins and outs of this disease and how to live gluten free happily.  We are here to help you and guess what? The diet is not as bad as some make it out to be. Many things can be made gluten free and are every bit as good as their gluten counterparts. The diet may not be convenient but it is not hard. I would not lie to you!   
    • Well....one common symptom that most celiacs have when they are diagnosed (or undiagnosed) is anxiety.  So, there is a risk of cancers, but science has demonstrated that that risk goes down on a gluten free diet (if you have celiac disease).  In goes down to the same risk as those without celiac disease.   I kind of was a basket case.  I drive my family a bit crazy because I was anxious.  I felt a bit stupid too.  I guess I had a little brain fog going on too.  All that resolved after I healed. Welcome to the fourum.  Read our Newbie 101 thread under "Coping" (pinned at the top of the page) and learn about hidden sources of gluten and cross contamination.  I think most of us do not worry about cancer. We mourn the freedom to eat anything anywhere!   I did not have swollen lymph nodes, but I am sure others have and they did not have cancer.  Hopefully, they will chime in and set your mind at ease.  If not, you can search for "lymph nodes" at the top of the page (little magnifying glass).  There are lots of members with the same issue!  
    • I was recently diagnosed as having celiac and to be honest the part I'm having the most trouble with isn't the change in food or lifestyle. I'm really upset about what I've read about the risk of cancer increasing with celiac disease. I think this is playing into my fears because I currently have lymph nodes all over my body-my Doctor says they are not considered swollen or concerning, but I don't usually feel nodes. The lymph nodes and horrible diarrhea for the last 3 weeks were what got me into the the doctor for lab work. My blood work came great so I'm wondering if anyone else experienced lymph nodes reacting when they found out they were celiac? Also how do you deal with anxiety surrounding the increased risk of cancer? Thanks!
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