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14 Month Old With Concerning Symptoms
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7 posts in this topic

Celiac disease runs loosely in my family so it has always been on the back of my mind for my son, but it is becoming an alarming reality and I would love some input from y'all. My son is 14 months old and has been difficult since day one. We battled severe reflux and gas issues for the first 6 months of his life while he was exclusively breast fed (I was eating gluten). At 6 months, we started only fruits, veggies and oatmeal (all homemade pur

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You have a few positive tests described right there in your story.

He does better off it, then bad on it. Then better again off, then bad on. That is *four* positive tests right there.

If he does better off gluten, and you can't get proper testing at this time, why keep him on it?

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Your doctor is wrong. It can be hard to diagnose in little ones but it certainly exists.

I hope someone can get you some good research to show your doctor.

That said, I am not sure you will want to put him back on gluten for testing via blood and endoscopy.

Follow your gut, you have seen the difference.

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Where do these doctors come from??? Stories like this make me so angry.

I would take him off gluten if it were me. I did that with my oldest when he was about 9 months, and he had many of the same symptoms as your little guy. I am going to keep my yyoungest totally gluten-free until he is old enough to be able to tell me how he feels.

Luckily you don't need a doctor's permission to change your diet.

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Thanks everyone! I appreciate the input and it makes me feel better to know that y'all can see what I am talking about and consider it important as well. We will be flying home for Christmas and I am nervous that our families will just think I am some crazy first time mom that is going overboard. After noticing that he does significantly better off of gluten I am obviously not going to put him back on it but it honestly does worry me that we do not have a diagnosis bc of school issues in the future. I am sure we will have time to worry about that later but I definitely just want to cover the bases

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The genetic testing doesn't require eating gluten. Around 30 per cent of the population have the genes, but it might help later on with making accomodations later, along with response to gluten-free diet. Maybe write down now some very specific details of symptoms before and after to refer to later.

With family and others, they wouldn't say you were being fussy if you told people it was a nut allergy. Stick to your guns and know we will all be standing right behind you :)

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Worry about school issues when it becomes a problem. A five year old will be able to communicate with you better on how he is feeling!

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    • So I've been glutened....
      Hi JMG, Since it's easy, and always fun, I'd blame your sister. That's what I do.  But seriously, if it's an ongoing problem, rather than an isolated incident stick with your first guess.  Then test it.   So get rid of the oat bread or the sister (her food) or anything that is a consistent part of your diet and you suspect could be the problem.  Of course processed foods are the most likely issue always. It's easy enough to drop back to a very few foods for a few days and see if things improve.  Eating with celiac isn't about having the most exciting diet, it's about eating a medically safe diet.  So it can be boring sometimes.  That's ok, being in pain is exciting but not so fun.   Boring is fine. You might ask your sister what brands of flour she used, and other ingredients.  Then check on those products for possible gluten issues.  If they turn out to be possible problems, make a note of it so you can avoid them in the future. My own sister has been gluten-free for years but she has made me sick several times with her "creations".  It really is best to trust your own cooking and nobody else's for at least 6 months as you are getting used to the diet and healing.  Then slowly branch out and add things in maybe 1 new item in a week.  Slow and controlled diet changes are the way to go.  Boring but safe.  Happy but slow.    
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    • So I've been glutened....
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