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Found Out I Now Have Lupus With Connective Tissue Disease


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#1 txplowgirl

 
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Posted 10 December 2012 - 12:48 AM

My Neuro diagnosed me after she checked to make sure I don't have Epilepsy and MS. She checked me for almost everything else.But it is Lupus for sure. But she said something that i'm confused about. She said I had a low positive ANA.

I'm going tomorrow to get my paperwork. I am so Chronically anemic I need a transfusion. I cant get the transfusion until I have an Ablation procedure because I have been doing some heavy bleeding. I have endometriosis.
Anyway in the next couple of weeks it's gonna be busy and tiring.


These are the results I have so far. Anybody have any info about these?


Test level Normal Level

Hemocrit, Blood 26.8 35-60
Hemoglobin 8.2 11-18
Ethrocytes 3.90 4.00-6.00
Mean Corpuscular Volume 68.8 80-99.9
Mean Corpuscular Hemoglobin, RBC 21.1 27-31
Protien, Total Serum 6.3 6.4-8.9
Albumin, Serum 3.9 3.5-5.7
Alanine AminoTransferase Serum 9 U/L 7-52



Edited by txplowgirl, 10 December 2012 - 07:19 PM.

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Lupus, Connective Tissue Disease with Fibro type symptoms, Anemia, Anxiety, Depression, RA, Rynauds Syndrome, Chronic Fatigue Syndrome, Erosive Gastritis, Osteoporosis, Degenerative Disc Disease, Scoliosis, Bulging discs in lower back and neck, Pinched Nerves.

 

Soy free, MSG free, mostly Dairy free. Endoscopy shows blunted Villi which dr states as gluten sensitivity, so goin back to being gluten free


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#2 nvsmom

 
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Posted 11 December 2012 - 08:17 PM

Sorry to hear of your diagnosis. :(

ANA levels don't always indicate how active the rheumatic disease is, but it often does. A low positive ANA is probably a 1:80 or 1:160 titre.

Have your platelet levels been checked recently? I ask because thrombocytopenia (platelets are attacked so you can't clot) can be a symptom of lupus. I had a severe form of it 20 years ago and I had heavy bleeding to the point of needing a blood transfusion too. I have heard (could be way off on this) that the medical community tends to avoid transfusions with lupus patients because it can encourage more autoimmune attacks... if the endometriosis is not the cause of the bleeding, but rather thrombocytopenia, a transfusion may not help as much as it could.

Best wishes to you. I hope you feel better soon.
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#3 CaliSparrow

 
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Posted 16 January 2013 - 02:50 PM

I hope you're hanging in there TxPlowGirl. Hugs.
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Last glutening: 12/28/13 (long time FOR ME!)
April 2014: no more reintroducing foods, not rocking the boat, no studying (except during insomnia)
March 2014: Reintroducing intolerant foods. Yolks & banana are a "no". Dairy NO
Year 2: Mental clarity improving. Hello to normalcy.
October 2013: Functional Medicine doc ref to cardiologist for possible sick sinus syndrome (deadline May)
September 2013: 55+ food intolerances, mercury poisoning, sIgA 50, leaky gut, adrenal fatigue, hormone disruption, ferritin 7, low Vit D, low Vit B6
January2013: Dairy-Free, Soy-free
November 2012: Gluten-Free
Year 1: Migraines resolved, OCD diminished, Change in skin texture, EyeBrows lifting & eyes bigger, Better memory, Better cognitive function, Better problem-solving capabilities, Lower anxiety level, Better outlook, Arrhythmia reduced, hope




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