Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

Different Levels Of Celiac?


  • Please log in to reply

8 replies to this topic

#1 designerstubble

 
designerstubble

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 308 posts
 

Posted 10 December 2012 - 02:26 AM

Hello all
Just been wondering, it seems (having been on this forum for a bit reading stories) that there are different 'levels' of celiac. But how can this be, surely you are celiac or you are not? Is this just down to sensitivity? (ie like with an allergy response)
I have been worried about handling bread etc whilst making my little boys sandwiches but I haven't reacted at all? There are crumbs all over the place, no matter how hard i try to keep things clean. Some people say they can't touch anything with gluten, I thought it had to be ingested???
Any thoughts welcome
  • 0

Diagnosed Celiac Oct 2012 (Blood and Biopsy)
Gluten free / Dairy free / Caffeine / Almost sugar free / Tobacco free 2012. Corn free 2013
Vegetarian since 1986 / Asthmatic since 1990 / Migraines since 1998

 

Symptoms: Classical GI symptoms. Fibromyalgia. Odd pains. Bone aches. Severe headaches. Severe depression. Anxiety. Diagnosed with severe anaemia. Severe Vit D deficiency. Boderline Folate & B12 Defiency.

 

Since being gluten free... initially felt better for a month, still suffer with loose bowels, am currently struggling with many more allergies and intolerances to foods, such as dairy, egg, celery, oranges, tomatoes, quinoa, seeds,... Pressure hives (from Feb 2013) / Having bad leg aches during periods (June 2013)

(Marked in bold, these problems have been resolved)


Celiac.com Sponsor:

#2 Em314

 
Em314

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 112 posts
 

Posted 10 December 2012 - 04:46 AM

The way my GI specialist put it, you can't be "a little bit celiac" the same way you can't be "a little bit pregnant."

AFAIK, people can have different degrees of response from one another- and individuals can have different degrees of response over time, as well. She also said obvious symptoms of gluten reaction may appear "for the first time" (or get more aggressive, I'm guessing) despite having had celiac already when your immune system is otherwise compromised. In my case, in retrospect, I had some symptoms even when I was young, but it got a lot worse for me within the last several years.
  • 0
Diagnosed celiac December 2012 (bloodwork + endoscopy). Gluten-free since.

#3 srall

 
srall

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 528 posts
 

Posted 10 December 2012 - 09:26 AM

I know what you're asking...I always just thought it depended on how far along the disease had progressed. I know some people respond to the diet immediately and some take years. So I assume it's how weak your body has gotten before you were diagnosed. Age might make a difference too. My daughter seemed to get better after only a month. (was age 7)

I believe my reactions are getting worse (and I'm getting more sensitive) the longer I'm gluten free.
  • 0

#4 nvsmom

 
nvsmom

    Moderator

  • Moderators
  • PipPipPipPipPipPip
  • 3,598 posts
 

Posted 10 December 2012 - 10:38 AM

I agree with the others, it's more about how you react to the gluten and what symptoms you show... With your pregnancy analogy, you could compare how some people tend to sail through pregnancy and feel great, others have morning sickness, some have other health complications, and yet others tend towards multiple births... there's a lot of room for variation.
  • 0
Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

CANADIAN

Celiac.com - Celiac Disease Board Moderator

#5 dilettantesteph

 
dilettantesteph

    Advanced Community Member

  • Banned
  • PipPipPipPipPipPip
  • 3,035 posts
 

Posted 11 December 2012 - 05:41 AM

This paper discusses it. It seems that there are different levels of celiac. http://www.ncbi.nlm....les/PMC2944025/
  • 0

#6 myquest7846

 
myquest7846

    New Community Member

  • Advanced Members
  • Pip
  • 20 posts
 

Posted 11 December 2012 - 06:13 AM

This paper discusses it. It seems that there are different levels of celiac. http://www.ncbi.nlm....les/PMC2944025/

I'm trying hard not to just read the bad stuff in this paper, but I'm a little alarmed. This paper as a layman is trying to read it says that the different cells involved can mutate to become lymphoma cells? I am someone who is not responding to a gluten free diet. I have only been 1 year into it, but last endoscopy shows a worsening of the villi, and although I have been eating gluten for 57 years I have never shown any gastric distress but have been diagnosed with anemia, migraines and osteoporosis and until an unrelated endoscopy just found out I have celiac disease. So am I in the group where I should be looking out for lymphoma ?
  • 0

#7 KMMO320

 
KMMO320

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 159 posts
 

Posted 11 December 2012 - 07:04 AM

I know what you're asking...I always just thought it depended on how far along the disease had progressed. I know some people respond to the diet immediately and some take years. So I assume it's how weak your body has gotten before you were diagnosed. Age might make a difference too. My daughter seemed to get better after only a month. (was age 7)

I believe my reactions are getting worse (and I'm getting more sensitive) the longer I'm gluten free.


I am the same way. ALl the years prior to being gluten-free, I always had what I know now were symptoms, but I just lived with them every day without realizing why it was happening. When I was finally diagnosed, my Dr said I had very little damage done but she believed I was in the early stages of noticeable damage and had I waited a few more years, it would be worse. I went gluten-free and within 2 weeks, I felt better and still feel better, aside from a couple of setbacks I had. In the beginning of being gluten-free, I could eat gluten and not get sick right away, but now it has been almost 4 months and I feel reactions almost immediately. My stomach bloats, I get nauseous, and my head starts to throb.
  • 0

#8 dilettantesteph

 
dilettantesteph

    Advanced Community Member

  • Banned
  • PipPipPipPipPipPip
  • 3,035 posts
 

Posted 12 December 2012 - 04:23 AM

I'm trying hard not to just read the bad stuff in this paper, but I'm a little alarmed. This paper as a layman is trying to read it says that the different cells involved can mutate to become lymphoma cells? I am someone who is not responding to a gluten free diet. I have only been 1 year into it, but last endoscopy shows a worsening of the villi, and although I have been eating gluten for 57 years I have never shown any gastric distress but have been diagnosed with anemia, migraines and osteoporosis and until an unrelated endoscopy just found out I have celiac disease. So am I in the group where I should be looking out for lymphoma ?

I don't know. I hope not. Have you tried a diet of produce and unprocessed meat? That is helped me a lot.
  • 0

#9 designerstubble

 
designerstubble

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 308 posts
 

Posted 12 December 2012 - 04:38 AM

So it seems that the longer we are gluten-free the worse a glutening attack could be?? At least so seems the general consensus? I'm now seriously wondering whether there is something that I haven't eliminated in my diet that is causing my ongoing 'loose bowel' problem. It's the only thing still bothering me. (dietician says I'm high on fibre) but maybe I'm still consuming gluten? But where? Ugh, the is so frustrating.
@myquest... What has your doctor advised? Have they actually told you that you are refractory? It's so worrying, I understand your concern. Is there no way you could have been ingesting gluten? All the best
  • 0

Diagnosed Celiac Oct 2012 (Blood and Biopsy)
Gluten free / Dairy free / Caffeine / Almost sugar free / Tobacco free 2012. Corn free 2013
Vegetarian since 1986 / Asthmatic since 1990 / Migraines since 1998

 

Symptoms: Classical GI symptoms. Fibromyalgia. Odd pains. Bone aches. Severe headaches. Severe depression. Anxiety. Diagnosed with severe anaemia. Severe Vit D deficiency. Boderline Folate & B12 Defiency.

 

Since being gluten free... initially felt better for a month, still suffer with loose bowels, am currently struggling with many more allergies and intolerances to foods, such as dairy, egg, celery, oranges, tomatoes, quinoa, seeds,... Pressure hives (from Feb 2013) / Having bad leg aches during periods (June 2013)

(Marked in bold, these problems have been resolved)





0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: