Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gluttened... What Does It Feel Like?
0

12 posts in this topic

I'm a sort of newbie, getting to grips with stuff. Loving the forum (thank mother earth for this forum!).

I've been gluten-free for 10-11 weeks, had various odd symptoms and strange body things not to mention the mention hairloss.

But. I keep reading about being gluttened... What are the symptoms? I've just posted a topic on the different levels of celiac as I'm wondering would I know if I'd been gluttened? Is it possible I'd show few/no symptoms?

Is it possible I've escaped being gluttened in 3months of being gluten free? My kitchen still contains many gluten products (as my son and husband still eat the usual bread, cereals etc) and there are often crumbs on thr floor/table as much as I do try to clear up ALL the time, it's inevitable with a 5 year old.

Could I just be 'less' sensitive? Or have I just been lucky?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yes, I'm thinking maybe the nightsweats I've experienced twice could've been a glutening... It's so frustrating this celiac?!

0

Share this post


Link to post
Share on other sites

Frustrating? Yes for sure :)

It might be worth writing symptoms down. Great if you can do it alongside a food diary, but also useful on its own.

3 months in I am starting to recognize my glutening symptoms.

My worst one I swelled up like I was 7 months pregnant and had raging gut pain.

Most since then are more subtle. So first I am dog tired, like flu, then mild D, then anxiety and depression kick in.

I think it is like a mini version of how I used to be most of the time before improvements on the gluten-free diet.

Some people are way worse, some dont even know. You gotta love it :)

0

Share this post


Link to post
Share on other sites

for me, I get dizzy and nauseous. that's how I felt coming in to my gluten free life, and that's how I felt when I glutened myself. hope you keep feeling good!

0

Share this post


Link to post
Share on other sites




Frustrating? Yes for sure :)

It might be worth writing symptoms down. Great if you can do it alongside a food diary, but also useful on its own.

3 months in I am starting to recognize my glutening symptoms.

My worst one I swelled up like I was 7 months pregnant and had raging gut pain.

Most since then are more subtle. So first I am dog tired, like flu, then mild D, then anxiety and depression kick in.

I think it is like a mini version of how I used to be most of the time before improvements on the gluten-free diet.

Some people are way worse, some dont even know. You gotta love it :)

This is exactly how I feel when glutened.... I also get like a racing heart, palpatations with the anxiety.

It really is different with everyone though, the idea of writing everything down along with a food diary is ideal. Especially at the beginning :)

Cory

0

Share this post


Link to post
Share on other sites

I start to feel sick, then I get awful stomach cramps (generally at night) and insomnia. I don't normally sleep at all on the night of a glutening. By the next morning I'll have a sore, bloated, 'dodgy-feeling' stomach and either 'C' or 'D' and transient nausea. I'll also be really lethargic, irritable and depressed and will have a killer headache.Basically, I should be avoided for the next few days at all costs, haha!

0

Share this post


Link to post
Share on other sites

I agree everyone has different symptoms. Also, I have learned that I have specific reactions to different foods. In the past I have blamed all my stomach issues on gluten, when I now know they are really a reaction to dairy. (My daughter though still has clear stomach issues if glutened)

My first sign of getting glutened is that I go outside my head...like I'm very very buzzed or drunk. If it's a bad glutening (and there have only been 2 of these in 2 years) I will have pain that is like fibromyalgia mostly in my upper body. This has lasted two to three weeks. I feel depressed and exhausted. My joints hurt and I know that nothing will get done for a few days at least. It really took me until the second glutening to come to terms with the fact that I have an AI disease and I am going to lose days to it despite doing the best I can to avoid gluten. So, on the days I feel good I try and get as caught up as possible, so when the down days come I can just do what absolutely has to get done.

I think after awhile you'll start to recognize the symptoms. My advice is to be careful. I cannot stress this enough.

0

Share this post


Link to post
Share on other sites

I'm a sort of newbie, getting to grips with stuff. Loving the forum (thank mother earth for this forum!).

I've been gluten-free for 10-11 weeks, had various odd symptoms and strange body things not to mention the mention hairloss.

But. I keep reading about being gluttened... What are the symptoms? I've just posted a topic on the different levels of celiac as I'm wondering would I know if I'd been gluttened? Is it possible I'd show few/no symptoms?

Is it possible I've escaped being gluttened in 3months of being gluten free? My kitchen still contains many gluten products (as my son and husband still eat the usual bread, cereals etc) and there are often crumbs on thr floor/table as much as I do try to clear up ALL the time, it's inevitable with a 5 year old.

Could I just be 'less' sensitive? Or have I just been lucky?

I read both your posts - and Identify with you a lot! I am just over 3 months gluten free - and am totally unaware if I have ever been glutened. I never had classic symptoms before diagnosis - and feel that I have been careful. But it's hard to believe - as a newbie - that I haven't made any mistakes over the past several months. I put a post out a while ago - also asking if there are different degrees of sensitivity - I was wondering if for one person it takes a speck of gluten to get a reaction , while for others it may take much more. I will have follow up blood tests and endoscopy in February - I am anxious to see if there is improvement. To me - that will be the only indication that I have actually been gluten free.

0

Share this post


Link to post
Share on other sites

I'm a sort of newbie, getting to grips with stuff. Loving the forum (thank mother earth for this forum!).

I've been gluten-free for 10-11 weeks, had various odd symptoms and strange body things not to mention the mention hairloss.

But. I keep reading about being gluttened... What are the symptoms? I've just posted a topic on the different levels of celiac as I'm wondering would I know if I'd been gluttened? Is it possible I'd show few/no symptoms?

Is it possible I've escaped being gluttened in 3months of being gluten free? My kitchen still contains many gluten products (as my son and husband still eat the usual bread, cereals etc) and there are often crumbs on thr floor/table as much as I do try to clear up ALL the time, it's inevitable with a 5 year old.

Could I just be 'less' sensitive? Or have I just been lucky?

I am still new to it too. 4 months in and feeling much better. I have been glutened, always my own fault. My blood tests and endoscopy show negative, but my dr still believes I have celiac disease based on how I feel when I don't eat vs. eat gluten. When I don't eat it, I feel great. I feel awake, is how I describe it. I can think straight and my head is clear and I dont feel so tired and run down.

When I eat it, even a bite, I get a headache within 20 mins and my stomach bloats, I feel sick to my stomach. and I get a light dizzy/woozy feeling. Sometimes it only lasts a few hours, some times I wake up the next day feeling like I am hung over. One time, I was cutting a piece of cake for a customer at work (I waitress) and just out of reaction, I licked my finger..which is bad at work anyway but it was just instinct. I washed my hands and thought, omg, what did I just do? Then I thought..no no, I will be fine, a lick of crumbs wont hurt me! Wrong. I wasn't deathly ill, but ill enough to make me uncomfortable.

Fortunately for me, at this point, where I was diagnosed early before I had a lot of damage, I do not get really, really ill. All of my symptoms were manageable, I could still carry on about my day well enough, I was just always very very uncomfortable. When I eat gluten, my brain gets real foggy and I start to stutter and slur, as if drunk. My husband can tell immediately when I have eaten something I shouldn't by the way that I talk. I have ALWAYS had a slight stuttering problem since I was a kid, and once I went gluten-free...it went away, unless I eat it.

My heart goes out to those who were not diagnosed for years and years and have so much damage that they have been severely ill :( For those people, I think accidental glutening is much worse. BUT, I do find that the longer I am gluten-free, the stronger my reactions get when I do eat it.

0

Share this post


Link to post
Share on other sites

Oh I'm glad I'm not the only one! It's strange, I also think that I must have slipped up in these last weeks... I'm sure I'll find out sometime! The only thing I have not been able to resolve is my D. It hasnt gone away. At all. It's actually more of a loose bowel, there's no increase in frequency. I saw a dietician yesterday who said it could be because I am eating too much fibre. She said to have a 2/3 slices of gluten-free bread everyday to see if it helps. I have done that today for breakfast. My stomach however is just not agreeing with it, it hasn't been this noisy and disagreeable since before diagnoses :( I have been on a very clean diet really, I wonder if my body just doesn't want this processed junk? Any ideas on how to get balance out the high fibre...? Aaaaagh! Help!

0

Share this post


Link to post
Share on other sites

When I am not doing well, because even on a completely gluten free diet there are times when I'm just not feeling great, I will get myself to a paleo or perfect health diet (which allows rice and potatoes). I do organic, whole foods and only feed myself. This is how I feel absolutely the best. I personally cannot handle gluten free substitutes at all.

And just for more support to drop the gluten free processed: My now 9 year old daughter was still eating sandwiches everyday, because she's a picky eater and I think I was getting lazy about requiring her to eat better. Well Monday and Tuesday I was home with a sick child for the 3rd time in a month and it reminded me of the days before we changed our diet to a gluten/dairy/corn free diet.

Well, we are going to move her off the gluten free bread. It's now banned. She can learn to eat a proper meal. So I'm hoping this takes care of the last of her problems. I just really really don't like the gluten free bread (from a health standpoint I mean)

Also, Designer, you may just need more time.

For about 2 to 3 months it was like my body detoxed. I pooped (loose) about 4 to 5 times a day. Then everything sort of settled down.

So: Whole foods, organic if possible, eat at home what you prepare and lose the processed. Good luck.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,501
  • Topics

  • Posts

    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined