17 replies to this topic

[dilettantesteph]

Whatever a super sensitive's reaction, no matter how severe, I suspect they wouldn't show damaged villi from it.

Refractory celiacs definitely show villi damage while on a gluten free diet. Whether or not that is caused by trace gluten is debatable.

My GI doc thinks that refractory celiacs are super sensitive celiacs.

I get "poop in the pants" uncontrollable diarrhea from what I believe is trace gluten. Fasano used that term in the talk I heard him give, and said that it indicates total villi damage.

[cavernio]

Would poop in the pants then not happen all the time, not just in response to gluten? I mean, if absolutely nothing's getting absorbed...

I really don't know, but if I had to guess, it'd be that refractory celiacs are suffering from something besides/as well as celiac disease.

[ktienken]

So if super sensitives react to even trace amounts of gluten....and there are people who don't have reactions at all....wouldn't that mean that even people who are not super sensitives are damaging their system even eating 10-20 ppm in food? Kinda confused. My husband wanted me to ask this after i read your answers to him.

I think I've read that the less sensitive people will have less damage. If the damage were occurring, then your husband would know because he wouldn't be absorbing all of the nutrients, because the villi would be destroyed. For example, my iron levels were very low. Think that's what you mean....?