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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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6 posts in this topic

Hi, I haven't had a diagnosis of celiac, but have currently been gluten-free for about 5 weeks. I used to get disgusting flatulence very often, but after a week of going gluten-free, it went totally and haven't had it since.. Although the feeling of fullness is always there(bloating), as is the feeling that I never feel hungry, and 'C' is still there but has improved slightly. I have removed all dairy to. I just want to come to the bottom of this problem its been going on for too long now..and don't want this to be pointless trying gluten free. Does this seem like celiac is the cause? When should my other symptoms clear up if it is the cause? Any advice needed PLEASEEE!!!

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It may take months depending on how badly your intestines are damaged. The flatulence definitely sounds like it. My husband's smelled like something rotten. Really bad. After his diagnosis and the diet it went away almost immediately!!! Give it some time. I will say that not all prople with celiac have the same signs and symptoms. There are 30 + s and s that coukd be related to celiac. May I ask... Why not go to dr for official diagnosis?

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Ill stick at it, only time will tell really.. And I had blood tests which were negative, and the doctor thought that if the blood test was negative, I was negative.. I went to a specialist doctor for the symptoms, and he just said I had chronic 'C' and sent me on my way.. So if they're not going to help, ill try help myself. Also my mum has celiac too.

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I would find a different doctor and I would request a full celiac panel and possibly genetic testing. You have the symptoms and the family history. This Is too important not to find out. Do you have to have a referral to see a GI? Because if not I would go straight to one of them.

Blood test can be wrong.... When my son was tested his 'main' test -- the one my dr focuses on the most was only 25.... But when he did his the numbers were very different. He said some dr use different companies and sometimes they don't use the right test and many come back with false negatives and positives. My son's own GI doctor didn't trust the test because my son doesn't 'look' celiac( nice healthily look little to know noticeable symptoms). His risk factor was his dad which is the only reason he was tested in the first place. When he actually got in there to do thd biopsy, he indeed found damage ( according to him .... Three years worth of damage....). Keep going forward if you can.... You deserve that.

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Ahhh I see.. And I've been eating gluten-free for 5 weeks now so it'll make the biopsies unreliable etc as you need to be eating gluten for a while before don't you? I guess I'm just gonna stick to this and see how it goes

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Its just the bloating and irregular bowel movements which is causing me problems:( and lack of appetite!

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    • Newbie: mother to coeliac kids
      Are there any foods, like broth, that don't make your son feel sick?
    • Newbie Mom - How is my son feeling?
      I agree. As an adult its a little easier to withstand the rolling of eyes and exaggerated sighs from people who think you are over reacting and being too fussy.  My youngest has anaphylaxis to fish and seafood and people are incredibly understanding and careful - but it seems celiacs has become a "fad" due to gluten intolerant people removing credibility from true celiacs.  Adults can argue but kids are vulnerable. Socially its really isolating for them.    I totally relate to the waiting on endoscopy. For my very sick 12 year old the 8-9 weeks we waited for sheer hell and I felt I was feeding him rat poison. Now my 17 year old is waiting on his, booked for later this week.  Its a total nightmare waiting knowing you can start the healing if only you could stop feeding them gluten.  But I figure for future reference, having a solid diagnosis via biopsy is important. Good luck to you and your son.
    • Newbie Mom - How is my son feeling?
      Hugs to you and your daughter. My son and I are in the same boat, or at least,  paddling alongside your boat.  At their age being scrupulous about their diet is not only incredibly hard but socially isolating. Adults consider celiac people to be a pain so imagine what their young friends think.  Feeling so unwell and having no energy adds to their distress. And the thing is - I don't think at that age that they really understand that even the slightest bit of gluten will set them back badly.  I know my son is convinced one sweet won't matter. It really really sucks.  
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      No one in my wider family gets it, although my sister is certainly trying to understand. She gets that I will bring all food for my coeliac kids when we come for meals and is okay with that.    For other social events, I will suggest the meal is at my place so I can control the gluten.  But my biggest battle is my children's father (my ex husband) who refuses to get it, and thinks I am being stupid and trying to prevent him seeing V.  I have offered that V can visit but not eat nor stay the night.  Ex does not have the means or the brains to manage gluten free meals.    At this point it looks like I may need to go to court to get an order to prevent V from being forced to go and get glutened. I really really hope to avoid this, but its not looking good. 
    • celiac disease is psychosomatic
      I guess it's the "natural flavoring" which throws me off. It could or could not contain gluten and it's in so many products. I haven't been on a gluten-diet for as long as you...6 years. I may have bee undiagnosed and untreated for more than 25 years since i had signs that went back to chidhood. Yes, I have balance/anxiety/neuro issues. I know anxiety is connected to damage in intestines, but I don't know for sure if celiac causes balance/neuro issues. I was already tested for brain ataxia, but I didn't get too far on that. Well, there wasn't an exact test, but the neurologist noted that I was walking straight or something on those grounds so I must not have it. I know studies have shown Transglutaminase 6 antibodies indicate gluten ataxia, butthat test is not yet available to the public.  
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