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Is This Celiac?!
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6 posts in this topic

Hi, I haven't had a diagnosis of celiac, but have currently been gluten-free for about 5 weeks. I used to get disgusting flatulence very often, but after a week of going gluten-free, it went totally and haven't had it since.. Although the feeling of fullness is always there(bloating), as is the feeling that I never feel hungry, and 'C' is still there but has improved slightly. I have removed all dairy to. I just want to come to the bottom of this problem its been going on for too long now..and don't want this to be pointless trying gluten free. Does this seem like celiac is the cause? When should my other symptoms clear up if it is the cause? Any advice needed PLEASEEE!!!

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It may take months depending on how badly your intestines are damaged. The flatulence definitely sounds like it. My husband's smelled like something rotten. Really bad. After his diagnosis and the diet it went away almost immediately!!! Give it some time. I will say that not all prople with celiac have the same signs and symptoms. There are 30 + s and s that coukd be related to celiac. May I ask... Why not go to dr for official diagnosis?

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Ill stick at it, only time will tell really.. And I had blood tests which were negative, and the doctor thought that if the blood test was negative, I was negative.. I went to a specialist doctor for the symptoms, and he just said I had chronic 'C' and sent me on my way.. So if they're not going to help, ill try help myself. Also my mum has celiac too.

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I would find a different doctor and I would request a full celiac panel and possibly genetic testing. You have the symptoms and the family history. This Is too important not to find out. Do you have to have a referral to see a GI? Because if not I would go straight to one of them.

Blood test can be wrong.... When my son was tested his 'main' test -- the one my dr focuses on the most was only 25.... But when he did his the numbers were very different. He said some dr use different companies and sometimes they don't use the right test and many come back with false negatives and positives. My son's own GI doctor didn't trust the test because my son doesn't 'look' celiac( nice healthily look little to know noticeable symptoms). His risk factor was his dad which is the only reason he was tested in the first place. When he actually got in there to do thd biopsy, he indeed found damage ( according to him .... Three years worth of damage....). Keep going forward if you can.... You deserve that.

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Ahhh I see.. And I've been eating gluten-free for 5 weeks now so it'll make the biopsies unreliable etc as you need to be eating gluten for a while before don't you? I guess I'm just gonna stick to this and see how it goes

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Its just the bloating and irregular bowel movements which is causing me problems:( and lack of appetite!

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    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
    • What a gross title–it bothers me and I wrote it! It wasn't my idea originally. The research paper the data came from was entitled, "Experimental hookworm infection and gluten microchallenge promote tolerance in celiac disease" published recently in the Journal of Allergy and Clinical Immunology. View the full article
    • katesyl.........this is an older topic so the OP most likely won't answer.  I can, however, offer a piece of advice for you. Just going gluten free will probably not drive your inflammation markers down into normal.  It does depend on how high they were to begin with but with all autoimmune diseases, there will be inflammation going on forever.  Get used to wonky blood work because most of us will have that issue. I have 4 autoimmune diseases in total and, although I have driven certain inflammatory markers way down, my recent sed rate number was elevated.  The normal is supposed to be 30 and under in a woman my age but mine is 50.  With 4 AI diseases, I doubt it will ever be normal and I don't let it bother me. I am not willing to take major meds at all and use more natural anti-inflammatory supplements.  You can do whatever you feel comfortable with in regards to treatment but don't expect normal numbers with Celiac Disease. Inflammation will improve but normal?  Most people never get there completely.
    • My daughter's PCP did not go against anything, she offered to do the biopsy - I was the one opposed to it. My DD, who was 10 at the time had just spent 3 weeks in the hospital, very sick with a ruptured appendix, then had 2 surgeries a few months after. I didn't see the need to put her through anything else with her numbers so high and all the classic symptoms. Apparently, in some other countries, if your numbers are all high, they forego biopsy. Anyway, I was really asking about myself and whether I should push for add'l testing. I am still new this this and trying to get up-to-date and wasn't sure if my PCP should conduct other blood tests before I go completely gluten-free. I have been somewhat gluten-free, but not entirely. I have no problem going gluten-free, but want to make sure that I am doing it for the right reasons. I wasn't sure if the Gliadin Abs IgA was sufficient to point to Celiac and possibly doing a biopsy for me. Or if additional blood test would make more sense.   Thanks!!
    • I would like to know if you have found out the source of your inflammation yet. I'm gluten free three years but my inflammation test was high.
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