Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Ladies With Celiac Disease
0

17 posts in this topic

Hi all. this is my first post on the forum. well i heard that women are 9x more likely to get dx than men.

Is this true? if yes do we know why? I think it might just be that women are more likely to see a doctor, more likely to have insurance, and to admit certain symptoms, etc. thoughts?

0

Share this post


Link to post
Share on other sites


Ads by Google:

It is worth noting that, in general, women are more likely than men to be diagnosed with ANY autoimmune condition. No one knows why.

0

Share this post


Link to post
Share on other sites

It is worth noting that, in general, women are more likely than men to be diagnosed with ANY autoimmune condition. No one knows why.

yeah i remember reading that somewhere too

0

Share this post


Link to post
Share on other sites

I've heard its because women are more in tune to their body and more willing to go in and find out why.

0

Share this post


Link to post
Share on other sites

My doctor said people who are high-strung are more likely to get diagnosed because of their personality. But I wonder if people with severe GI issues are more likely to be high-strung. I feel out of control when everything I eat makes me sick, so I get anxious...which means anxiety all the time until my diet is resolved. I've noticed women with autoimmune diseases do tend to be high-strung. Could there be a connection there?

0

Share this post


Link to post
Share on other sites




My doctor said people who are high-strung are more likely to get diagnosed because of their personality. But I wonder if people with severe GI issues are more likely to be high-strung. I feel out of control when everything I eat makes me sick, so I get anxious...which means anxiety all the time until my diet is resolved. I've noticed women with autoimmune diseases do tend to be high-strung. Could there be a connection there?

That makes sense. when you are stressed your body releases cortisol, which disrupts your immune system. Which may be the reason celiac disease presents itself after a period of stress or illness. I myself still get panic attacks even after being gluten free a long time :\

0

Share this post


Link to post
Share on other sites

There is debate whether or not the diseases are more prominent in women or the fact that most men will ignore minor/medium symptoms. Since most autoimmune diseases cause very minimal symptoms until they progress in severity it is common for people just to think of a minor symptom as part of their life. It is also important to remember that autoimmune disease won't always progress to severe stages, take a look at the Chicago celiac center:

"Only 3% of people with the disease are diagnosed" -http://www.cureceliacdisease.org/medical-professionals/guide/diagnosis'>http://www.cureceliacdisease.org/medical-professionals/guide/diagnosis

"The number of Americans with celiac disease would fill 936 cruise ships. Passengers on 908 of the ships won’t know they have it." - http://www.cureceliacdisease.org/

I highly doubt that of these 97 percent undiagnosed celiac's they are all just ignoring severe symptoms and suggestive blood tests (I.e- anaemia) - The disease can very well have little affect on some people and show low positive results, sometimes these low positives will go to full blown positive and sometimes it wont. Autoimmune diseases in general are a guessing game with few providing a slam dunk diagnosis. Some people will go and live a completely normal and long life with a low stage autoimmune disease that never progresses.

I would be willing to bet that around 60 percent of the general population would have at least one slightly elevated antibody test if you ran the entire disease panels on them (I have had 15 different A.I antibodies tested and there are still more). Do these tests really mean anything at the current time? Sometimes they do, sometimes they don't.

0

Share this post


Link to post
Share on other sites

I saw a few reports on TV that said women would be more prone to the autoimmune diseases than men because our immune systems are slightly different. We have to be able to shut off the immune response to a parasitic invader living inside us for 9 months. I affectionately call mine M & J. :). I don't have time to google that, but maybe you could find something along those lines as an explanation. Female hormones may be a factor, too. I don't think there is a real answer.

I have also heard that women are more likely to talk to each other, on forums, and with a doctor about health issues than men. I think women may go to doctors more regularly as they tend to see an OB/gyn every year or two.

0

Share this post


Link to post
Share on other sites

There is debate whether or not the diseases are more prominent in women or the fact that most men will ignore minor/medium symptoms. Since most autoimmune diseases cause very minimal symptoms until they progress in severity it is common for people just to think of a minor symptom as part of their life. It is also important to remember that autoimmune disease won't always progress to severe stages, take a look at the Chicago celiac center:

"Only 3% of people with the disease are diagnosed" -http://www.cureceliacdisease.org/medical-professionals/guide/diagnosis

"The number of Americans with celiac disease would fill 936 cruise ships. Passengers on 908 of the ships won’t know they have it." - http://www.cureceliacdisease.org/

I highly doubt that of these 97 percent undiagnosed celiac's they are all just ignoring severe symptoms and suggestive blood tests (I.e- anaemia) - The disease can very well have little affect on some people and show low positive results, sometimes these low positives will go to full blown positive and sometimes it wont. Autoimmune diseases in general are a guessing game with few providing a slam dunk diagnosis. Some people will go and live a completely normal and long life with a low stage autoimmune disease that never progresses.

I would be willing to bet that around 60 percent of the general population would have at least one slightly elevated antibody test if you ran the entire disease panels on them (I have had 15 different A.I antibodies tested and there are still more). Do these tests really mean anything at the current time? Sometimes they do, sometimes they don't.

So basically a lot of men will ignore the problem, GI problems or whatever it is, for as long as possible? Yeah I know people who would rather die than have to eat healthy/different food than they are used to!

0

Share this post


Link to post
Share on other sites

LOL I'm "manly" and ignore the symptoms until a while after I should have gone to the hospital. LOL I ignored celiac for 30+ years.

I don't think acquiring an AI disease has to do with being highstrung. I've been called laid back to a fault so I know it's not the case for me, although I wouldn't doubt that a stressed person would end up with more symptoms.

I've read that they are looking into the link between the differences in our sex hormones. For some women, AI disease symptoms lessen after menopause because we have less hormones.

0

Share this post


Link to post
Share on other sites

I think it really has to do with the individual, not their sex. I am pretty laid back, always end up at the doc's after later than I should have been there (almost manly there :D but had to diagnose hubs' DH - which made a believer out of him when he looked it up)

I would agreen with Karen that my immune system appears to be different, and perhaps??? one which the TNF inhibitors were designed for - crossed fingers smiley --).

But I do think, in general, women are more likely to avail themselves of medical treatment, or force the men in their lives into it, than men. I don't know if it comes from the mothering instinct (I have no children) or a general awareness of the body or interest in its functions, but speaking for myself only, I want to know what's going on, gosh darnit !!! I hate that fuzzy IBS zone :ph34r:

0

Share this post


Link to post
Share on other sites

So basically a lot of men will ignore the problem, GI problems or whatever it is, for as long as possible? Yeah I know people who would rather die than have to eat healthy/different food than they are used to!

Well, I am a male. Since I have been going through a possible diagnosis I have talked to several friends about it and the surprising consensus among my male friends is that they all have pains that come and go and they just ignore, a few of them even have daily pains. I might be diagnosed although I have no symptoms of celiac, my way of thinking is treat it before it becomes symptomatic and problematic, my male friends all say the same thing "I would keep eating gluten until I was horribly sick and couldn't". My female friends are much more supportive of treating it before it becomes a problem. Once again you can't just simply group it as men do this and women do that but I do feel that men are more likely to ignore pains.

0

Share this post


Link to post
Share on other sites

I saw a few reports on TV that said women would be more prone to the autoimmune diseases than men because our immune systems are slightly different. We have to be able to shut off the immune response to a parasitic invader living inside us for 9 months. I affectionately call mine M & J. :). I don't have time to google that, but maybe you could find something along those lines as an explanation. Female hormones may be a factor, too. I don't think there is a real answer.

I have also heard that women are more likely to talk to each other, on forums, and with a doctor about health issues than men. I think women may go to doctors more regularly as they tend to see an OB/gyn every year or two.

This is very close to what I was about to respond - thanks for typing it out for me K!

0

Share this post


Link to post
Share on other sites

This is very close to what I was about to respond - thanks for typing it out for me K!

This is very close to what I was about to respond - thanks for typing it out for me K!

My poor tired fingers! Glad I could help.

0

Share this post


Link to post
Share on other sites

but I do feel that men are more likely to ignore pains.

I believe women are more likely to ignore all minor pain and are more likely to realize and ADMIT something is not quite right in the bathroom.

0

Share this post


Link to post
Share on other sites

LOL I'm "manly" and ignore the symptoms until a while after I should have gone to the hospital. LOL I ignored celiac for 30+ years.

I don't think acquiring an AI disease has to do with being highstrung. I've been called laid back to a fault so I know it's not the case for me, although I wouldn't doubt that a stressed person would end up with more symptoms.

I've read that they are looking into the link between the differences in our sex hormones. For some women, AI disease symptoms lessen after menopause because we have less hormones.

I used to ignore my symptoms when I was in middle school/high school (I'm in college now)

0

Share this post


Link to post
Share on other sites

Well, I am a male. Since I have been going through a possible diagnosis I have talked to several friends about it and the surprising consensus among my male friends is that they all have pains that come and go and they just ignore, a few of them even have daily pains. I might be diagnosed although I have no symptoms of celiac, my way of thinking is treat it before it becomes symptomatic and problematic, my male friends all say the same thing "I would keep eating gluten until I was horribly sick and couldn't". My female friends are much more supportive of treating it before it becomes a problem. Once again you can't just simply group it as men do this and women do that but I do feel that men are more likely to ignore pains.

A possible dx of gluten sensitivity you mean? Yea I have had people (mostly guys) tell me, "Well if I was you I would still eat whatever I wanted LOL"

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,678
    • Total Posts
      921,703
  • Topics

  • Posts

    • At the moment it's microwave rice packets as it needs to be something easy for lunch at work. What do you choose for breakfast? At the moment I have gluten-free porridge oats with fruits but also seeing oats are a bit of a gamble in the early days. Trying to figure out how long a reaction takes to show up i.e. if I feel ropey later in the day is it really lunch as I'm blaming at present or actually is it something from the morning or even night before? The food is the toughest bit for me right now; wasn't that great with it before so will need plenty ideas from you good people... seems I'm in the right place though   
    • I know what you're going through - it's that grieving process and it's tough.  I was diagnosed in 2013, and aside from an occasional pity party, I don't look back. I have my restaurants where I feel safe, I have the food I know I can eat, and I get on with my life.  I'm lucky that I live in a big city with lots of options, but you can make this work, and you will feel better and once you do, you'll stop grieving.  The people on this site helped enormously. It is tough in the beginning to know if you've been 'glutened' vs. just going through withdrawal.  For that reason alone, it's best to avoid restaurants for a little while and be careful at home - just to be sure what's happening.  Eventually you'll be able to get back to your version of 'normal'.  Oh, I also have hypothyroid/hashimoto's.  No big deal, I take synthroid. Quinoa, eggs, nuts and beans for protein.  You don't have to go crazy on the cooking.  Just eat a lot of whole foods.  There are a lot of complicated recipes out there, but now may not be the time.  Rice noodles in veggie bouillon - easy and cheap.  gluten-free pasta with olive oil, parmesan and garlic - easy.  I eat a lot of rice and have never had a problem - you're not getting it out of one of those bulk bins, are you?  That could be contaminated.  Go with packaged.  Do you have access to the Macro Vegetarian brand of prepared rice dishes (in the refrigerated section).  They have several that are gluten free, they're delicious heated and with a little gluten-free soy sauce.  They're my go to on days I don't want to cook. Good luck!  
    • I also think that the HPV/Gardasil vaccine triggered something in my body. I had some Celiac symptoms many years before this vaccine but I felt ok. I was physically very active. However, after I received the third dose as well, I began having more problems including a more persistant pain, overall body weakness, lack of concentration, hair loss, etc.
    • OK so been to the doctor, they've sped up my referral and I should get the appointment booking form in the post shortly. They've said stay off the gluten until I have a date for the appointment then in the weeks leading up to it go back on - thoughts? Did my bit of sport last night which was a great relief to be free of any illness-related thoughts for an hour or two; didn't think I'd have the energy at the start but soon got going and was OK so that's a plus I seem to be getting some strange symptoms at the moment that have only happened since trying to remove gluten, do these sound familiar to anyone? dry forehead, just starting to go red \ itchy in places. Treating with E45-type cream tender scalp and sides of head, almost like a pulling feeling and a bit sensitive to touch. Scared this one matches the symptoms of GCA, a particularly nasty autoimmune disease that can lead to blindness 
      Edit: having said that just found this thread and funny enough did wash my hair this morning...
      http://www.celiac.com/gluten-free/topic/50920-sores-on-scalp/ one eye watering and associated fuzzy vision at times, trying to reassure myself it isn't blurred vision due to the point above sometimes bit of a lump in throat sensation, seems to come and go Been reading that some people can't handle rice - I was OK with it whilst eating gluten but have been having it for lunch each day and seem to get worse around 4-5pm so could that be a culprit? How long after coming off gluten would I be able to say I'm at a baseline to know if feeling ill is down to "glutening" vs. blaming it on the body adjusting to the change in (lack of) gluten in food?
    • First of all, welcome to the forum! it's good to have you here. Secondly, I can really relate to the fatigue portion.  it really hadn't affected me until everything hit the ceiling medically for me.  I was constantly tired all the time, and waking feeling rested in the morning. Prone to depression and anxiety, definitely.  It drove me nuts for those first few weeks.  That's when I decided to try going off the gluten to see what happened.  I still dealt with the depression, anxiety at crazy levels, and inability to focus/concentrate, but it had gotten progressively better.  The anxiety got so bad I would have panic attacks in public areas which only ramped up the anxiety because people saw what was happening.  I would encourage you and your doctor to do a full Celiac panel before you decide to try the gluten free diet.  I had my blood work done after I was off gluten for about two months or so.  Thankfully, my levels were still high to register at least a gluten sensitivity.  Since going off gluten for almost a year now, things have started to finally appear "normal".  Whatever normal means for me now.  As I am healing from the 30 years of glutenizing, I combined both natural methods with the medical methods.  If you are interested in the different avenues of natural methods, I would be willing to share with you.  I will be praying for you as you go through this journey. Let me assure you, you are not alone in this journey.  Depending on family dynamics, they can be a great source of support.  This forum is also a great place to bounce thoughts or concerns off of.  Good luck.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,675
    • Most Online
      3,093

    Newest Member
    JVerg11
    Joined