Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Ladies With Celiac Disease
0

17 posts in this topic

Hi all. this is my first post on the forum. well i heard that women are 9x more likely to get dx than men.

Is this true? if yes do we know why? I think it might just be that women are more likely to see a doctor, more likely to have insurance, and to admit certain symptoms, etc. thoughts?

0

Share this post


Link to post
Share on other sites


Ads by Google:

It is worth noting that, in general, women are more likely than men to be diagnosed with ANY autoimmune condition. No one knows why.

0

Share this post


Link to post
Share on other sites

It is worth noting that, in general, women are more likely than men to be diagnosed with ANY autoimmune condition. No one knows why.

yeah i remember reading that somewhere too

0

Share this post


Link to post
Share on other sites

I've heard its because women are more in tune to their body and more willing to go in and find out why.

0

Share this post


Link to post
Share on other sites

My doctor said people who are high-strung are more likely to get diagnosed because of their personality. But I wonder if people with severe GI issues are more likely to be high-strung. I feel out of control when everything I eat makes me sick, so I get anxious...which means anxiety all the time until my diet is resolved. I've noticed women with autoimmune diseases do tend to be high-strung. Could there be a connection there?

0

Share this post


Link to post
Share on other sites




My doctor said people who are high-strung are more likely to get diagnosed because of their personality. But I wonder if people with severe GI issues are more likely to be high-strung. I feel out of control when everything I eat makes me sick, so I get anxious...which means anxiety all the time until my diet is resolved. I've noticed women with autoimmune diseases do tend to be high-strung. Could there be a connection there?

That makes sense. when you are stressed your body releases cortisol, which disrupts your immune system. Which may be the reason celiac disease presents itself after a period of stress or illness. I myself still get panic attacks even after being gluten free a long time :\

0

Share this post


Link to post
Share on other sites

There is debate whether or not the diseases are more prominent in women or the fact that most men will ignore minor/medium symptoms. Since most autoimmune diseases cause very minimal symptoms until they progress in severity it is common for people just to think of a minor symptom as part of their life. It is also important to remember that autoimmune disease won't always progress to severe stages, take a look at the Chicago celiac center:

"Only 3% of people with the disease are diagnosed" -http://www.cureceliacdisease.org/medical-professionals/guide/diagnosis'>http://www.cureceliacdisease.org/medical-professionals/guide/diagnosis

"The number of Americans with celiac disease would fill 936 cruise ships. Passengers on 908 of the ships won’t know they have it." - http://www.cureceliacdisease.org/

I highly doubt that of these 97 percent undiagnosed celiac's they are all just ignoring severe symptoms and suggestive blood tests (I.e- anaemia) - The disease can very well have little affect on some people and show low positive results, sometimes these low positives will go to full blown positive and sometimes it wont. Autoimmune diseases in general are a guessing game with few providing a slam dunk diagnosis. Some people will go and live a completely normal and long life with a low stage autoimmune disease that never progresses.

I would be willing to bet that around 60 percent of the general population would have at least one slightly elevated antibody test if you ran the entire disease panels on them (I have had 15 different A.I antibodies tested and there are still more). Do these tests really mean anything at the current time? Sometimes they do, sometimes they don't.

0

Share this post


Link to post
Share on other sites

I saw a few reports on TV that said women would be more prone to the autoimmune diseases than men because our immune systems are slightly different. We have to be able to shut off the immune response to a parasitic invader living inside us for 9 months. I affectionately call mine M & J. :). I don't have time to google that, but maybe you could find something along those lines as an explanation. Female hormones may be a factor, too. I don't think there is a real answer.

I have also heard that women are more likely to talk to each other, on forums, and with a doctor about health issues than men. I think women may go to doctors more regularly as they tend to see an OB/gyn every year or two.

0

Share this post


Link to post
Share on other sites

There is debate whether or not the diseases are more prominent in women or the fact that most men will ignore minor/medium symptoms. Since most autoimmune diseases cause very minimal symptoms until they progress in severity it is common for people just to think of a minor symptom as part of their life. It is also important to remember that autoimmune disease won't always progress to severe stages, take a look at the Chicago celiac center:

"Only 3% of people with the disease are diagnosed" -http://www.cureceliacdisease.org/medical-professionals/guide/diagnosis

"The number of Americans with celiac disease would fill 936 cruise ships. Passengers on 908 of the ships won’t know they have it." - http://www.cureceliacdisease.org/

I highly doubt that of these 97 percent undiagnosed celiac's they are all just ignoring severe symptoms and suggestive blood tests (I.e- anaemia) - The disease can very well have little affect on some people and show low positive results, sometimes these low positives will go to full blown positive and sometimes it wont. Autoimmune diseases in general are a guessing game with few providing a slam dunk diagnosis. Some people will go and live a completely normal and long life with a low stage autoimmune disease that never progresses.

I would be willing to bet that around 60 percent of the general population would have at least one slightly elevated antibody test if you ran the entire disease panels on them (I have had 15 different A.I antibodies tested and there are still more). Do these tests really mean anything at the current time? Sometimes they do, sometimes they don't.

So basically a lot of men will ignore the problem, GI problems or whatever it is, for as long as possible? Yeah I know people who would rather die than have to eat healthy/different food than they are used to!

0

Share this post


Link to post
Share on other sites

LOL I'm "manly" and ignore the symptoms until a while after I should have gone to the hospital. LOL I ignored celiac for 30+ years.

I don't think acquiring an AI disease has to do with being highstrung. I've been called laid back to a fault so I know it's not the case for me, although I wouldn't doubt that a stressed person would end up with more symptoms.

I've read that they are looking into the link between the differences in our sex hormones. For some women, AI disease symptoms lessen after menopause because we have less hormones.

0

Share this post


Link to post
Share on other sites

I think it really has to do with the individual, not their sex. I am pretty laid back, always end up at the doc's after later than I should have been there (almost manly there :D but had to diagnose hubs' DH - which made a believer out of him when he looked it up)

I would agreen with Karen that my immune system appears to be different, and perhaps??? one which the TNF inhibitors were designed for - crossed fingers smiley --).

But I do think, in general, women are more likely to avail themselves of medical treatment, or force the men in their lives into it, than men. I don't know if it comes from the mothering instinct (I have no children) or a general awareness of the body or interest in its functions, but speaking for myself only, I want to know what's going on, gosh darnit !!! I hate that fuzzy IBS zone :ph34r:

0

Share this post


Link to post
Share on other sites

So basically a lot of men will ignore the problem, GI problems or whatever it is, for as long as possible? Yeah I know people who would rather die than have to eat healthy/different food than they are used to!

Well, I am a male. Since I have been going through a possible diagnosis I have talked to several friends about it and the surprising consensus among my male friends is that they all have pains that come and go and they just ignore, a few of them even have daily pains. I might be diagnosed although I have no symptoms of celiac, my way of thinking is treat it before it becomes symptomatic and problematic, my male friends all say the same thing "I would keep eating gluten until I was horribly sick and couldn't". My female friends are much more supportive of treating it before it becomes a problem. Once again you can't just simply group it as men do this and women do that but I do feel that men are more likely to ignore pains.

0

Share this post


Link to post
Share on other sites

I saw a few reports on TV that said women would be more prone to the autoimmune diseases than men because our immune systems are slightly different. We have to be able to shut off the immune response to a parasitic invader living inside us for 9 months. I affectionately call mine M & J. :). I don't have time to google that, but maybe you could find something along those lines as an explanation. Female hormones may be a factor, too. I don't think there is a real answer.

I have also heard that women are more likely to talk to each other, on forums, and with a doctor about health issues than men. I think women may go to doctors more regularly as they tend to see an OB/gyn every year or two.

This is very close to what I was about to respond - thanks for typing it out for me K!

0

Share this post


Link to post
Share on other sites

This is very close to what I was about to respond - thanks for typing it out for me K!

This is very close to what I was about to respond - thanks for typing it out for me K!

My poor tired fingers! Glad I could help.

0

Share this post


Link to post
Share on other sites

but I do feel that men are more likely to ignore pains.

I believe women are more likely to ignore all minor pain and are more likely to realize and ADMIT something is not quite right in the bathroom.

0

Share this post


Link to post
Share on other sites

LOL I'm "manly" and ignore the symptoms until a while after I should have gone to the hospital. LOL I ignored celiac for 30+ years.

I don't think acquiring an AI disease has to do with being highstrung. I've been called laid back to a fault so I know it's not the case for me, although I wouldn't doubt that a stressed person would end up with more symptoms.

I've read that they are looking into the link between the differences in our sex hormones. For some women, AI disease symptoms lessen after menopause because we have less hormones.

I used to ignore my symptoms when I was in middle school/high school (I'm in college now)

0

Share this post


Link to post
Share on other sites

Well, I am a male. Since I have been going through a possible diagnosis I have talked to several friends about it and the surprising consensus among my male friends is that they all have pains that come and go and they just ignore, a few of them even have daily pains. I might be diagnosed although I have no symptoms of celiac, my way of thinking is treat it before it becomes symptomatic and problematic, my male friends all say the same thing "I would keep eating gluten until I was horribly sick and couldn't". My female friends are much more supportive of treating it before it becomes a problem. Once again you can't just simply group it as men do this and women do that but I do feel that men are more likely to ignore pains.

A possible dx of gluten sensitivity you mean? Yea I have had people (mostly guys) tell me, "Well if I was you I would still eat whatever I wanted LOL"

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,337
    • Total Posts
      920,456
  • Topics

  • Posts

    • I had quite a few of the medical problems that you have before I figured out that gluten was the problem. I can’t do basic math or writing when I eat gluten also I get depressed, irritable, low energy, etc. The best route to go is to do an elimination diet and monitor how certain foods affect you. I eliminated MSG (Monosodium Glutamate), Nitrite, and oat based on the reactions that I get once I consume them. You must be disciplined on a gluten free diet, there is not such a thing as –It is just one cookie! If you can manage to go 100% gluten-free for three weeks and you see those problems going away, you will have a good idea if that is the cause of your problems. The blood test I did after being gluten-free for two years came back negative so the doctor just make me feel that I was crazy and making things up. I have a stool test done which came back with elevated igA also a gene test indicating I have two genes that code for gluten sensitivity. My lactose intolerance went away too, eating a lot of cheese now. Rash in arms? gone, Brown spots in teeth? Gone, Intestinal noises? Gone, Lack of bladder control? Gone, Constipation? Gone, and a lot others.   
    • Oh you're most welcome!  Another thing --- no steroids, oral or injected for 2 months prior to a dh biopsy. Lay off any topical steroid creams for 2 weeks prior. Really, stand your ground with them. It would also be great if you can get a friend or family member to go with you in case they take the biopsy from somewhere that you can't see such as the back of your neck. Your friend/family member can watch to make sure they don't take it directly ON a lesion. Do you have a primary care doc? You can also go to that doc & ask for a full celiac panel PLUS an eTG or TG3. 60% of people with dh test negative on the celiac blood panel but maybe you're one of the 40% who will test positive. It's worth a shot.
    • Thank you so much for responding, it's so hard to go on this journey of questions and Drs. I really appreciate the time you took to respond. God bless you 💖
    • Do you have copies of your blood test results? Can you post them? Don't forget to list the reference ranges. Is the TTG the only celiac test they did?  Do you have a copy of your pathology report? Get it if you don't. How many biopsies did they take & from what areas? Were you eating gluten right up until the biopsy?
    • I got them on the back side of my knees too. All the literature points out knees & elbows but doesn't mention the "behind the knee" portion of your leg. I eventually got them ON the knees itself but that was one of the last places to present. I also got them on the inside bend of my arm instead of the elbow and just like the knees, it eventually presented on my elbows. Not to be forgotten; the literature also states it can present anywhere on the body. If you found those links I've posted about how a dh biopsy is done correctly then print them out & take them with you to SHOW them. Any derm should be able to follow the directions or they should turn in their license.  As to them saying herpes, well duhhhhhhhhhhhhhhhhhhhh, dh does have a herpes like presentation. That's why they call it dermatitis herpetiformis! Remember, they work for YOU, not the other way around. Insist. Make sure you're still eating gluten. Let us know how it goes. The best of luck to you!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,398
    • Most Online
      1,763

    Newest Member
    Erinmace
    Joined