Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New To Celiac
0

6 posts in this topic

I was just diagnosed with Celiac today. I have been complaining of joint pain for years and more recently complaining of memory loss, anxiety and poor vision. My doctor requested I get tested for auto-immune diseases every year and this time Celiac came back positive.

This is all completely new to me. I don't think I know a single person with Celiac and not really sure where to start. I have no allergies and I am not picky so I have pretty much no restraints when it comes to putting food in my mouth. LOL! I was told I have "borderline" Celiac. My know-it-all husband thinks that I don't have to go completely gluten-free. Is he right?

I guess, I am looking for help/support because all of my favorites contain gluten! Also, let me say that I have not talked to my doctor yet. My cousin is a medical assistant at the doctors office I go to and I have been bugging her for results because I have been in so much pain lately.

Oh and should I get my 4 year old daughter tested for Celiac? Now that I think about it, she says her belly hurts every now and then after she eats (breakfast mainly).

Thanks!!

1

Share this post


Link to post
Share on other sites


Ads by Google:

I was just diagnosed with Celiac today. I have been complaining of joint pain for years and more recently complaining of memory loss, anxiety and poor vision. My doctor requested I get tested for auto-immune diseases every year and this time Celiac came back positive.

This is all completely new to me. I don't think I know a single person with Celiac and not really sure where to start. I have no allergies and I am not picky so I have pretty much no restraints when it comes to putting food in my mouth. LOL! I was told I have "borderline" Celiac. My know-it-all husband thinks that I don't have to go completely gluten-free. Is he right?

I guess, I am looking for help/support because all of my favorites contain gluten! Also, let me say that I have not talked to my doctor yet. My cousin is a medical assistant at the doctors office I go to and I have been bugging her for results because I have been in so much pain lately.

Oh and should I get my 4 year old daughter tested for Celiac? Now that I think about it, she says her belly hurts every now and then after she eats (breakfast mainly).

Thanks!!

1) your husband is wrong.

2) yes, you should have your daughter tested.

3) If you intend to have a biopsy, don't go gluten free yet.

0

Share this post


Link to post
Share on other sites

Hi Jcossentino, and welcome to the forum!2

You may be surprised at how many of your favorite foods can be adapted to gluten-free with a little tweak or 2-3. It may take several weeks to get relief of your symptoms, but way to go on figuring out what's going on with your body.

I agree with Frieze's recommendations, and wish you and your family well.

0

Share this post


Link to post
Share on other sites

1) your husband is wrong.

2) yes, you should have your daughter tested.

3) If you intend to have a biopsy, don't go gluten free yet.

I LOVE number one! LOL

Hopefully, I can see my doctor this week and we will discuss doing a biopsy.

0

Share this post


Link to post
Share on other sites

Hi Jcossentino, and welcome to the forum!2

You may be surprised at how many of your favorite foods can be adapted to gluten-free with a little tweak or 2-3. It may take several weeks to get relief of your symptoms, but way to go on figuring out what's going on with your body.

I agree with Frieze's recommendations, and wish you and your family well.

Thank you!! I hope I can figure out gluten-free pretty easily.

0

Share this post


Link to post
Share on other sites




Yes, definitely get daughter tested. Even if Celiac isn't evident now, it could show in the future!

You will find many new things to eat. My husband and son love the gluten free brownie mix from Betty Crocker!

Good luck to you.... You will begin to feel better soon I'm sure! Good luck and welcome to the board!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,501
  • Topics

  • Posts

    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Going gluten free may be beneficial if you're among the roughly 10 percent of people who suffer from celiac disease, a genetic immune disorder, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined