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#1
Posted 11 December 2012 - 11:37 PM
I am not sure if there is a name for what I can and can not eat. I seem to do fine with a small amount of white rice or potato but no other grains. Also, unlike people who do fine on a Paleo diet with seeds, I can not eat seeds either.
So basically, my diet is Paleo +rice/potato and (- seeds) !
Is there a name for this diet?
#2
Posted 12 December 2012 - 06:29 AM
I don't know how long you have been doing this, but you might be able to add some foods back in a few months or a year.
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#3
Posted 12 December 2012 - 06:37 AM
Also known as "The only stuff I can eat" diet.
Gluten and dairy free: 5/2/2012
Grain free: 11/12/2012
I am able to eat somre processed foods again (chocolate, lollipops, soysauce).
#4
Posted 12 December 2012 - 01:20 PM
How about "What Works for Ray Today"?
I don't know how long you have been doing this, but you might be able to add some foods back in a few months or a year.
hehehe... well i am trying to find out if there is an actual name for it so I can look up recepies and join their meetup groups! ... who knows I may find all kinds of friends and even my soulmate ...... Anyone else out there is on "What Works for Ray Today" diet ???
#5
Posted 12 December 2012 - 01:47 PM
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
#6
Posted 12 December 2012 - 09:40 PM
For example: http://www.mommypota...traditions-way/
Works for grains, too, apparently: http://www.cheesesla...-sprout-grains/
Anyway, I've only soaked rice and polenta (both helped a LOT) but haven't had the courage to do nuts yet. But I can handle almond milk OK, although regular almonds not so much, so it seems like it should work.
live in Okinawa, Japan; hope to resume training for ultra-marathon soon
casein-free, legume-free; 99% fructose-free
I cope by drinking artisanal teas, hand-picked in Taiwan, all gluten-free
#7
Posted 13 December 2012 - 05:30 AM
Multple food intolerances last 25 years
High Eosinophilia last 20 years
Suspicious cervical lymph node 2006
Gluten free 2010
Grain free 2012
Started long term Zyrtec for IgE and eosinophils in the gut
Ongoing 2006 node confirmed Kimuras disease 2013
DQ2 positive, DQ5 and DQ8 negative.
IgE level 4100 in Oct 2012, currently 1900 in Feb 2013
#8
Posted 14 December 2012 - 08:36 PM
#9
Posted 15 December 2012 - 06:36 PM
Everyone says not to eat potato but there's something in that stuff that works well. I think it's the poisons in the skin (I eat them with the skin) and there are supposed to be some fairly powerful compounds in potato skin, anti fungals. The only problem I've had with them was as a kid if I ate a lot of baked potato's with skins I'd have the most crazy vivid nigthmares and have them every single time I ate potato late at night..
Well, since most of these food allergies revolve around problem with certain protein digestions, I wonder if potatos just don't have the protein that I am allergic to. I know I am allergic to Gluten, but I am talking besides glutern. Maybe there is other protein that are not yet researched enough to make as much headlines as gluten. For example, I hear there is a protein in Oats that some people are allergic to. My body actually acts much worst to oats and oat bran then it does to wheat so I am one of them.... It could very well be that my body can digest all the protein in the potato. Same with white basmati rice, but not the brown rice which is suppose to be better for you!
#10
Posted 18 December 2012 - 05:54 PM
Lately I'm making my own Yoghurt from A2 milk from this company since the A2 yoghurt isn't available in my local supermarket yet. http://www.a2milk.com.au/ I make it with a spoon of normal bacteria from a normal yoghurt and add in some LGG and other probiotics in it which is super easy to make and I don't know why I didn't do this years ago. I'm going to see if you can set yogurt made from pure LGG only soon. The A2 milk really makes a difference in the digestibility of the proteins and my own inner feeling is that I'm digesting it 100% perfectly, I don't even get any grumbling/gurgling from it like I do from the normal milk here which comes from friesian (holstien) cows and is A1 protein, that is bad bad news). The only allergy I technically have is to yeast which I think has built up because of Candida.
So my problem is that because all the proteins from grains and legumes have been leaking through my small intestine for years and years I've got anti bodies to all those proteins which makes me very intolerant of them, because I was vegetarian for a couple of decades I've eaten way too much grains. I'm now eating meat and the good thing is that it's building my body up and fixing my many malabsorbtion deficiencies, for the first time in ages I have enough minerals to wake up with mucus in my eyes!
But It's also still not helping my eosonphilia because of the proteins in it although it's much easier to digest than grains, the only meat I'm dodgy on is Chicken, especailly the breast as it's almost non digestible, red meat and fish though I get near enough to 100% digestion on. However! something that may interest you is that is that whenever I take antibiotics my eosonphil count drops and my white tongue magically goes away... The only bacteria that can really cause these problems I have is helicobacter pylori and I have been treated for it before but obviously the high card high sugar diet I used to be on feed it too much and it didn't die off. Now I'm taking another course of treatment for it since it really seems to be the smoking gun in my case, or some other uncommon similar upper intestinal bacteria. If I keep eating my home made lgg yoghurt I seem to be able to take antibiotics just fine without issues, normally they totally ruin me and I give up on them.
I can get my eosonphil count down just fine eating potato only and vege juice just because there's almost no protein in those foods. But you can only do that for a limited time when you are already deficient and borderline malnutritioned as it is.
The trick for me is, sure I can take the antibiotics and eventually kill off the H pylori but then how to you eat enough protein to repair your gut without increasing your eosonphil count and ruining you gut and probably getting reinfected with a bacteria. You could technically do it with straight pure amino acids because they your body doesn't recognised them as anything bad. But I don't have any.. should get some. In the end I might just give up and take cortisteriods for a couple/few months to give me some respite from the eosonphillia and get my IgE levels down to a sensible level. I can't really take H pylori anything but very seriously with my genetics because my Grandfather suffered for years with stomach problems and ended up dying at a young age from complications of Ulcers.
All grains other than white rice give me problems, although even white rice causes my body to be "stiff" as in slightly inflamed compared to potato. Pretty much every other grain sends my to the toilet half out of my mind almost straight away, most especailly Corn and Wheat but Oats was never any good either, they are all too hard/ to slow to digest and leak through your gut undigested before they break down into amino acids.
Multple food intolerances last 25 years
High Eosinophilia last 20 years
Suspicious cervical lymph node 2006
Gluten free 2010
Grain free 2012
Started long term Zyrtec for IgE and eosinophils in the gut
Ongoing 2006 node confirmed Kimuras disease 2013
DQ2 positive, DQ5 and DQ8 negative.
IgE level 4100 in Oct 2012, currently 1900 in Feb 2013
#11
Posted 18 December 2012 - 06:28 PM
I wonder if potatos just don't have the protein that I am allergic to. I know I am allergic to Gluten, but I am talking besides glutern. Maybe there is other protein that are not yet researched enough to make as much headlines as gluten. For example, I hear there is a protein in Oats that some people are allergic to. My body actually acts much worst to oats and oat bran then it does to wheat so I am one of them.... It could very well be that my body can digest all the protein in the potato. Same with white basmati rice, but not the brown rice which is suppose to be better for you!
Ray, are you able to eat potato skins without any problem? It is the skins that I cannot eat because they contain the protein called lectin (there are also lectins in many other foods; e.g., probably in brown rice because it has the outer husk of the rice grain which is removed for white rice.) I tend to avoid brown rice to keep away from as many lectins as possible. The lectins contain a substance which is poisonous to insects (causes their blood to clot) and is the plant's first line of defense against attack.
Ray21 you are right, it's the proteins that cause the problems....
So my problem is that because all the proteins from grains and legumes have been leaking through my small intestine for years and years I've got anti bodies to all those proteins which makes me very intolerant of them....
Yes, that goes for me too. I can do white rice, and the 'pseudo-grains' (or should I say not recognized as grains by the general population) buckwheat, teff and sorghum because they are things I have never eaten before. But I have lost so many foods and am struggling to get them back. For me, at least, it appears to be the lectins in the skins of the plants, which then generalizes to the whole plant, and then to the whole food group. It will be a red letter day if I can eat legumes again!!! White bean salad, mmm!!!
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#12
Posted 18 December 2012 - 06:40 PM
It's a real pain to fix this leaky gut, I'm really glad for this forum because most doctors and other people just don't get how it all works or even believe it exists, they are just all about the Celiac which is only one small part of a very big puzzle. It's pretty hard when you are fighting against some bacteria, trying to grow others, fighting your own immune system and half the foods and pretty much all the additives on the planet all at once
Multple food intolerances last 25 years
High Eosinophilia last 20 years
Suspicious cervical lymph node 2006
Gluten free 2010
Grain free 2012
Started long term Zyrtec for IgE and eosinophils in the gut
Ongoing 2006 node confirmed Kimuras disease 2013
DQ2 positive, DQ5 and DQ8 negative.
IgE level 4100 in Oct 2012, currently 1900 in Feb 2013
#13
Posted 18 December 2012 - 06:52 PM
Multple food intolerances last 25 years
High Eosinophilia last 20 years
Suspicious cervical lymph node 2006
Gluten free 2010
Grain free 2012
Started long term Zyrtec for IgE and eosinophils in the gut
Ongoing 2006 node confirmed Kimuras disease 2013
DQ2 positive, DQ5 and DQ8 negative.
IgE level 4100 in Oct 2012, currently 1900 in Feb 2013
#14
Posted 18 December 2012 - 06:53 PM
Mushroom I ate a lot of potato skin the other day as a test for the first time in a few weeks and didn't do that well with it as I thought I would lol! so I might retract that statement. .....
It's a real pain to fix this leaky gut, I'm really glad for this forum because most doctors and other people just don't get how it all works or even believe it exists, they are just all about the Celiac which is only one small part of a very big puzzle. It's pretty hard when you are fighting against some bacteria, trying to grow others, fighting your own immune system and half the foods and pretty much all the additives on the planet all at once!.
Not only that, but I am doing something very counter-intuitive, in taking Humira injections for my psoriatic arthritis (which, although I think it is not as bad as before the diet, is still debilitatingly painful if I don't) and which are TNF inhibitors which, wait for it, suppress the immune system
Nobody knows the troubles I've known.....
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#15
Posted 18 December 2012 - 06:54 PM
If you guys want me to walk you through how to make probiotic yoghurt just let me know, I'm going to make some more today and also try the pure LGG to see what that makes. I made two batches yesterday. One was ordinary cultures and the other ordinary + probiotics and for me the probiotic tasted better so I'm interested to see if it will culture on it's own in milk, I hope so because it's very expensive to by as a powder! so I'd be very happy to just keep on growing it myself.
I think I missed something along the way -- what is LGG?
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
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