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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Am Not Getting Better
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12 posts in this topic

i have not eatin gluten for 10 months and i dont feel better , is this normal , what else can i do to help me feel better , i am starting to lose hope

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I'm sorry you are still sick. Have you read the "newbie 101" thread? It will help you find the places gluten hides so you don't get cross-contaminated. Do you live with gluten eaters? If so, you need a dedicated toaster, your own colander, your own jars of condiments, and to keep your food away from theirs. I know it sounds crazy, but a few weeks ago I got glutened from touching a cookie crumb and not washing my hands before I ate. Mind you, I didn't EAT the cookie crumb, just touched it.

Another thing that unfortunately happens to a lot of us is additional intolerances. Lots of folks have trouble with dairy and soy. Some of us have trouble with corn or nightshade vegetables. Then there are salicylates, oxylates, lectins, and other natural chemicals in foods.

But I would start simple. Make sure you aren't getting cross-contamination. Then, if you are still sick, try doing away with dairy. If you are STILL sick, do away with soy. After that, if you are still getting sick, an elimination diet sounds in order.

Read as much as you can here. Ask lots of questions. We will help you figure this out! (((HUGS)))

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yes i live with my mom and she eats gluten , and we wipe down everything that gluten touches , and everything wooden that we use in the kitchen we bought new ones

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To help you better, give us an idea of what is going on? What are you eating, what precautions are you taking etc. It is hard to offer help without more information.

The little information that you gave said that you wipe down everything that gluten touches. Can you give more details on that? You may need to do it more carefully. Do you use soap?

You might need to have a separate counter. It would depend on how sensitive you are. I am very sensitive and didn't get better until we made our household gluten free. The gluten eaters were still able to eat gluten out of the house. Many celiacs are able to prepare gluten containing food without problems. It depends on your level of sensitivity.

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I'd like to suggest that (even though you wipe everything down that comes into contact with gluten) you get in the habit of NEVER putting any of your food down on a counter -- instead grab a plate, or paper plate, or piece of wax paper, etc. It's a good habit to get into and adds a pretty foolproof layer of protection in your food handling.

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is it comen to take this long to get better ??

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is it common to take this long to get better ??

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Hi James,

It is not super unusual for people to have continuing symptoms for quite a while. The trick to stopping them is to make sure you are 100% gluten-free. That means everything including vitamin pills, medicines, pet food, kisses from girlfriends etc. If that doesn't help then you may need to look at other food intolerances. The immune response doesn't stop in a few hours after a glutening, it can continue for weeks. So if you get just a little bit of gluten but only once a week it still keeps the immune system response going, possibly for months or years.

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can anyone recomened a good probiotic and gas medication ty for all ur help

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i have not eatin gluten for 10 months and i dont feel better , is this normal , what else can i do to help me feel better , i am starting to lose hope

Don't lose hope until you have tried to solve it from all angles. If gluten free alone doesn't solve it, you can try looking for other intolerances and nutrient defieciencies. After that, you can supplement and cater to intolerances. If you are doing all of these and still are having trouble perhaps more time will solve, or allow you to find the next step for you.

Diana

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Hi James,

One thing you can do for gas is avoid sugars and starchy foods. Those make lots of food for bacteria which then make gas. Peppermint tea or Altoids peppermints are good for getting gas out of the stomach,.. But don't get in the habit of taking them every day, think of them as a medicine.

Solgar and Country Life or Nature Made brands are good for pro-biotics and enzymes. Or Vitamin Shoppe brands.

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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