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Am Not Getting Better
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i have not eatin gluten for 10 months and i dont feel better , is this normal , what else can i do to help me feel better , i am starting to lose hope

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I'm sorry you are still sick. Have you read the "newbie 101" thread? It will help you find the places gluten hides so you don't get cross-contaminated. Do you live with gluten eaters? If so, you need a dedicated toaster, your own colander, your own jars of condiments, and to keep your food away from theirs. I know it sounds crazy, but a few weeks ago I got glutened from touching a cookie crumb and not washing my hands before I ate. Mind you, I didn't EAT the cookie crumb, just touched it.

Another thing that unfortunately happens to a lot of us is additional intolerances. Lots of folks have trouble with dairy and soy. Some of us have trouble with corn or nightshade vegetables. Then there are salicylates, oxylates, lectins, and other natural chemicals in foods.

But I would start simple. Make sure you aren't getting cross-contamination. Then, if you are still sick, try doing away with dairy. If you are STILL sick, do away with soy. After that, if you are still getting sick, an elimination diet sounds in order.

Read as much as you can here. Ask lots of questions. We will help you figure this out! (((HUGS)))

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yes i live with my mom and she eats gluten , and we wipe down everything that gluten touches , and everything wooden that we use in the kitchen we bought new ones

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To help you better, give us an idea of what is going on? What are you eating, what precautions are you taking etc. It is hard to offer help without more information.

The little information that you gave said that you wipe down everything that gluten touches. Can you give more details on that? You may need to do it more carefully. Do you use soap?

You might need to have a separate counter. It would depend on how sensitive you are. I am very sensitive and didn't get better until we made our household gluten free. The gluten eaters were still able to eat gluten out of the house. Many celiacs are able to prepare gluten containing food without problems. It depends on your level of sensitivity.

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I'd like to suggest that (even though you wipe everything down that comes into contact with gluten) you get in the habit of NEVER putting any of your food down on a counter -- instead grab a plate, or paper plate, or piece of wax paper, etc. It's a good habit to get into and adds a pretty foolproof layer of protection in your food handling.

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is it common to take this long to get better ??

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Hi James,

It is not super unusual for people to have continuing symptoms for quite a while. The trick to stopping them is to make sure you are 100% gluten-free. That means everything including vitamin pills, medicines, pet food, kisses from girlfriends etc. If that doesn't help then you may need to look at other food intolerances. The immune response doesn't stop in a few hours after a glutening, it can continue for weeks. So if you get just a little bit of gluten but only once a week it still keeps the immune system response going, possibly for months or years.

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can anyone recomened a good probiotic and gas medication ty for all ur help

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i have not eatin gluten for 10 months and i dont feel better , is this normal , what else can i do to help me feel better , i am starting to lose hope

Don't lose hope until you have tried to solve it from all angles. If gluten free alone doesn't solve it, you can try looking for other intolerances and nutrient defieciencies. After that, you can supplement and cater to intolerances. If you are doing all of these and still are having trouble perhaps more time will solve, or allow you to find the next step for you.

Diana

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Hi James,

One thing you can do for gas is avoid sugars and starchy foods. Those make lots of food for bacteria which then make gas. Peppermint tea or Altoids peppermints are good for getting gas out of the stomach,.. But don't get in the habit of taking them every day, think of them as a medicine.

Solgar and Country Life or Nature Made brands are good for pro-biotics and enzymes. Or Vitamin Shoppe brands.

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    • So I've been glutened....
      That sounds like a plan JMG.  If things aren't working then make a change, hopefully a positive change.  It seems to me we have more noticeable symptoms sometimes after being gluten-free a while.  I made a mistake last night and ate some tuna canned in water.  It definitely wasn't boring.  I usually have more sense than to eat tuna canned in water but screwed up last night.  They canned  it in broth of some sort.  Ingredients say vegetable broth and soy.  Yuck, not good for me.  It sure tasted good though, just ouch.  I am not saying it had gluten in it, but it does have soy and some kind of unnamed veggie monsters.  So it could be soy, or carrots or some other disgusting vegetable that got me.   Not all celiacs have additional food intolerances beyond gluten, but some do.  My gut could testify to that.  Anyway, if you have bloating, cut out all carbs and sugar for starters.  And try peppermint tea or Altoids.  Over here we have something called Pepto Bismol that helps soothe gut pain and another neat thing called aspirin.  And gluten-free beer as needed.  
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      Thanks for everyone's suggestions!  I think I felt at a loss when we had to cut oats- we used to do cheerios and oatmeal regularly and now those are out.  She has a sensitivity to oats as well as wheat/barley/rye. 
    • So I've been glutened....
      The bloating has, if anything, got worse. It seems better when I'm lay down, when I stand it gets worse. Although the lymph swelling has gone down so maybe I'm through the worst. Hope so anyway... I never used to get a great deal of GI symptoms. Certainly not so serious as the other stuff. It's making me wonder if I just react differently now having been gluten-free for some time. I've noticed lot's of you saying that reactions seem to change over time. Of course its possible the other stuff was masking the GI things. I almost dont trust my memory of those times anymore because a whole chunk of my life seems to have been lived through a brain fog. Tomorrow I'm thinking of going away for a couple of days, maybe just taking some ultra simple food with me so I can try and settle my stomach by boring it into submission      
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