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I Am New To Pancratic Enzymes And Recently Started Rotational Diet?
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I recently started rotational diet, pancreatic enzymes, and vitamin B 12. Sorry all of you scientific people to start 3 things at once, but that is where I am at.

1 My tummy is noisy, noisy, noisy.

2 I am experiencing some pain in the lower abdomen.

3 My pants are getting too short. Okay, what I think I mean is that I am losing tummy and must pull the pants farther up to compensate for it. I don't think I have lost weight. The inches are only down to my lowest normal level.

4. . I had been tending toward diarreah since going gluten free. I was really constipated a couple of days.

5. My head seems clear day after day, except when I had a very constipated day once. Then after I got cleaned out, I feel really good for a while.

6. Sometimes, I feel very unusally well, extremely well, is more like it. Don't get me giddy!

7. Sometimes I think I am surely dying.

8. I felt ticklish for the first time in years.

I have double checked all of the new supplements for gluten and they all check out. I am wondering if I am now feeling pain, because I am not so numb as I was. I have been surprized on the forum when people talked about a painful expereience. I bloated 9 inches overnight once, but felt no pain whatsoever. That is one of the reasons that I went 30 years undiagnosed. I couldn't feel what was happening to me.

Diana

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Various stages of inflammation can cause all of this.

The only thing I can suggest is don't change too much too quickly or you will never know which change is helping or conversely -- hurting.

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I don't know what pancreas thing you are on. I tried one called Pancreatin. Someone told me they thought I should try it and stupidly I did, even though I didn't think that I had pancreas symptoms. That stuff made me sooo sick to my stomach! After taking it for a week, I had to stop. Then my stomach got a lot better.

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I had a nutrient blood test and was found short of pancreatic enzymes, so that is why I decided to take them. I am almost certainly swollen, but have been arguing with my doctors about it. I say swollen, but they just say I am the shape I am! I didn't get a marker test for swelling. I keep wondering if I "should" look emaciated, but I am not. I haven't been absorbing well.

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I have failed every blood test for inflammation my entire life - yet when I am in a state of healing I look 20 pounds lighter over night and my joint pain disappears - bloating returns and so does pain - i dont just mean abdominal bloat - i bloat everywhere yet docs always told me my weight is simply a matter of calories in - calories out. This is untrue in a body in constant AI crisis.

Supplements can be helpful, but too many can be harsh on an already inflammed digestive system.

Should add each of my four endos show severe inflammation - sed and crp do not show the entire picture of inflammation in your body.

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    • I just traveled three weeks this summer in Europe (Eastern).  Do not trust that the airlines will remember to load a gluten-free meal for you.  There is a 50-50 chance that they will not (in my experience).  We packed ONLY carry on.  Still found plenty of room to stash some emergency food.  You should be able to find food within an International airport.  Chips and typical junk food clearly labeled, even fruit.  Print or load Celiac travel cards with you in all the languages you will need.  They are free.  Google it.  Found these handy (not only in restaurants) but in the markets when we could not read labels but the staff could read them and Help us to make gluten-free choices.  amazing how you can communicate without knowing the language.  A few words like "thank you" in their language go along way (so does Google Translator).  Never met anyone who was not willing to help.   I carry a collapsible cooler that I pack with food and bags of ice to eat on then plane or right at my arrival or connection.  I take extra zip lock baggies with me.  Sometimes TSA will let you through if the ice is still hard (not melting).  Some will make you toss them then I just ask a restaurant to refill my ziplock baggies after passing Security.   I also carry a doctor's letter on my phone to show I am celiac, but no one has ever asked for me to present it.   Even though I carry a "third" piece of luggage on board, I have not been stopped.  Both that and my day backpack fit under the seat.  I use this cooler as needed through our trips.  If not, it fits in my backpack.  
    • Welcome, Kierra. You're only 15 so you need to make sure your parents are 100% aware of your medical issues so that they can advocate for you. It may or may not be celiac, but the only way to find out is to start with a full celiac blood panel, then an endoscope if necessary. However, for the tests to be accurate, you must consume gluten on a daily basis. 
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    • Yes it sounds like you may need further testing to rule out other conditions. Maybe seeking a second opinion from a endocrinologist and/ or rheumatologist would be a place to start.
    • This is a personal choice and everyone will have different levels of comfort depending on personal preferences and their circumstances -- what's available, where they live, the details of their condition. Gluten Dude is a blogger who has written a lot about the topic of dining out with Celiac: http://glutendude.com/category/eating-out/ Calling ahead to see if they are gluten-free, learning about their practices, and make sure their able to accommodate requests is a good strategy. There's other tricks like using the gluten-free filter on Yelp when searching for restaurants. I know some people like Find Me Gluten Free which has a website and app. It's an adjustment for sure, but it can be worth it to feel better and still get to do things you enjoy.
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