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I Am New To Pancratic Enzymes And Recently Started Rotational Diet?
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I recently started rotational diet, pancreatic enzymes, and vitamin B 12. Sorry all of you scientific people to start 3 things at once, but that is where I am at.

1 My tummy is noisy, noisy, noisy.

2 I am experiencing some pain in the lower abdomen.

3 My pants are getting too short. Okay, what I think I mean is that I am losing tummy and must pull the pants farther up to compensate for it. I don't think I have lost weight. The inches are only down to my lowest normal level.

4. . I had been tending toward diarreah since going gluten free. I was really constipated a couple of days.

5. My head seems clear day after day, except when I had a very constipated day once. Then after I got cleaned out, I feel really good for a while.

6. Sometimes, I feel very unusally well, extremely well, is more like it. Don't get me giddy!

7. Sometimes I think I am surely dying.

8. I felt ticklish for the first time in years.

I have double checked all of the new supplements for gluten and they all check out. I am wondering if I am now feeling pain, because I am not so numb as I was. I have been surprized on the forum when people talked about a painful expereience. I bloated 9 inches overnight once, but felt no pain whatsoever. That is one of the reasons that I went 30 years undiagnosed. I couldn't feel what was happening to me.

Diana

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Various stages of inflammation can cause all of this.

The only thing I can suggest is don't change too much too quickly or you will never know which change is helping or conversely -- hurting.

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I don't know what pancreas thing you are on. I tried one called Pancreatin. Someone told me they thought I should try it and stupidly I did, even though I didn't think that I had pancreas symptoms. That stuff made me sooo sick to my stomach! After taking it for a week, I had to stop. Then my stomach got a lot better.

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I had a nutrient blood test and was found short of pancreatic enzymes, so that is why I decided to take them. I am almost certainly swollen, but have been arguing with my doctors about it. I say swollen, but they just say I am the shape I am! I didn't get a marker test for swelling. I keep wondering if I "should" look emaciated, but I am not. I haven't been absorbing well.

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I have failed every blood test for inflammation my entire life - yet when I am in a state of healing I look 20 pounds lighter over night and my joint pain disappears - bloating returns and so does pain - i dont just mean abdominal bloat - i bloat everywhere yet docs always told me my weight is simply a matter of calories in - calories out. This is untrue in a body in constant AI crisis.

Supplements can be helpful, but too many can be harsh on an already inflammed digestive system.

Should add each of my four endos show severe inflammation - sed and crp do not show the entire picture of inflammation in your body.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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