Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Bathroom Question (Maybe Tmi)
0

12 posts in this topic

So my 8.5 year old son has been gluten free after his celiac diagnosis for approximately 4 months. His most noticeable symptom is short stature. Since placing him on the gluten free diet my husband and I have been obsessive about his poop (apparently we need to get a life) and while he usually only poops once a day as opposed to the 4-5 times he used to go before the diet most of the time his poop still floats. Does this mean he is still not absorbing fat, vitamins, etc. and that his intestines are still damaged? We have a follow-up in two months, but I am now concerned that his levels will not have dropped and I will be devastated! This may be TMI, but both my husband and I had a complete celiac panel which were both negative and he said his poop floats most of the time as well, mine never does! Thanks for humoring me with my obsessive and gross questions!

0

Share this post


Link to post
Share on other sites


Ads by Google:

When poo floats it means there is too much fat in your diet (if i remembered that right). But! it is good that he's not going the 4-5 times a day. Once a day is completely normal :)

0

Share this post


Link to post
Share on other sites

MIne floats after I have been glutened for a little while. I get pain d then c then mucus mucus mucus then they float.

Glad to hear that your little man is doing well otherwise. :)

0

Share this post


Link to post
Share on other sites

Can't comment on the poop issue (no experience there) but just wanted to reassure you. My son's numbers were only slightly lower when he was re-tested after being on the diet for 6 months. This completely freaked me out since my number changed to normal within weeks. The doctor assured me that it was fine and that some people just take longer. It was clear the diet was helping him, even though the numbers didn't show much improvement. At his one year tests, everything came back normal. It just went a little slower than I expected.

Keep up the good work.

Cara

0

Share this post


Link to post
Share on other sites

The doctor assured me that it was fine and that some people just take longer. It was clear the diet was helping him, even though the numbers didn't show much improvement.

This is reassuring because I've been gluten-free for almost three months and still have a 4-5 times average. Granted, a great improvement over the 8-10 usual. Rami, several doctors have told me that up to 3 is normal for some people, so it may be that healing is closer than it seems?

0

Share this post


Link to post
Share on other sites




I see Dr. Harmon, GI/Celiac researcher and Nancee Jaffe, Registered Dietician at UCLA's Celiac Center. Poop shouldn't float. It floats due to malabsorption of fats. It is important to absorb fats. As the gut heals, usually fat malabsorption subsides and poop will start sinking :).

(One of my twin's poops floated. We are at 9 months gluten free and her poop now sinks. Other than going gluten-free, we didn't do anything--she just healed on her own.)

I have Celiac and my poop floats. I have been advised to take an ADEK to help with fat absorption. A REALLY good dietician will be helpful.

In the meantime, please tell your husband I never tested positive on my TTG but had a positive Celiac biopsy (and did a colonoscopy at the same time with a whopper: they removed a Sessile Serated Adenoma...probably saved my life). There is likely some reason his poop is floating. A great GI will dig deeper, so to speak.

0

Share this post


Link to post
Share on other sites

Do you mind me asking which doctor you take your children to? I've tried 3 pediatric GI's in the LA area and haven't found anyone who seems particularly knowledgable about celiac. As a result I've been taking my daughter to see a pediatric celiac expert in San Diego but would obviously love to find someone closer.

As to the original post, I'm constantly worrying about my child's poop too. For awhile her poop was very pale and I had read that it was a bad sign but her GI always responds that color doesn't matter. Not sure how much I buy it.

I see Dr. Harmon, GI/Celiac researcher and Nancee Jaffe, Registered Dietician at UCLA's Celiac Center. Poop shouldn't float. It floats due to malabsorption of fats. It is important to absorb fats. As the gut heals, usually fat malabsorption subsides and poop will start sinking :).

(One of my twin's poops floated. We are at 9 months gluten free and her poop now sinks. Other than going gluten-free, we didn't do anything--she just healed on her own.)

I have Celiac and my poop floats. I have been advised to take an ADEK to help with fat absorption. A REALLY good dietician will be helpful.

In the meantime, please tell your husband I never tested positive on my TTG but had a positive Celiac biopsy (and did a colonoscopy at the same time with a whopper: they removed a Sessile Serated Adenoma...probably saved my life). There is likely some reason his poop is floating. A great GI will dig deeper, so to speak.

0

Share this post


Link to post
Share on other sites

I see Dr. Harmon, GI/Celiac researcher and Nancee Jaffe, Registered Dietician at UCLA's Celiac Center. Poop shouldn't float. It floats due to malabsorption of fats. It is important to absorb fats. As the gut heals, usually fat malabsorption subsides and poop will start sinking :).

(One of my twin's poops floated. We are at 9 months gluten free and her poop now sinks. Other than going gluten-free, we didn't do anything--she just healed on her own.)

I have Celiac and my poop floats. I have been advised to take an ADEK to help with fat absorption. A REALLY good dietician will be helpful.

In the meantime, please tell your husband I never tested positive on my TTG but had a positive Celiac biopsy (and did a colonoscopy at the same time with a whopper: they removed a Sessile Serated Adenoma...probably saved my life). There is likely some reason his poop is floating. A great GI will dig deeper, so to speak.

Oh wow, i didn't know that. I used to have this issue for years. I only get it now if i eat something that is too fatty. Good sign then?

0

Share this post


Link to post
Share on other sites

:) @ shadowicewolf--probably! Maybe it's even good that your body knows how much too much fat is! We have an extremely low fat diet in our house b/c of all the heart disease in the family (both sides), so I know I have some gut work/healing still to do...it's all a process isn't it?

Also, I finally remembered in the middle of the night about the Bristol Stool Scale. Google it and you'll see the consistency our poops are supposed to be...

We homeschool (which means I get to randomly teach the kids what I think is relevant in addition to the three R's...) so I did a whole unit on "What our poop should look like and why." Hysterical and a life skill!!! Enjoy!

0

Share this post


Link to post
Share on other sites

I have just realized that Italians say "X floats like a poop" - X usually being a disagreeable person who always gets away with it. Like, of *course* poop floats.

Do you think that this saying is indicative of the incidence of celiac disease in the country? :lol:

0

Share this post


Link to post
Share on other sites

I didn't answer the kids GI question very well...sorry!

Here are my thoughts on peds/Celiac in the greater LA region:

- San Diego is supposed to be very very good, but I haven't been there

- Dr. Pietzak at Children's Hospital LA is excellent but she's there only 2x a month and it is incredibly difficult to get in

- Dr. Collins http://www.pedsgidoc.com/ is also very good (and has a strong relationship with Dr. Pietzak). We've seen her when Dr. Pietzak has been unavailable.

Hope that helps!

0

Share this post


Link to post
Share on other sites

The hormone(CCK) that tells the gallbladder to squeeze bile and the pancreas to release digestive enzymes comes from the villi in the small intestine. If the villi are damaged, he may not be making the hormone..or the signal may not be sent? Without the CCK signal the body has a hard time digesting all foods, but especially fats. This should improve as your son heals. If it doesn't, digestive enzymes and/or pacreatic enzymes can be taken.

I'd give it a bit more time. We each heal in our own time, and according to how much damage we had at DX. Your son's DX is still fairly recent.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,501
  • Topics

  • Posts

    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Going gluten free may be beneficial if you're among the roughly 10 percent of people who suffer from celiac disease, a genetic immune disorder, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined