Well, looks like I am already having my first complication with the surgery. Was diagnosed with Diabetes Insipidus, so I have to start a new hormone treatment ASAP and keep a VERY close eye on my sodium/electrolyte levels. Awesome.
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81 replies to this topic
#76
kristenloeh
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Posted 11 April 2013 - 10:23 AM
Diagnosed Celiac 04.2012
Gluten-Free 04.2012
Diagnosed Pituitary Prolactinoma 12.2012
Low Cortisol/Possible Addison's Disease 02.2013
Maybe one day I will feel "normal" again. <3
#77
Celiac Mindwarp
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Posted 11 April 2013 - 10:46 AM
Not exactly what you were hoping for there then.
Good to hear they got it all out though. Maybe you will have more pieces of the puzzle, to help you get back to health.
I am rooting for you here, take it easy
Mw x
Good to hear they got it all out though. Maybe you will have more pieces of the puzzle, to help you get back to health.
I am rooting for you here, take it easy
Mw x
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
#78
Loey
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Posted 12 April 2013 - 06:31 AM
Well, looks like I am already having my first complication with the surgery. Was diagnosed with Diabetes Insipidus, so I have to start a new hormone treatment ASAP and keep a VERY close eye on my sodium/electrolyte levels. Awesome.
So sorry to hear you have another illness to deal with. But it's a good thing that they caught it. Continuing to keep you in my prayers!
Sending extra positive energy, healing (((hugs))) and love,
Loey
#79
Sequand54
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Posted 19 April 2013 - 05:07 AM
I'm sorry to hear about the complications of the surgery. You are such a brave soul and we are all hoping that your overall health will get better soon.
#80
Loey
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Posted 23 April 2013 - 05:56 AM
Continuing to keep you in my thoughts and prayers!
Love & healing (((hugs))),
Loey
#81
kristenloeh
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Posted 07 May 2013 - 09:35 PM
*hugs* Thanks all. The Diabetes cleared up fairly fast. I ended up going into adrenal failure about a week after the surgery. Was able to come back from that. Now I am dealing with a gnarly sinus infection. So much pressure I feel like my face/head may burst!! Took anti biotics but still in a good amount of pain so I'm trying to see what's up. I can't keep coughing like this because if it gets any worse, the coughing can mess up the surgery and I can get a spinal fluid leak, and this infection can spread to my brain if it doesn't go away soon. Uhg!! Hope you're all doing well! <3
Diagnosed Celiac 04.2012
Gluten-Free 04.2012
Diagnosed Pituitary Prolactinoma 12.2012
Low Cortisol/Possible Addison's Disease 02.2013
Maybe one day I will feel "normal" again. <3
#82
Loey
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Posted 08 May 2013 - 01:53 PM
I am SO proud of you! Hang in there sweet lady. I hope they're still giving you cough medicine. We're all keeping you in our hearts and thoughts!
Sending Love, (((Hugs))) & Prayers,
Loey
P.S. Will PM you a longer message over the next few days.
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