It's about time they started doing some research on this. I have found myself saying over and over, test them for celiac before giving fertility treatment or IVF (and that goes for both would-be parents, since gluten apparently affects the quality of the sperm too, I seem to recall reading).
2
Neroli
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
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Caffeine free 1973 Lactose free 1990 (Mis)diagnosed IBS, fibromyalgia '80's and '90's Diagnosed psoriatic arthritis 2004 Self-diagnosed gluten intolerant, gluten-free Nov. 2007 Soy free March 2008 Nightshade free Feb 2009 Citric acid free June 2009 Potato starch free July 2009 (Totally) corn free Nov. 2009 Legume free March 2010 Now tolerant of lactose
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day." โ Douglas Adams, The Hitchhiker's Guide to the Galaxy
As someone with unexplained infertility and recently diagnosed with celiac (no thanks to doctors -- but blood-test confirmed elevated tTg), I want to know when I can start trying again. I've already had my miscarriages, and there's no point in just getting more of them. Is it when tTg is back down?
Science, why are you so slow?
This is not encouraging advice, folks: “Apart from strong anecdotal evidence, there’s no published research data out there yet that proves fertility improves on the gluten-free diet,” Woodward says. “For those with celiac disease, overall health dramatically improves once they go gluten free, so it is reasonable to assume that fertility would be positively impacted, as well.”
It's just -- uh...no one's bothered to do a major study on this yet, so...we'll just assume it's fine.
Does the forum here have any thoughts on this? I need to do a deep-dive search, but the issue is *way* too emotional, so I'm not really into reading detailed miscarriage and infertility issues right now. (I'll be ready for it when my unborn children graduate college.)
1
celiac (positive tTg, negative biopsy), hypothyroid, hereditary hemochromatosis
live in Okinawa, Japan; hope to resume training for ultra-marathon soon
casein-free, legume-free; 99% fructose-free
I cope by drinking artisanal teas, hand-picked in Taiwan, all gluten-free
Many of our posters have had fertility problems resolve and carried to term after healing from gluten. I personally would hold off on trying to conceive until you have replenished the nutrient levels in your body due to malabsorption, which may well have caused your previous miscarriages. Have you had your pcp check all your vitamin and mineral levels?
0
Neroli
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973 Lactose free 1990 (Mis)diagnosed IBS, fibromyalgia '80's and '90's Diagnosed psoriatic arthritis 2004 Self-diagnosed gluten intolerant, gluten-free Nov. 2007 Soy free March 2008 Nightshade free Feb 2009 Citric acid free June 2009 Potato starch free July 2009 (Totally) corn free Nov. 2009 Legume free March 2010 Now tolerant of lactose
I'd agree it is probably worth getting nutrients checked first. Start taking a gluten-free prenatal vitamin suppliment well in advance of when you start trying.
In the UK i really rate books by Zita West on fertility, not sure how widely available she is.
I also wanted to say I had 2 miscarriages before my 1st child, several more before my second. So 2 kids while undiagnosed. There are many of us on the board who do have kids. Hugs to you, it is hard and emotional. Look after yourself.
0
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more! - Elimination diet using Atkins, 2003 โ excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol - Started diagnosis route April 2012, blood tests, endoscopy โ said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks. - Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods. - Genetic testing, December 2012 โ negative โ Diagnosis โ Non Celiac Gluten Intolerance (NCGI) - Elimination diet, January 2013 โ all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving. It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Celiac.com - Celiac Disease Board Moderator
I'm working on that -- the doctor has ordered the tests. Unfortunately, I can't take a prenatal since they have iron in them (I have a genetic iron overload disease). But in general any iron-free multi with extra folic acid and omega-3s does the trick, too, I think. I hope, anyway.
Thanks for the advice on waiting until my vitamin levels are up. I'm guessing tTg levels have a role to play, too.
Thanks, Celiac Mindwarp! I'm glad to hear you still managed it despite all the gluten in your system, but at what a price.
0
celiac (positive tTg, negative biopsy), hypothyroid, hereditary hemochromatosis
live in Okinawa, Japan; hope to resume training for ultra-marathon soon
casein-free, legume-free; 99% fructose-free
I cope by drinking artisanal teas, hand-picked in Taiwan, all gluten-free
It was a heck of a price, but I am fine now and have my little ones. Now I know what is going on I can work on fixing me too
Very best of luck Mw
0
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more! - Elimination diet using Atkins, 2003 โ excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol - Started diagnosis route April 2012, blood tests, endoscopy โ said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks. - Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods. - Genetic testing, December 2012 โ negative โ Diagnosis โ Non Celiac Gluten Intolerance (NCGI) - Elimination diet, January 2013 โ all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving. It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Celiac.com - Celiac Disease Board Moderator
