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The Celiac Disease And Infertility Connection - Sheknows.com
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SheKnows.com

The celiac disease and infertility connection

SheKnows.com

With infertility on the rise, it's time to look at the connection with celiac disease, a digestive disorder that damages the small intestine and interferes with the absorption of nutrients from food. A new study from Celiac Disease Center at Columbia ...

Canadian Celiac Assoc. Adds President's Choice To Gluten-Free Program PerishableNews (press release)

http://news.google.com/news/url?sa=t&fd=R&usg=AFQjCNFgarBIL95HCzdOKZu-z2IKG2xvmQ&url=http://www.newswire.ca/en/story/1088827/loblaw-launches-line-of-president-s-choice-gluten-free-foods-certified-by-the-canadian-celiac-association-s-gluten-free-certification-program'>Loblaw Launches Line of President's Choice

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It's about time they started doing some research on this. I have found myself saying over and over, test them for celiac before giving fertility treatment or IVF (and that goes for both would-be parents, since gluten apparently affects the quality of the sperm too, I seem to recall reading).

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My OB/GYN does check for this. That was who suggested it to me based on my iron, D, etc levels. They look for it with thier infertile ladies.

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As someone with unexplained infertility and recently diagnosed with celiac (no thanks to doctors -- but blood-test confirmed elevated tTg), I want to know when I can start trying again. I've already had my miscarriages, and there's no point in just getting more of them. Is it when tTg is back down?

Science, why are you so slow?

This is not encouraging advice, folks:

“Apart from strong anecdotal evidence, there’s no published research data out there yet that proves fertility improves on the gluten-free diet,” Woodward says. “For those with celiac disease, overall health dramatically improves once they go gluten free, so it is reasonable to assume that fertility would be positively impacted, as well.”

It's just -- uh...no one's bothered to do a major study on this yet, so...we'll just assume it's fine.

Does the forum here have any thoughts on this? I need to do a deep-dive search, but the issue is *way* too emotional, so I'm not really into reading detailed miscarriage and infertility issues right now. (I'll be ready for it when my unborn children graduate college.)

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Many of our posters have had fertility problems resolve and carried to term after healing from gluten. I personally would hold off on trying to conceive until you have replenished the nutrient levels in your body due to malabsorption, which may well have caused your previous miscarriages. Have you had your pcp check all your vitamin and mineral levels?

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I'd agree it is probably worth getting nutrients checked first. Start taking a gluten-free prenatal vitamin suppliment well in advance of when you start trying.

In the UK i really rate books by Zita West on fertility, not sure how widely available she is.

I also wanted to say I had 2 miscarriages before my 1st child, several more before my second. So 2 kids while undiagnosed. There are many of us on the board who do have kids. Hugs to you, it is hard and emotional. Look after yourself.

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I'm working on that -- the doctor has ordered the tests. Unfortunately, I can't take a prenatal since they have iron in them (I have a genetic iron overload disease). But in general any iron-free multi with extra folic acid and omega-3s does the trick, too, I think. I hope, anyway.

Thanks for the advice on waiting until my vitamin levels are up. I'm guessing tTg levels have a role to play, too.

Thanks, Celiac Mindwarp! I'm glad to hear you still managed it despite all the gluten in your system, but at what a price.

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Those sound good for suppliments.

It was a heck of a price, but I am fine now and have my little ones. Now I know what is going on I can work on fixing me too :)

Very best of luck Mw

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    • So I've been glutened....
      That sounds like a plan JMG.  If things aren't working then make a change, hopefully a positive change.  It seems to me we have more noticeable symptoms sometimes after being gluten-free a while.  I made a mistake last night and ate some tuna canned in water.  It definitely wasn't boring.  I usually have more sense than to eat tuna canned in water but screwed up last night.  They canned  it in broth of some sort.  Ingredients say vegetable broth and soy.  Yuck, not good for me.  It sure tasted good though, just ouch.  I am not saying it had gluten in it, but it does have soy and some kind of unnamed veggie monsters.  So it could be soy, or carrots or some other disgusting vegetable that got me.   Not all celiacs have additional food intolerances beyond gluten, but some do.  My gut could testify to that.  Anyway, if you have bloating, cut out all carbs and sugar for starters.  And try peppermint tea or Altoids.  Over here we have something called Pepto Bismol that helps soothe gut pain and another neat thing called aspirin.  And gluten-free beer as needed.  
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      Thanks for everyone's suggestions!  I think I felt at a loss when we had to cut oats- we used to do cheerios and oatmeal regularly and now those are out.  She has a sensitivity to oats as well as wheat/barley/rye. 
    • So I've been glutened....
      The bloating has, if anything, got worse. It seems better when I'm lay down, when I stand it gets worse. Although the lymph swelling has gone down so maybe I'm through the worst. Hope so anyway... I never used to get a great deal of GI symptoms. Certainly not so serious as the other stuff. It's making me wonder if I just react differently now having been gluten-free for some time. I've noticed lot's of you saying that reactions seem to change over time. Of course its possible the other stuff was masking the GI things. I almost dont trust my memory of those times anymore because a whole chunk of my life seems to have been lived through a brain fog. Tomorrow I'm thinking of going away for a couple of days, maybe just taking some ultra simple food with me so I can try and settle my stomach by boring it into submission      
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