Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Saw The Gi Yesterday About The Iron Deficiency
0

4 posts in this topic

So I saw my doctor and pretty much gave him a quick run through of my health history for the past year. It was a pretty disappointing appointment. He pretty much said ok so last time we did the EGD you were gluten free for a few months before and kept on it. I told him I had been back on gluten for about 9 months now he said great lets do an EGD and small bowel study, we will do biopsies and check for an ulcer. All he said was you are losing blood somewhere lets find out, if I can't go to the OB/GYB. I live in orlando and this guy is supposed to world renowned on malabsorption disorders in general yet our visit lasted about 7 minutes!

0

Share this post


Link to post
Share on other sites


Ads by Google:

So I saw my doctor and pretty much gave him a quick run through of my health history for the past year. It was a pretty disappointing appointment. He pretty much said ok so last time we did the EGD you were gluten free for a few months before and kept on it. I told him I had been back on gluten for about 9 months now he said great lets do an EGD and small bowel study, we will do biopsies and check for an ulcer. All he said was you are losing blood somewhere lets find out, if I can't go to the OB/GYB. I live in orlando and this guy is supposed to world renowned on malabsorption disorders in general yet our visit lasted about 7 minutes!

Don't fret over the length of the visit. You got his attention, but he won't devote more time to you until he gets the results of the tests. THEN you can complain if he gives you only 7 minutes. Look at it this way -- those minutes he saved on that visit he can devote to someone who needs longer -- like you will on your post-testing visit :)

0

Share this post


Link to post
Share on other sites

Have you had your platelets checked? If you get low on platelets you can't clot properly and you'll bleed in odd ways. Thrombocytopenia it's called. It's just an idea...

Hope you find answers.

0

Share this post


Link to post
Share on other sites

I have thrombocytosis (high platelets) and have an autoimmune clotting condition in which I clot too well. I had a whole blood workup down in the hospital, the only thing they didn't was an EGD cause they figured do it outpatient cause the pathology for biopsies takes awhile ya know

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,116
    • Total Posts
      919,451
  • Topics

  • Posts

    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,155
    • Most Online
      1,763

    Newest Member
    AndiR
    Joined