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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Omission Gluten Free Beer W/ Barley Review
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Omission has some process that is supposed to remove break down the barley where it is safe. Each 6 pack has a date and you can log on to the website to see the test results (how many PPM of barley is remaining). My batch was <10 PPM, I noticed some batches were only <5PPM. After drinkin a few I had slight gluten effects but it went away quickly. Drank 5 that night felt ok but a little worse in the morning, and it was not a handover effect. Next day I drank 1 that afternoon and was very tired from just that 1, I guess cause my guts were already damaged. This beer has a high alcohol %, but I'm sure it was the barley. Rash flared up, and other signs that it was obviously from the beer, Damn shame, I hope eventually someone gets the removal process right. Goes to show that the "20 ppm" isnt even safe. Kind of depressing.

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Yeah, I read on another site about a beer that uses gluten ingredients, but then adds an enzyme that is supposed to remove the gluten somehow. Not sure I'd trust that when there are several decent beers on the market that don't even use gluten ingredients to begin with (decent to me anyway, but I'm not a big beer drinker: Green's and New Planet).

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I really hope these 'low gluten' beers disappear. Haven't tried Omission (and won't) but I react to Estrella beer, which is supposed to be 6 ppm. I'll stick to drinking the acutal gluten free beer - New Planet and Green's are good and Harvester beer (out of Portland, OR, like Omission) is really good, too. Harvester isn't widely available yet, but I think you can order their stuff online.

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Tests for barley gluten are notoriously inaccurate. Even if I were a drinking girl I wouldn't drink something that says right on the package that it is made of what is essentially poison to us.

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When I was researching Rice Dream rice milk which also uses a barley enzyme which they say they extract I found several reports about barley testing being unreliable and grossly underestimating the actual level of the barley protein remaining.

To me the extraction process of barley is a moot point when there is no reliable way to test for its presence anyway. Please don't ingest any product that says it uses a barley enzyme and extracts it. Perhaps it may be safe for some but not for others and so don't take that chance.

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The FDA has stated that there is no validated test for gluten in "hydrolyzed foods" (such as sourdough bread or barley based beer). When I last checked, the Tobacco Tax Bureau had ruled that no beer based on barley can be labelled as gluten-free in the US. The technologies that some breweries are trying are exciting, but unproven.

I can give more detail in a private message.

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The FDA has stated that there is no validated test for gluten in "hydrolyzed foods" (such as sourdough bread or barley based beer). When I last checked, the Tobacco Tax Bureau had ruled that no beer based on barley can be labelled as gluten-free in the US. The technologies that some breweries are trying are exciting, but unproven.

I can give more detail in a private message.

No need to pm. It's most helpful to everyone to have the info/answer posted in the thread with the question.

I have posted this here before. This is the federal " ruling" . Page 3 has the part you might be most interested in.

http://www.ttb.gov/rulings/2012-2.pdf

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I really hope these 'low gluten' beers disappear. Haven't tried Omission (and won't) but I react to Estrella beer, which is supposed to be 6 ppm. I'll stick to drinking the acutal gluten free beer - New Planet and Green's are good and Harvester beer (out of Portland, OR, like Omission) is really good, too. Harvester isn't widely available yet, but I think you can order their stuff online.

Do the gluten free beers actually taste like regular beer though?

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Estrella in Canada was labelled 3ppm and it got me. I was so excited to try a gluten-free beer that I didn't read the ingredient label until the stomach ache hit. lol

LilLil - I find the gluten-free beers aren't too bad. They do taste like beer BUT they often end up tasting a bit more like a home brew. I find they are often more yeasty that the average bottle beer.

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The FDA has stated that there is no validated test for gluten in "hydrolyzed foods" (such as sourdough bread or barley based beer).

There is no legal criteria for testing gluten in the US, regardless of specifics.

I don't worry about "hydrolyzed protein" stuff. Some very sensitive, may.

Edit: I've been watching the Golden Globes and twenty people may have posted prior to me. Disregard my advise if you choose. :P

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Do the gluten free beers actually taste like regular beer though?

Some get pretty close, depending on what type of beer you like. I find the ones with a lot of hops taste more like a beer than the ones with a more mild flavor - maybe because the hopps taste covers up the sorghum flavor. The best gluten free beer I've had is from Harvester, but it's hard to find unless you live in Oregon/Washington, or you order online, which is pricey. New Planet and Green's are pretty good, too, and you can find those more easily. New Planet has a pale ale that tastes a lot like a regular IPA - they also do a raspberry beer and a reglar ale that aren't bad. Green's comes in Blonde, Amber and Dark, and all three are pretty good. A little sweeter and frutier than a regular beer, but still very tasty.

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Estrella in Canada was labelled 3ppm and it got me. I was so excited to try a gluten-free beer that I didn't read the ingredient label until the stomach ache hit. lol

LilLil - I find the gluten-free beers aren't too bad. They do taste like beer BUT they often end up tasting a bit more like a home brew. I find they are often more yeasty that the average bottle beer.

thanks, i think that's great that they taste like beer but i do not think it's great that it is more yeasty than regular beer though. that may pose a problem also with the gut if too much yeast in my opinion. not sure how much truth that is to the yeast issue, but i guess i'm still trying to figure out what i am sensitive to, whether it be the gluten, wheat, yeast, or all three. i haven't had an official diagnosis yet, but i guess i could try it and see how i react.

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Some get pretty close, depending on what type of beer you like. I find the ones with a lot of hops taste more like a beer than the ones with a more mild flavor - maybe because the hopps taste covers up the sorghum flavor. The best gluten free beer I've had is from Harvester, but it's hard to find unless you live in Oregon/Washington, or you order online, which is pricey. New Planet and Green's are pretty good, too, and you can find those more easily. New Planet has a pale ale that tastes a lot like a regular IPA - they also do a raspberry beer and a reglar ale that aren't bad. Green's comes in Blonde, Amber and Dark, and all three are pretty good. A little sweeter and frutier than a regular beer, but still very tasty.

thanks! i like light beers like coors light.

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Buckwheat, I'm so glad to hear I'm not alone!

My boyfriend, who ears serious brownie points for being my beer mule and bringing me Greens and New Planet from the US, got me a couple bottles of a german "gluten removed" beer (brunhauer or something like that...) I was highly skeptical. And after being brave enough to have a bottle, I was still highly skeptical and also very disappointed. It kind of sucked! and I started feeling odd pretty quickly. It might have been psychosotic at first, but the next day I was definitely not my best. So the 2nd bottle has been sitting in my fridge untouched cause I'm afraid of it.

So a big fat NO WAY on the "gluten removal" thing. It should be debunked, or at least labeled for what it is so people can assess the risk for themselves.

But there are so many good gluten free beers out there. Before the beer mule, I knew of only 3 available in Canada (Nicklebrook Gluten Free is my mainstay), but now I know there are several being made in the US and Europe (New Planet and Greens are great!), and in Canada there's now an amazing craft brewery in Montreal doing amazing things (Brassieus Sans Gluten), and even a small local Toronto outfit malting their own millet and just doing casks right now. So good!

gluten-free beer isn't quite the same as the real stuff, but it's getting better.

If it says barley. That means gluten. Never again.

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
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      I have not. I'll talk to my doctor about it
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