Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Newbie Posting Story And Wanting Advice
0

4 posts in this topic

Hi,

I am not sure if this is the right place?

I want to post my info and possibly get some feedback as I start on my journey.

About 10 yrs ago I started with symptoms that GP's were thinking were related to thyroid and then bloods were showing negative. I spent a long time with many symptoms including having a hysterectomy for fibroids (7 yrs) and weight gain, hair thinning,fatigue, cold intolerance/itchy skin/tinnitus type noises/low mood/mild anxiety/tearfulness/recurrent puffy face and eyes/bloating/some constipation - and so on.

I ended up joining a forum and finally having battled the system and seen a private doctor (who said I had an autoimmune thyroid condition) and now self treat - my health started to improve - since 2 yrs ago.

Recently I have started to crave food/always feel hungry and always being a chocoholic that has featured big time. I always eat healthy and have not really been into processed foods sticking with cooking fresh. I am always tempted to eat a lot of cakes/biscuits at work on special occasions or at home if it is there.

I have been comfort eating also due to some work stress.

My symptoms - I feel tired and not wanting to exercise/bloated/put on weight - 10lbs in about 4 months - fatty stools as described as a symptom of gluten intolerance which are really smelly (sorry). I have another cold and sometimes have achy bones/joints. I have had some sinus discomfort and headaches.

I am taking T3/Liothyronine and was taking B12 and Selenium ( I ran out and stopped taking the vitamins so regularly)

So - I am wondering whether I may be gluten intolerant and not having much faith in the NHS General Practitioners - I would like to explore this myself.

I do not have diabetes or any other conditions - I am female and 49 yrs old.

When Christmas is out of the way - I plan to address gluten and see.

Any thoughts would be very welcome.

Many thanks

0

Share this post


Link to post
Share on other sites


Ads by Google:

Try to ease yourself into eating more healthy fats, such as olive oil, coconut milk, avocado, nuts, because they sate hunger better than carbohydrates. Also, cravings for minerals and vitamins may show up in your body as sugar cravings, because "hunger" is not that specific, more of a generic sensation. Eating carbs in the form of high glycemic index ones ("white, fast acting") and sugar will spike your blood sugar, then it crashes, then it feeds another craving. So going back to the vitamin B mixture (gluten free) and adding in some calcium and magnesium and D may help with that, also.

1

Share this post


Link to post
Share on other sites

If you are in the UK you may want to go to your GP and ask for celiac blood tests and to be referred for a biopsy. You need to still be eating gluten for the tests to be accurate. Many areas still have access to gluten-free food on prescription if you have an offial diagnosis.

Many people here are self diagnosed, mainly through response to a gluten-free diet and how bad they get eating gluten, and their history.

Whichever route you decide come and ask lots of questions and get support. It can be overwhelming at first, but plenty of the folks here have great advice

1

Share this post


Link to post
Share on other sites

Yep, get tested for celiac disease first, then try the gluten-free diet. The initial testing is just a blood draw to check for antibodies to gliaden, the protein in wheat that causes the auto-immune reaction in celiac disease. There are IgA and IgG antibodies tests, and ttg and Deamidated gliaden also, plus total IgA. Test results can take a couple weeks to get. If initial blood tests are positive, the docs usually want to do an endoscopy to check for villi damage in the small intestine, taking 5 to 8 biopsy samples. There are some newly identified forms of gluten intolerance that can't be detected with the current test methods though. So it is good to try the diet after the celiac disease testing regardless of results. That way if you have a non-testable condition, you may still discover it by dietary changes that results in symptoms improvement.

It is much harder to be tested after doing the gluten-free diet, and can be more painful also. After being off gluten a while the antibodies decrease, and to get antibodies back up to a testable level, the person needs to start eating gluten again for a while. Since symptoms are often more painful and unpleasant for people after stopping gluten and then getting re-exposed (glutened) it can be hard to endure a gluten challenge.

FAQ Celiac com

http://www.celiac.co...celiac-disease/

Newbie Info 101

http://www.celiac.co...ewbie-info-101/

Non-celiac wheat sensitivity article

http://www.celiac.co...ists/Page1.html

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,654
    • Total Posts
      921,619
  • Topics

  • Posts

    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
    • I don't have a lot of faith in the allergy testing naturalpaths do. I had them done, but really it wasn't very helpful. Foods that were okay on the blood work- I was still having obvious reactions to. Skin testing through an allergist didn't show up food allergies either. I agree the food elimination diet is a better way to go and doesn't cost a bunch of money. I did a whole 30 diet a while back that could have been helpful if the foods I reacted to were corn, dairy,  soy, grains and sugar- but I react to more than that.  I do need to do a major elimination diet- just haven't gotten up the willpower yet.   
    • Quick search gave too many responses to TGI Fridays but none to TGI Fridays Buns (or similar) so... I was talking with my sister-in-law (Gluten Intolerant) and she spoke highly of a pre-packaged bun from Fridays. I was hesitant but she gave me one (apparently you can buy them from the restaurant?) and I tried it. Since I'm slow to react I won't know about gluten for a bit but I can definitely say it is the closest to "real" I've had in years! Spongy, doesn't crumble while eating a sandwich and tastes good. Color me impressed! I tried to determine the manufacturer or if Fridays actually makes them but I can't locate anything worth pursuing. Anyone have information on this? Thanks in advance.
    • Thanks cyclinglady! I will!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,654
    • Most Online
      3,093

    Newest Member
    bentcreekmom
    Joined