Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Onset Of Celiac In Baby


  • Please log in to reply

11 replies to this topic

#1 sunburst

 
sunburst

    New Community Member

  • Members
  • Pip
  • 9 posts
 

Posted 19 December 2012 - 02:51 PM

Hope it's OK if I jump in and ask, did those of you with confirmed celiac babies noticed a gradual or sudden onset of symptoms? My daughter (father is celiac, I'm not) has previously had normal stools, sometimes mild constipation and occasional diarrhea, and then all of a sudden for the last 7 or 8 weeks has had loose stools every day, 2-5 times a day. She's only 18 months. She has also had recurrent yeast infections since she was a newborn and diaper rashes what feels like all the time and it's really bad now that she has loose stools.

Follow-on: She is scheduled for one of the blood tests next month; is the venipuncture for the blood sample bad? I'm dreading putting her through that. :(
  • 0

Celiac.com Sponsor:

#2 glutenannie

 
glutenannie

    New Community Member

  • Members
  • Pip
  • 2 posts
 

Posted 19 December 2012 - 05:55 PM

Hope it's OK if I jump in and ask, did those of you with confirmed celiac babies noticed a gradual or sudden onset of symptoms? My daughter (father is celiac, I'm not) has previously had normal stools, sometimes mild constipation and occasional diarrhea, and then all of a sudden for the last 7 or 8 weeks has had loose stools every day, 2-5 times a day. She's only 18 months. She has also had recurrent yeast infections since she was a newborn and diaper rashes what feels like all the time and it's really bad now that she has loose stools.

Follow-on: She is scheduled for one of the blood tests next month; is the venipuncture for the blood sample bad? I'm dreading putting her through that. :(

I would not wait for tests! She does not 'need' G grains in her diet and loose stools are suggestive that nutrition is passing thru too quickly.

Celiac disease is a result of genetic sensitivity to G. She does not have to develop the celiac disease, to take action now.
Some things to consider- does your family have history of immune diseases? as these may also be linked to G sensitivity. is she weaned? has she had anti-biotics? Her gut may need healing and maybe even probiotics.

However being gluten free for a month may result as inconclusive tests...BUT if her stools normalise and presumably her mood alongside that, then what have you got to lose except doctor bills? Other 'allergies" can/will develop if the gut is disturbed.

It would be good to familarise yourself with current info on gluten sensitivity not just limit to celiac disease. Do a search for books and sites as it is much easier to nip in bud now. It is a myth that gluten-free diet is hard or nutritionally inferior.
  • 0

#3 CaveMum

 
CaveMum

    New Community Member

  • Advanced Members
  • Pip
  • 15 posts
 

Posted 20 December 2012 - 08:22 PM

The blood tests are not nice, but with a younger child, I found them easier to manage. My 9 month old was blood tested recently, by heel prick. He was pretty calm about it. My 3 year old has had two sets of blood tests for celiac antibodies, the first was a finger prick which took longer but was less traumatic, the second time they did venepuncture, and that was much faster but it was more upsetting for him. It was the same panel of tests each time.

Rather than taking pot-luck, I would call the blood collection centre beforehand to check that they have someone there who is good with kids.
  • 0

DS 1: TTG 262, DGP 170 in June 2012. Eventually diagnosed coeliac by biopsy Dec 2012 (aged 3 yrs 9 months).

Heart breaking that we kept him on gluten all that time. If I had to do it again, I would not agree to continue feeding him gluten for 6 months just so that the "gold standard" for diagnosis could be met.

DS 2: HLA - DQ8 gene. 

Gluten free, as I am not willing to risk his health by allowing him to become coeliac.  


#4 sunburst

 
sunburst

    New Community Member

  • Members
  • Pip
  • 9 posts
 

Posted 21 December 2012 - 04:11 PM

As it turns out, I called the doc and we're not waiting a month for the test; we're taking her in weekend if possible. My husband and I want to take her off gluten ASAP, but didn't want inconclusive test results if she was gluten-free beforehand. Her stool has gotten pale, sometimes green and her rash is so bad, it looks like stomach acids are irritating the skin.

She was weaned right before the diarrhea started two months ago but the amount of BM was inconsequential; maybe an ounce or two a day. Never been on oral antibiotics. Dad is celiac so gluten-free diet is not an obstacle for us; it would actually be a HUGE relief because we know how to deal with it already.

And yes, that is a GREAT idea; we'll definitely call the lab before we take her in to ensure we get a kid friendly phlebotomist!
  • 0

#5 CaveMum

 
CaveMum

    New Community Member

  • Advanced Members
  • Pip
  • 15 posts
 

Posted 21 December 2012 - 05:26 PM

I did wonder why the blood tests were delayed, but am glad to hear that you are getting them done sooner. What will your next move be after the blood test results are back? If you need to go for a biopsy, you will need to keep her on gluten until then, unfortunately :(
  • 0

DS 1: TTG 262, DGP 170 in June 2012. Eventually diagnosed coeliac by biopsy Dec 2012 (aged 3 yrs 9 months).

Heart breaking that we kept him on gluten all that time. If I had to do it again, I would not agree to continue feeding him gluten for 6 months just so that the "gold standard" for diagnosis could be met.

DS 2: HLA - DQ8 gene. 

Gluten free, as I am not willing to risk his health by allowing him to become coeliac.  


#6 sunburst

 
sunburst

    New Community Member

  • Members
  • Pip
  • 9 posts
 

Posted 21 December 2012 - 09:02 PM

We had scheduled the blood test for the same time as her next dr appt, but her symptoms weren't that bad at the time. I doubted it was gluten at first because the stool change happened SO suddenly, I figured it was a virus. When she got progressively worse, I called and asked to do the blood test immediately. I hear it only takes a couple of days to get the blood test results back so if we need to schedule a biopsy after that, hopefully they can get us in right away so we don't have to keep her on gluten.
  • 0

#7 kareng

 
kareng

    Be Royal

  • Moderators
  • PipPipPipPipPipPip
  • 14,124 posts
 

Posted 21 December 2012 - 09:12 PM

Blood tests aren't always reliable in babies:


http://www.curecelia...ble-for-infants



http://www.celiaccen...aq.asp#accurate

"How accurate are the celiac blood tests?

The current diagnostic tests for celiac disease are very accurate, particularly when tTG and anti-endomysial antibodies are elevated. The isolated presence of anti-gliadin antibodies does not necessarily imply that the subject is affected by celiac disease, with the exception of children under the age of 2 in which tTG and EMA may not be present."

  • 0

LTES

 
"We've waited 29 years for this and not even a Giant can stand in our way." - Mayor Sly James
 
 
 
 
Celiac.com - Celiac Disease Board Moderator
 

 


#8 sunburst

 
sunburst

    New Community Member

  • Members
  • Pip
  • 9 posts
 

Posted 21 December 2012 - 09:23 PM

Yes, I had read that. She has been eating wheat since she was maybe eight months old, so @ 10 months. I guess I figured that first, the blood test is less invasive than the biopsy, and second, if the blood test was positive for celiac, we could forgo the biopsy. Are there reasons to go ahead and do a biopsy of you have a positive blood result?
  • 0

#9 Ollie's Mom

 
Ollie's Mom

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 166 posts
 

Posted 23 December 2012 - 05:39 PM

If you get a positive blood test, and have a doctor willing to diagnose celiac on blood work and positive response to the diet alone, then I personally would forgo the biopsy for my child.

Some docs require a positive biopsy for diagnosis, but this is an old, unnecessary approach. There can be value in having an endoscopy (to rule out other conditions and obtain a baseline of villi condition prior to commencing a gluten-free diet). But, keep in mind that to get a positive biopsy, significant damage needs to be present. The fact that your child is so young means that severe damage may have not yet had time to occur, which would yield a negative result even if your child does in fact have celiac disease.

Testing (blood or biopsy) is notoriously difficult for young children (<2) with the high potential for a false negative.

Fwiw, I am self diagnosed, but saw the exact same symptoms in my first DS, including the pale green BMs and nasty rash. I just decided to take him off gluten without taking him to the doctor for tests (I have never had luck with doctors). His BMs normalized and the rash diasppeared within 2 weeks. We haven't looked back.
  • 0

#10 sunburst

 
sunburst

    New Community Member

  • Members
  • Pip
  • 9 posts
 

Posted 02 January 2013 - 04:37 PM

Had the test over the Christmas holiday and it was 30 seconds of crying and yelling (her, not me) :) but only 30 seconds and she promptly forgot about it. Plebotomist was fantastic. Am thinking the ice cream dinner that followed might have been more for parents than her....

Don't have test results yet, but since eating gluten-free, her rash is gone, stools normalized and her mood seems a bit better. Just wanted to update and thank folks for the input. Even if test is inconclusive, we'll continue with the gluten-free diet and I'm sure as with most little kids, she will eventually get an inadvertent gluten-challenge at some point and we'll see how she reacts.
  • 0

#11 Celiac Mindwarp

 
Celiac Mindwarp

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,167 posts
 

Posted 03 January 2013 - 12:57 AM

Thank goodness it wasn't too bad. Parents definitely deserve ice cream on days like that! Great the diet is going well, good luck with results.
  • 0
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#12 sunburst

 
sunburst

    New Community Member

  • Members
  • Pip
  • 9 posts
 

Posted 05 January 2013 - 11:25 AM

Well, results of the panel were negative, but it looks like they only ran three tests? ttg antibodies (less than 1) iga serum (47) and gliadin (2). I guess even if it's celiac it's not surprising since she was only symptomatic for two months and she was off wheat for the week prior to the test. Have an appt with the pediatrician on Monday.
  • 0




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: