Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Should I Have My Children Tested?
0

12 posts in this topic

I found out about a month ago that I was celiac. Should I have my children tested for it?

0

Share this post


Link to post
Share on other sites


Ads by Google:

It is a genetic condition that is prevalent in first degree relatives so yes. I would recommend getting the Gene tests depending on their age. Although the Gene test would not diagnose Celiac it would be a good indicator of whether or not periodic blood tests are warranted.

0

Share this post


Link to post
Share on other sites

I found out about a month ago that I was celiac. Should I have my children tested for it?

Depends on their age, and whether they have immune problems presenting. I would also famiarise with all related symptoms of G sensitivity so you can be aware of them occurring in your kids down the track.

Testing also depends on what test and whether of an invasive nature when there are no symptoms.

There are genetic markers for this condition and the likelihoood is strong that they may be gluten sensitive if not actually celiac prone. I found that it was far better and easier to adopt a general gluten free diet for entire family. (I.e. same cake/ cookies /gravy /noodles etc for everyone.) Also if you have already noticed immune problems then I would not hesitate to adopt this diet.

Also I advise to drop any ideas they may develop of being a 'victim of fate' or getting 'special treatment' as really it is no different to white skinned people having to take more care in the sun! You can say for e.g. "We-our family-always wears a hat in the sun or we get burnt, we- our family- dont eat G foods or we ...insert your words".

If problems have not already surfaced, I would let them "breakout" of gluten-free for social occasions where difficulty arises - birthday parties , school events etc, as it is frequency of consumption over time that leads to the chronic illnesses. Unless of course they have serious symptoms already in which case your doctor should have suggested..

They can test out (if they want) when they are old enough to make choices.

At 11 my oldest son ( still not tested and neither i for that matter) insisted on having a meat pie as school lunch treat once a month, "like the other kids" and always had a red rash around his mouth by the next day, which then took over a week or 2 to heal. He continued this pattern for most of that year. When he got to high school, the next year, he easily rationaiised that it was better to be rash free than eat G pastry!

The important thing is to understand that no-one "grows out" gluten sensitivity- so having gluten grains or avoiding them will not change the sensitivity anymore than we can change the color of your skin. It is the signs & symptoms that may change during the lifetime, and they will worsen if the cause is ignored. Which is why being generally gluten-free is the best you can do for your children now. Please read "Dangerous Grains" for more.

0

Share this post


Link to post
Share on other sites

I don't see a reason to test them unless they show symptoms. A gene test just shows a low probability/association. <wouldn't waste my time and money at this time. :)

I don't know how old your children are, but keep a keen watch. No need to be alarmed until there is an issue. :)

AND WELCOME!

0

Share this post


Link to post
Share on other sites




Lets get some actual medical advice:

These are from the University of Chicago Celiac Center:

http://www.cureceliacdisease.org/archives/faq/who-should-be-tested-for-celiac-disease

http://www.cureceliacdisease.org/living-with-celiac/guide/screening

http://www.cureceliacdisease.org/archives/faq/at-what-age-should-children-get-tested-for-celiac-disease

Mayo:

http://www.mayoclinic.org/celiac-disease/children.html

My boys were teens when I was diagnosed. I had them blood tested and they were negative. If they start having any problems- GI, migraines, etc they will be re- tested. They know to look out for it. No did not do a gene test. 30% approximately of the US has the genes that are routinely tested and most don't have Celiac. I didn't want anything that could be used against them in the future like a pre- existing condition or if they wanted to join the military.

0

Share this post


Link to post
Share on other sites

Thank so much for your replies. My kids do not show definate symptoms. However, they all seem to get sick very easy. They pick up anything that's going around and often have it longer than normal. Not sure if that could be a symptom. My kids are 10, 8, 5, and 2. Right now my family still eats gluten for lunch and dinner or when we are out. However for dinner, everyone eats gluten-free with me. I don't cook separate meals. I also read in the articles above that they may not show symptoms. My 10 year old is rather short for her age. But I'm only 5'4" and my husband is 5'8". I have a sister that is only 5', so initially, her short height has never alarmed me. Now that I've read celiac can affect growth in children it makes me wonder. I also wonder how long it has been affecting me. The stomache issues started a year ago. However, looking back, I think it's been causing migraines and my tiring easily for a lot longer. Without the stomach issues I would not have gotten a diagnosis. If they have celiac, I want to find out before they get as "sick" as I was. Thanks again for the advice and thank you for letting me ramble. It's nice to talk to people that understand.

0

Share this post


Link to post
Share on other sites

i would get my children tested if i were you. i'm very sensitive to gluten, and antibodies were found in my husband's and my saliva, so i got the gene and full celiac panel done on my children. i would never wait for symptoms first, as gluten can be wrecking havoc inside, and you would never know it. i have a friend who was completely fine, and was diagnosed with osteoporosis at only 35yo, and that's when they found out that she has an intolerance to gluten. afterward, she found out that her uncle had celiac disease, and her grandmother died of a "wasting" disease years ago. sure your children's tests can come out negative, but at least you tried! (imo...) (and even if they come out negative, it could be false or it could be true, and they could develop it down the road, so you still need to keep an eye out.) i got mixed results on blood and saliva for my children, so we are doing stool testing next (which i hear is vey good!)

good luck!

0

Share this post


Link to post
Share on other sites

I would get them tested too, and I would go one step further and make them gluten-free too. I had my boys tested and they came back negative but 2 of 3 of them showed some possible symptoms of gluten intolerance (emotions near the surface, short stature, tired, always hungry, stomach aches, and too frequent bowel habits). I slowly made them gluten-free and their symptoms are disappearing! My oldest is much calmer, concentrates better on his work and doesn't complain as much and my youngest doesn't need the toilet 5-8 times a day anymore.

If they do continue to eat gluten, you might consider getting them tested every couple of years so if it develops in childhood, you can catch it early.

0

Share this post


Link to post
Share on other sites

Mgyoung77... Should you decide to have your children tested, this is the panel that should be ordered by your doctor:

The following are the celiac specific blood tests:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

This blood panel is the only recognised, non-evasive method to diagnose for Celiac Disease, at this time. An endoscopy exam can also be diagnostic. A positive dietary response and a gene study, will/can all be supportive.

0

Share this post


Link to post
Share on other sites

Since a huge number of people have celiac but have zero symptoms, it does not make sense to wait for symptoms. Especially for a simple blood test. Our son's doctor said all first degree relatives should be tested (regardless of symptoms) every two years . . . or sooner if symptoms develop. Second degree relatives should be tested if they have any symptoms or if they have been diagnosed with another autoimmune disorder.

0

Share this post


Link to post
Share on other sites

Since a huge number of people have celiac but have zero symptoms, it does not make sense to wait for symptoms. Especially for a simple blood test. Our son's doctor said all first degree relatives should be tested (regardless of symptoms) every two years . . . or sooner if symptoms develop. Second degree relatives should be tested if they have any symptoms or if they have been diagnosed with another autoimmune disorder.

^^^^This. Why wait for symptoms? By that time the damage has been done. Not to mention that kids sometimes have different manifestations of Celiac (cognitive issues, neurological, etc.) It's just a blood test. Get the genetic test first, because if they are negative, then you don't have to worry about it. If they have the genes, get them tested for Celiac.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,091
    • Total Posts
      920,311
  • Topics

  • Posts

    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,122
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined