Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Has Anyone Eliminated Food With Dyes(Yellow#5, 6 Etc).....
0

13 posts in this topic

and what were the results? did you notice a difference in behavior? my ds sometimes won't pay attention in class, likes to do what he wants to do, a few days ago at recess when his name was called to line up he ran off, last night at the xmas program he kept bopping his head and making faces...at the end his teacher said he turned his back to everyone and was shaking his butt!(I didn't see that) he has had meltdowns but now it's not very often, most mornings he is not cooperative, sometimes telling him things like for instance, no we can't go to the playground right now....will just go in one ear and out the other and he asks repeatedly over and over! We have been taking him to a psychologist who has now said we don't need to see him anymore! DS's behavior has gotten better since last year, but in your opinion, is this typical 7 year old behavior? I'm hoping I can get DH on board with eating gluten-free but he refuses because it's "too expensive" I"ve already read about the positive changes in behavior when eating gluten free, but I"d like to hear from anyone if elimination foods with dyes has brought a positive change in behavior.

thanks!

ps my oldest son never did any of these things...that's why I"m not sure if it's typical behavior or not!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Have you heard of the feingold diet? Dr Feingold did a study on the negative effects food dyes, artificial flavorings and preservatives had on childrens behavior. Google it! I can really see postive behavior changes in my children since we ordered the materials and began the diet! Ive even tested it back in and the old behavior comes right back. I'm also pretty certain that by "eating clean" it helped lead us to the trigger behind my son's rash(which he had for five years and it spread after starting feingold....but healed going gluten free).

0

Share this post


Link to post
Share on other sites

Thank you, I'm going to read about it...how long did it take before you noticed a change in behavior and what changes did you see? thanks!

0

Share this post


Link to post
Share on other sites

Pre-feingold my twins(boys) were getting comments sent home about inattention, forgetting homework, talking, etc. After 6 weeks (6-8 weeks of detox) my boys both made AB honor roll and no bad comments from teachers! At home I noticed less hyper behavior, they were just calm and focused! I also have a 4 year old boy....here is the true test ;) I noticed changes with him quicker. Before starting, he would want to stay up all night, argue with everything, angry with everything, fight with his brothers, hit, huge meltdowns over small things, and temper tantrums everyday. Those are all gone....well, he still irrataes his brothers but I think that's the "little brother duty" ;) I decided to

let them all have unapproved candy from trick or treating....wow, big mistake for me! The days

following this "great tradgity" were awful and more noticeable in my youngest. He started the throwing his self on the floor kicking and screaming tantrums over nothing, couldn't take "no" for an answer, and hitting again. This lasted a week.....I'll never do that again! :)

0

Share this post


Link to post
Share on other sites

I cannot have red food coloring because it has always caused my ADHD to become worse. Red was the first to go because of this and the fact that it makes my tounge feel weird (rougher?) along with a belly ache. The rest i tossed out on a just because basis.

0

Share this post


Link to post
Share on other sites




Yes, we did an elimination diet in June/July/August and cut out most food additives, as well as salicylates, amines and glutamates. Our diet was supervised by a dietitian and based on the Royal Prince Alfred Elimination diet. Similar to Sue Fengate's FAILSAFE diet. We saw some very striking results with reduced hyperactivity and better compliance also sleep was better. At this time, our son had tested highly positive for coeliac antibodies (TTG 262) and was awaiting biopsy. I did a literature search, and there does seem to be some evidence that coeliacs are more affected by the types of food chemicals that are eliminated by the RPAH diet protocol.

0

Share this post


Link to post
Share on other sites

The feingold diet also eliminates sals, msg, and hfcs. That's interesting about food additives and celiac. What made you test for celiac? Did you test after doing the elimination diet? The reason I'm asking is my son had a rash that spread while we were eliminating additives. He had the

rash for five years(dx as eczema, dermatitis, etc)

and the only treatment that helped was

eliminating gluten! The rash was gone in two

weeks!! I had him tested for celiac (tTG IGA)

and he was just under the weak positive(so it was negative)...but

we had been gluten free for two weeks (...I'm thinking we were actually eating alot less gluten because of feingold. No crackers, only cereal that was approved was a gluten free brand).

0

Share this post


Link to post
Share on other sites

Hi ampmomof3, bear with me, this turned out to be a much longer post than intended!

"What made you test for celiac? Did you test after doing the elimination diet? "

He was tested for coeliac antibodies as he started the elimination diet. Our dietitian was very clued up, noticed his big bloated tummy (which our GP just the week before said was "lack of musculature") and wanted to have coeliac excluded as a reason for his irritable behaviour,lack of sleep & digestive problems. In retrospect, we realised his bowel motions hadn't been normal for some time before this and his height gain had tailed off, all of which pointed to celiac disease.

"He had the rash for five years(dx as eczema, dermatitis, etc) and the only treatment that helped was eliminating gluten! The rash was gone in two weeks!! "

That seems like pretty compelling evidence of gluten intolerance. It might be worthwhile reading up on Alessio Fasano or Rodney Ford's work in this area.

"I had him tested for celiac (tTG IGA) and he was just under the weak positive(so it was negative)...but

we had been gluten free for two weeks"

I wonder if being off gluten may have invalidated the antibody test. Did you mention to your doctor that your son had been off gluten for two weeks prior to the test? I guess that you would have two options, either re-introduce gluten for some time and then test bloods again, or continue to eliminate gluten and observe symptom changes. Either way, it would be good to do proceed with monitoring from your doctor so that you have documentation (ie, height/weight changes, clinical observation of rash etc if you decide to stay off gluten). At this point it is totally up to you whether re-introduce gluten or not. This was something I didn't really appreciate fully when we were getting biopsies etc done.

"I'm thinking we were actually eating alot less gluten because of feingold."

Yes, I agree. I think that because the elimination diet cuts out a lot of processed food, the gluten content is much lower than a standard diet.

Another resource you might find worth looking into if you haven't already is www.fedup.com.au which has factsheets on food additives and the symptoms that they may cause and anecdotes from people who have tried the RPAH, FAILSAFE or Feingold. The elimination diet is a lot of work, and I hope that you see some positive results with behaviour to make it all worthwhile. Good luck to you with sorting this all out! :)

0

Share this post


Link to post
Share on other sites

We had a neighbor boy who had ADHD. He had to avoid all dyes and sugar. Those things hyped him up.

0

Share this post


Link to post
Share on other sites

I just thought I would chime in. Gluten Free junk and all ready made processed foods and flours are expensive. Gluten Free living is not expensive. I eat gluten and corn free and all organic and spend an average of $6.00 a day on groceries, supplements included. That is breakfast, lunch and dinner for one person I tend to engorge on nuts and I eat a lot of meats. If your family is full of junk food junkies it may be more expensive but you can save money by making things yourself.

0

Share this post


Link to post
Share on other sites

My son is on a gluten free diet for his autism, not celiac so our case may be different. We have mostly eliminated food dyes except the very, very rare occasion. I also have started baking sugar free at home (use honey, maple syrup, etc. for sweetener). I don't know that I noticed a big difference when I cut it out, but I noticed an increase in hyperactivity when we let him have it.

Lately I've been using a lot of recipes from paleo cookbooks. We aren't necessarily paleo, but all of those recipes are gluten free, sugar free, and mostly dairy free (we limit dairy). It might be worth checking out.

0

Share this post


Link to post
Share on other sites

I'd say if I had to guess sugar is the worst of it. Food dyes may contribute, but sugar and chocolate and food dyes make my son crazy hyper. I am the gluten-free one, but when he gets sugar and the above and lack of sleep and no exercise, he's a mess. Leke the others said, you can eat gluten-free for cheap. All our dinners are gluten-free period at home. The kids like eggs and fruit and ham, most breakfasts, all gluten-free. Fruit is gluten-free. You can eat reular bread and buy some for only him. Does he have celiac? But if you are going to make any change make sure he gets enough sleep and get rid of sugar and chocolate. That is worse than food dyes, I think.

0

Share this post


Link to post
Share on other sites

Just curious if removing starchy vegetables makes a difference also? If you go by the glycemic index starchy veggies like white potatoes are worse than sugar. The Harvard chart lists many more foods, this is just a snippet.

http://www.health.harvard.edu/newsweek/Glycemic_index_and_glycemic_load_for_100_foods.htm

FOOD Glycemic index (glucose = 100) Serving size (grams) Glycemic load per serving

VEGETABLES Green peas, average 51 80 4 Carrots, average 35 80 2 Parsnips 52 80 4 Baked russet potato, average 111 150 33 Boiled white potato, average 82 150 21 Instant mashed potato, average 87 150 17 Sweet potato, average 70 150 22 Yam, average 54 150 20

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,693
    • Total Posts
      921,770
  • Topics

  • Posts

    • Thanks for replying. You've been very helpful and given me some ideas of trying a few foods in small amounts. I wish I had rotated food months ago then it might not have got so bad. Thanks again and I wish you well.
    • Until my recent blood test results I've been having cinnamon and mint tea in the mornings, which seemed to have a positive effect calming the digestive system (and tastes good too!)  After the first step of diagnosis with high Iga TTg I took at look at the cinnamon sticks I make the tea with and it says "packed in a factory that may contain wheat, corn etc. etc." so that I guess would sound alarm bells for many I reckon. That said I'd imagine the way most of these herbs and spices are harvested isn't exactly gluten-free friendly yet I've seen quite a few recipes using it. How are people getting around this as I can't see any specific gluten-free certified cinnamon products out there? Really could do with my tea back P.S. I also have chamomile tea using the raw flowers which may have a similar background but seem to be less of a risk somehow?
    • If I do have to go back on gluten for a bit it'll at least be a temporary relief from the withdrawal symptoms (or at least what I hope are just withdrawal symptoms). Today's returning malady is acid reflux, something I'd thought I'd seen the back of recently. Really need that to calm down as PPIs the doctor gave before were evil medication and caused 10x more problems, possibly the worst I've ever felt whilst on those so won't be going back there! Although the scales seem to have stabilised in terms of weight loss in myself I feel like I'm wasting away at present, what with the random pulling sensations in muscles and tender head area I'm just scared for what other illnesses may be laying in wait related to the celiac genes  Think I'll head back for the ESR and CRP blood tests next week as the shoulder and temple pains are really worrying me right now, could just be the gluten intolerance but the other options are terrifying if not caught early. So much uncertainty, apart from the fact that none of this ever gets fully better (if at all)...
    • You're welcome! Good luck! And if you get nowhere there, remember, the higher you go, the nicer they get. Skip straight up to the top brass.
    • I'm sorry you've been having such a rough time.  I'm thinking you may have accidentally ingested something containing gluten, and that's what caused your reaction.  A lot of people will react quite severely to even a tiny bit of gluten.  That's why there is so much on here about avoiding cross contamination.  Even though you've been diagnosed with NCGS, you still need to live as though you have actual celiac disease, and be very careful not to cheat.  Your body will punish you for it.  :/  In the meanwhile, nurture yourself kindly and gently, just as you would after a severe bout of food poisoning or intestinal infection.  Comfort foods, like broths and soups and smoothies.  You might want to avoid lactose for a few months too.  Sometimes we lose our ability to digest lactose when our intestines are damaged and vulnerable like yours is right now.   And remember healing takes time.  So does learning the gluten free lifestyle.  Expect some setbacks occasionally.  You WILL get better!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,698
    • Most Online
      3,093

    Newest Member
    kkreuz
    Joined