Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Comprehensive Antibody Profile
0

4 posts in this topic

Went to a new GI today, was not to impressed. They ordered a celiac disease comprehensive antibody profile to be done an schedualed me for a endoyscopy in a month. I tried to explane I had read on the university of Maryland celiac disease research center website that I needed to be eating gluten for some time before a blood test would be accurate. They no listen !!! Maby I'm missing something, would that blood test help? Or should I change docs?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hmm, it would be interesting to know what their thinking is. Sometimes a follow up test every 6 months for antibodies is suggested. To make sure antibodies are going down from the initial diagnosis levels. If you are feeling better I suppose that is a good way to satisfy curiosity. There's quite a bit of info on follow-up testing in this article by Peter Green.

http://www.celiac.com/articles/40/1/Initial-Assessment-and-Follow-up-Care-of-Celiac-Patients-by-Peter-Green-MD-summarized-by-Sue-Goldstein/Page1.html

0

Share this post


Link to post
Share on other sites

I"m self diagnosed so there is no initial diagnosis levels. I just went in to try an get some vitiman levels checked, doc said he was a GI an did not do vitiman test. I never mentioned celiac, but I should have never put down my gluten, dairy,soy,corn allergys. For a first visit knowing me for less than 5 min and schedual blood work, endoscopy, ct scan I"ll stick with my first impression an change docs.

0

Share this post


Link to post
Share on other sites

Your regular GP can order the vitamin level checks for you. Have you seen improvement on the diet? If you are still having issues then do find another GI that is more celiac knowledgeable. If you are doing well on the diet and symptoms have resolved then IMHO your regular doctor should be able to handle the vitamin and mineral level checks.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,094
    • Total Posts
      920,328
  • Topics

  • Posts

    • I sit in an ice bath after a long training (running or riding).  It speeds my recovery, I swear!  
    • Oh, one last thing..... ICE PACKS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! You'll feel better. Hey, you have a tub? Want to join the polar bear club in the privacy of your own home? Fill that thing with cold water & dump a 5 or 10 lb bag of ice in there. I'm serious.
    • I don't care what she specializes in, you MAKE her do a dh biopsy. I'm not being mean. Please understand that. It's just that I've heard this a thousand times before - no, a thousand one hundred!  Here's another thing ~~~ get her to order a eTG aka TG3 serum (blood test). That is specific for dh.  Oh gosh! Don't you just hate the ones in your ears???!!!!! Nah, we hate ALL of them! I swear though, when those suckers get going in & on your ears it just drives you stark raving mad!!!!! You've convinced me there is more than ample reason to strongly suspect it's dh.  Here's a tip..... the patterning the lab will be looking for is very easily destroyed by scratching so pick you out some prime places that are new & maybe, just maybe you haven't scratched them to smithereens thus far, and make some super thick gauze bandages & place them over those places so even if you reach to scratch (& we know you will! right?) the gauze will remind you & hopefully help to protect it. The biopsy needs to be taken from a clear area adjacent to a fresh lesion. No steroid creams okay? Not till after the biopsy. BTW, if she wants to put you on steroids after the biopsy be warned, 99% of the time there is such a backlash of the rash the moment you go off the steroid that you will wish you were never born. A dx of dh IS a dx of celiac disease & no further testing is needed. Please come back & update us after you see her tomorrow. In the meantime you have my heartfelt sympathy. Take those cold showers & grit your teeth. Hopefully you will soon be able to go gluten free & start getting some relief.   
    • Extremely itchy and keeps me up at night to the point I was taking cold showers at 3am.   Currently my ears, scalp, feet, and chin just will not stop itching, my elbows have the rash and look purple. Eventually the rash will heal and leaves scars that seem to be purplish in color. I have not tried gluten free diet yet.  Waiting for all the testing to stop.  The new allergist i am seeing tomorrow specializes in skin disorders.
    • I am so sorry for your suffering.  Your story drives home the point that having Celiac Disease drives us all to do our own research and try to find a doc to help--if we are lucky. I wish you a speedy recovery and my most earnest wish that you are NEVER cross-contaminated again! You are a real trooper (little comfort, I know).  Wish I could do more.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,129
    • Most Online
      1,763

    Newest Member
    kierra.morris11@gmail.com
    Joined