Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Gluten Sensitivity


Mika11

Recommended Posts

Mika11 Newbie

Hi, I'm confused as to whether I may have a problem with gluten. I have had this weird rash on my face that won't go away and it's not DH, just looks like eczema and it burns and itches so bad. It seems to flare up every other day. I got tested for celiac and it was negative. I've never had this problem before. It started last summer when I went from a typical American diet to a healthy one with plenty of salads, fruits, veggies and veggie juicing. I thought maybe I was allergic to something I was juicing but when the rash would not get better i switched back to my old diet for the most part. Now I have a sensitivity to eating wheat products (I think). I tested negative for all allergies and none of the creams from the dermatologist work. But my rash is not DH and I have no stomach issues. Can a gluten sensitivity be triggered by switching to a healthier diet?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

It depends what one means by "healthier."

In a lot of the mainstream publications right now there are the typical food writers pushing what is considered a "heart healthy" diet for men who are prone to coronary artery disease, which is a diet which is high in grains, vegetables, and fruits, and low in fat, animal products such as dairy, and meat. A lot of registered dietitians will also push this sort of diet for "weight loss." They are typically high gluten diets with 5 or more servings a day of it. When the USDA was pushing that "Food Pyramid" eating plan it was 10 or more daily servings of grain. If you have a tendency towards gluten intolerance, celiac, and/ or a tendency towards insulin resistance, this sort of diet will make it worse, especially if you are also a bit hypothyroid (low).

Unfortunately one can have a gluten sensitivity and not have it show up on any tests whatsoever, other than eliminating it from the diet completely, and seeing what happens. One can also have a topical reaction going on at the same time to the wheat family, or almost anything else, like oats or soy in soaps, which is made worse by the original reaction to gluten. Sleuthing this stuff out takes a lot of patience. There are still a few things in commercial cosmetics and toiletries I've never figured out, but I've had horrific reactions to some products, and none at all to others.

A rash on your face, to me, screams that you're not only eating something that is sensitizing and priming your whole immune system, but that something ELSE somewhere you're coming in contact with is making your face break out. I would be looking at all sorts of soaps, especially the liquid soaps with the antibacterial chemicals that one washes one's hands with in public or in some work settings, I've had a few jobs in the past where, because of this crap being in the dispensers in the restrooms, and then inadvertently touching my face, it was an ongoing disaster. If I use a public restroom, I really rinse my hands, using as little soap as possible, then rewash my hands as soon as I get home, and I have to make sure to periodically clean off my vehicle's steering wheels. I've also been known to carry a little bit of soap with me in my purse on trips, just to avoid this whole problem. And this is just one example of a hypersensitivity reaction, I'm not as bad with it now, because I'm avoiding gluten.

Another example may be you have a family pet which is eating gluten, and then licking itself or you, or jumping up on the bed, and spreading it around that way. If you have cats, for example, you may want to make sure the cat is not eating anything that you react to, especially if the cat sleeps in the bed.

Another place to pick up something you don't want, is on a commonly shared keyboard. <_<

With your hair, you might try just rinsing it with water and diluted baking soda, then rinsing it well again. Then using a diluted pure apple cider vinegar and water rinse (7 parts water to 1 part vinegar) to detangle it, and then, if you need more moisturizer, a tiny bit of pure coconut oil or pure shea butter. This is about as an allergy free routine for hair that can be done, so you can see if it is a care hair product which is doing this. (don't forget to wash your pillowcases and towels in a hypo allergenic type laundry product, and rinse them well).

Link to comment
Share on other sites
  • 2 weeks later...
jhol Enthusiast

Hi, I'm confused as to whether I may have a problem with gluten. I have had this weird rash on my face that won't go away and it's not DH, just looks like eczema and it burns and itches so bad. It seems to flare up every other day. I got tested for celiac and it was negative. I've never had this problem before. It started last summer when I went from a typical American diet to a healthy one with plenty of salads, fruits, veggies and veggie juicing. I thought maybe I was allergic to something I was juicing but when the rash would not get better i switched back to my old diet for the most part. Now I have a sensitivity to eating wheat products (I think). I tested negative for all allergies and none of the creams from the dermatologist work. But my rash is not DH and I have no stomach issues. Can a gluten sensitivity be triggered by switching to a healthier diet?

hi, im relatively new on here, not diagnosed with celiac,

just replying because ive had a rash on my palms for over 16 years- little small blisters that crust over and then peel. my hands are always dry and flaky. anyway about a year ago i got a small red rash on the side of my face near my hairline. i thought i,d left my hair dye on a bit too long and burned my skin. but it never improved. its slowly spread over the side of my face to my cheek,then forehead and chin, over my nose and basically its all over my face now. just recently it started to get pimply and itchy. i too dont know whats causing it and it doesent sound like d.h.. when it first started i stopped usind all my usual face products, so no smoothing, tightening,anti- wrinkle anything!! and tried to find the mildest soaps with fewest ingredients and chose a basic vitamin e totally natural moisturiser and oil. the rash hasnt cleared!!!

i dont know if anyone knows but i thought i read somewhere that most vitamin e is derived from a wheat source - ive googled so many things on here the last few months, that i cannot remember where ive read it . does this sound right or not?? id hate to think id made it worse by goin "natural"

hope you find an answer mika, if i find anything out i,ll let you know

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lasthope2024's topic in Food Intolerance & Leaky Gut
      8

      This forum might be the last hope I have in my life. Please I beg you

    2. - BluegrassCeliac replied to lasthope2024's topic in Food Intolerance & Leaky Gut
      8

      This forum might be the last hope I have in my life. Please I beg you

    3. - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    4. - Nacina posted a topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    5. - trents replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,069
    • Most Online (within 30 mins)
      7,748

    angie78
    Newest Member
    angie78
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
    • trents
      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
×
×
  • Create New...