Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiacs & Lactose
0

2 posts in this topic

I'm new here and hoping for some advice.

I was diagnosed with Celiacs in November 2011 and have been following a gluten free diet since December 2011. I have never reached out to anyone other than my GI/family doctor or nutritionist. I'm looking for advice and maybe support from other members that have Celiacs as well as my newest diagnosis of being lactose intolerant.

I follow my gluten free diet faithfully. When I first found out I'm a celiac I did end up eating gluten not knowing as I was just learning. I am quick to react to any amount of gluten that gets in my system.

I managed to lose 20lbs of the weight I had put on because of my celiacs and have been doing great with this disease. Until recently, I noticed that I have been putting on a few pounds, my stomach is bloated and I get pains, and then I'm in the bathroom. I seen my GI and found out that I am also lactose intolerant.

So, this is where i'm having a hard time. I have omitted the gluten and the lactose but yet anytime I eat I have to go to the bathroom. I'm bloated and have gas pains. I feel horrible and have no energy.

I guess I'm hoping someone can shed some light on this, could there be something else going on or is this "normal"?

Looking for some advice :)

Thanks for reading.

About me: 31, Celiac Disease, Lactose Intolerant, Thyroid Disease, no longer anemic as I have iron infusions.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome Cece!

I see that you have been following to the best of your ability the gluten free diet for a year, and that you can now recognize when you have been glutened. Those little glutenings can keep the antibodies activated so should be avoided at alll costs. Unfortunately, milk products can contribute to the gut damage too and it is good that you have cut them out. The enzyme to digest the lactose in milk is produced at the tips of the villi which in your small intestine which are damaged by the gluten. The good news is that, with time, your gut will heal and you will probably be able to digest lactose again. But the healing process does take time and patience is a celiac's best friend :)

Your reactions to eating often depend on the extent of the damage in your gut. Many of us on the forum either use or have used probiotics to help repopulate the gut with good flora to aid in digestion. If your food is not being thoroughly digested, firstly you are not getting appropriate nourishment from it, and that means you may also be low in essential nutrients. Has your doctor checked your vitamin and mineral levels and are you taking any supplements? It is especially important to check Vit. D so you don't develop osteoporosis and B12 to combat anemia. Ah, I just reread your post and you have iron deficiency anemia and thyroid problems which are common in celiac disease.

Another common organ of attack is the pancreas which may not be producing sufficient enzymes for the digestion of your food. Many of us also take digestive enzymes to help with this. I found it best to use the type where you take one with each meal.

So yes, it is completely normal to continue to have digestive problems until you heal. Your rate of healing depends on your particular body, the amount of damage, your compliance with the diet and, often, the supplements we take to help our gut.

I wish you improved health and steady progress. Have a festive holiday season and ask any other questions of our members that come to mind.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,635
    • Total Posts
      918,420
  • Topics

  • Posts

    • Celiac Night Vision
      Scotomas returned for the 7th year on the 24th February despite liver pâté and have varied since with 3 brief gaps. I have always had migraine, latterly occurring more than once a month, usually of basilar or retinal type with aura (but no headache) lasting less than 5 minutes. A recent bout looked like a TIA and led to a CT scan which revealed clear major vessels but old cerebellar infarcts, so maybe migraine accounts for poor memory too. The scotomas are very different from migraine eye symptoms - stationary, irregular in shape and lasting hours. I think food is excluded as the cause but seasonality, gaps, variation with wind direction and rain mean that pollen is still a possibility. Scott Adams did a marvellous thing founding this site so celiacs could enlighten each other. Please post if you have anything like these scotomas!
    • healthy bread recipe?
      Eat what you eat at lunch or dinner.  I am happy with a fried hamburger patty, fish, or chicken (I know it needs to be fresh or frozen for the histamine diet).  Yes, I eat veggies for breakfast!   Wanted to add that I was glutened in July (GI ordered follow-up antibodies testing and it was high)  and it took me 3 months to recover.  Picked up a histamine intolerance and became lactose intolerant again.  Luckily, when I healed, the histamine thing went away (or  Diminished ) and the lactose intolerance resolved.    I was getting hives, rashes and itching (not DH), vomiting, etc.  So, her intolerances may be just temorary!  
    • Could this be celiac or is it really just IBS?
      Are you sure you had the complete celiac panel?  Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)     -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)   Here is more information from a reputable site (and not just info from a crazy cyclist on the Internet!):   http://www.cureceliacdisease.org/screening/   IBS, in my opinion, means "I Be Stumped!"  It is just a cop out!  So is the "stressed" thing.     I also had my GB out too.   It was a non-functioning (0% per HIDA scan), no stones, and rotting.     You seem to have many celiac disease symptoms.  Verify (obtain copies of your lab tests) to see if you got the complete panel. You might just have had the TTG IGA and TTG IGG tests.  Good for screening but it does not catch all celiacs.  My TTG tests are always negative even on follow-up testing.  The DGP test catches a positive for me.  My biopsies revealed moderate to severe damage.  If my celiac-savvy GI did not order the complete panel, my celiac disease diagnosis would never have been caught.   if celiac disease is really ruled out, research mast cell disorders.  The flushing and GI upset sound familiar!  You can have more than one thing going on!  But I would put my money on celiac disease!            
    • tightness in throat after eating gluten?
      I've noticed that if I accidentally eat gluten, for the next few days I have this tightness in my throat. It feels like my throat is closing. It's not constant, but comes and goes throughout the next 1-3 days. My hands have also been itchy. Is this a normal symptom for celiac or gluten intolerance, or could it possibly be an allergy? I haven't been tested or diagnosed with celiac or anything yet, so I'm still not entirely sure. All I know is that gluten makes me very sick.. But especially with the itchiness and tight throat.. I'm allergic to acetaminophen and my reaction is similar, so it just makes me wonder. What do you think?
    • Diagnosis and Test Results
      I am sorry that you are sick!  😔.  I think you need to find out which celiac antibody tests were given.  Often just the TTG Is ordered for initial screening.  This test catches most, but not all celiacs (like me!)   You also need to see if they gave you the igA deficency test too.   Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)   -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)     http://www.cureceliacdisease.org/screening/ You can go gluten free, but knowing if you have an autoimmune disease is helpful.  celiac disease is genetic (you have the genes, but so does 30% of the population and that's why the gene test is used only to exclude celiac disease and not diagnose it).   All family members should be tested even if they are symptom free.   I hope you figure it out and I am sorry that you had such a horrible experience.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,726
    • Most Online
      1,763

    Newest Member
    bitsunderground
    Joined