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Very Hungry
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11 posts in this topic

Hey everyone!

I’ve been gluten free for 4 months now( soy and dairy free for 2.5 months), and though I struggled a lot at first, things finally seem to be settling down. I do have a quick question for everyone: now that I have been gluten free for 4 months, I am hungry all of the time! I never used to eat much before going gluten free, and even for the first few months gluten free I didn’t have much of an appetite. I lost about 10 pounds. Now, if I don’t eat a lot of calories and a lot of carbs, I get dizzy, irritable, weak, and exhausted. My legs also cramp up, which is weird. It tends to get worse if I consistently eat fewer than 2500 calories per day; if that happens I get really sick and have to spend the whole day eating to correct it.

I have a doctor’s appointment in a few weeks, but if this has happened to any other celiacs, I would love to know.

Thanks!

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Vitamin deficiencies?

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I am anemic and vitamin D deficient, but taking supplements! Everything else looks good.

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I've only been gluten-free for 6 weeks but I'm feeling the same way....it's really annoying!

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Hi- I know how you feel! I found out I had Celiac Disease in July, so I've been gluten free about 5 months now. I am constantly hungry, even after I eat a meal I feel starving. I went from 140 lbs to 110 currently. Dr said I would level off with my weight, but so far keep losing pounds. Bloodwork is fine, no deficiencies.

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I'd add potassium, magnesium, and chelated manganese to the supplements you're taking. They may alleviate the cramping.

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I was hungry all the time after switching to gluten-free. I have always been low-iron. My hematologist prescribed intravenous iron. I'm not hungry all the time any more. I have more energy than ever and I don't chew ice all the time!

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I was hungry all the time after switching to gluten-free. I have always been low-iron. My hematologist prescribed intravenous iron. I'm not hungry all the time any more. I have more energy than ever and I don't chew ice all the time!

I feel like I am STARVING all day every day! My iron infusions are in 3 weeks and you have given me hope that they may help aleviate this insatiable hunger.

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Eat more protein.

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I ran out of iron supplement lately and got insatiable appetite. I don't understand all of it, but I think I have hypoglycemia issues going along with it. Maybe it is just because I have been succombing to eating alot of fruit.

Diana

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One hallmark of hypoglycemia is feeling hungry again 1-2hrs after eating. Especially if those meals/snacks are high in carbs.

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    • egs1707. Are you in Canada?  It's NOT a good idea to go gluten free between now & the GI appt. and here's why.... MOST of us have MUCH stronger reactions to gluten when we go back on it for the endoscopy. A lot of people have had such strong reactions that they have been entirely unable to complete the challenge and have to call it quits. This means they never get an official dx. It's your call, you make the choice. However, I will say that you don't have to eat a lot of gluten, a couple saltines or a slice of bread per day. 
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    • At the moment it's microwave rice packets as it needs to be something easy for lunch at work. What do you choose for breakfast? At the moment I have gluten-free porridge oats with fruits but also seeing oats are a bit of a gamble in the early days. Trying to figure out how long a reaction takes to show up i.e. if I feel ropey later in the day is it really lunch as I'm blaming at present or actually is it something from the morning or even night before? The food is the toughest bit for me right now; wasn't that great with it before so will need plenty ideas from you good people... seems I'm in the right place though   
    • I know what you're going through - it's that grieving process and it's tough.  I was diagnosed in 2013, and aside from an occasional pity party, I don't look back. I have my restaurants where I feel safe, I have the food I know I can eat, and I get on with my life.  I'm lucky that I live in a big city with lots of options, but you can make this work, and you will feel better and once you do, you'll stop grieving.  The people on this site helped enormously. It is tough in the beginning to know if you've been 'glutened' vs. just going through withdrawal.  For that reason alone, it's best to avoid restaurants for a little while and be careful at home - just to be sure what's happening.  Eventually you'll be able to get back to your version of 'normal'.  Oh, I also have hypothyroid/hashimoto's.  No big deal, I take synthroid. Quinoa, eggs, nuts and beans for protein.  You don't have to go crazy on the cooking.  Just eat a lot of whole foods.  There are a lot of complicated recipes out there, but now may not be the time.  Rice noodles in veggie bouillon - easy and cheap.  gluten-free pasta with olive oil, parmesan and garlic - easy.  I eat a lot of rice and have never had a problem - you're not getting it out of one of those bulk bins, are you?  That could be contaminated.  Go with packaged.  Do you have access to the Macro Vegetarian brand of prepared rice dishes (in the refrigerated section).  They have several that are gluten free, they're delicious heated and with a little gluten-free soy sauce.  They're my go to on days I don't want to cook. Good luck!  
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