Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

No Symptoms
0

7 posts in this topic

Hi everyone,

I'm new to the forums and new to Celiac. I was diagnosed a couple weeks ago, by chance actually. I learned through blood tests and an ultrasound that I have Hashimoto's thyroiditis and while at the endocrinologist, she saw that I was also B-12 deficient. She said she suspected Celiac (apparently many with Hashimoto's have celiac) and ordered another round of bloodwork. All the tests came back indicating Celiac. I really do not have symptoms of it though. She wants me to go gluten-free but said I do not need to see a gastroenterologist or nutritionist, nor does she think I need biopsy of my small intestine. My general practicitioner thinks I should though. Which should I listen to? I'm not keen on the idea of a biopsy and am struggling with the gluten free diet, so a nutritionist would probably be helpful. Also, if I don't have many symptoms (occasional bloating, gas) is there much damage being done when I eat gluten? (I'm sure there has to be some b/c of the B-12 deficiency).

Also, I get the dermitis herpetiformis rash occasionally, but always assumed it was a reaction to a new lotion, etc. I did not realize what it was until I was researching Celiac, saw pics of it, and thought "Wow! I get that rash!" lol

Thanks for any input!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hello, and welcome to the board.

Yes, some of the lucky ones (or unlucky depending on how you look at it) do not have severe symptoms to indicate that they should not eat gluten. Nevertheless, if you are celiac it is still doing its damage, witness your Hashimoto's and nutrient (B-12) deficiency, since it is a disease of malabsorption.

Whether or not you have a biopsy is entirely up to you. You have bloating gas, the thyroid problem, the nutrient problem, and DH, and if you continued to eat gluten who knows what other problems you might develop (the possibilities are endless but I would think those are enough :D ). Doctors always like the biopsy because it has always been the "gold standard" of celiac diagnosis and confirms the blood work. However, some celiacs actually have negative biopsies yet still have the disease. And some with positive biopsies have negative blood work. So it's a bit of a crap shoot. If you feel you can stick with the diet as you are diagnosed now, and do not need the biopsy for your doctor to certify you as celiac should you need the designation in the future, I would personally not bother with it. Others would say go ahead with it because you may find something else, just as you accidentally found celiac. But since you do not seem to have many GI symtoms it probably is not necessary. If your insurance will cover it it is really not a big deal test and could put your mind to rest and/or give you some indication of the amount of damage you have (to make a believer out of you :P )

As for adjusting to the diet, read the Newbie 101 thread and do some other reading on here about deglutenizinng, avoiding gluten traps, etc. If you still feel you need a nutritionist then get a recommendation for one who is familiar with celiac disease. If they are not they are not going to be of much help to you.

Best wishes for your new gluten free lifestyle. :mellow:

0

Share this post


Link to post
Share on other sites

I personally think it will be easier for you to accept with a definite answer. Otherwise with out truly knowing, it may be too easy for you to cheat!

0

Share this post


Link to post
Share on other sites

If you have DH they can take a biopsy sample of the clear skin right next to a lesion to test it for antibodies. Confirmed DH is confirmed celiac, as only celiacs get DH. Sometimes people with DH have fewer intestinal symptoms, sometimes not. You are right, Hashimoto's Thyroiditis and celiac are associated, several members have both. For that matter, people with celiac have a higher chance of getting many other auto-immune diseases. Do check out the threads on DH, as there are additional diet concerns for people with DH, like iodine.

0

Share this post


Link to post
Share on other sites

Please read this thread, and then check out all of the threads in the DH section. Whether or not you are doing damage to your gut, if you have DH and keep eating gluten, this is what can happen to you.

http://www.celiac.com/gluten-free/topic/98656-pictures-of-dh-rash-biopsy-site-and-skin-shedding/

I would say that if the bloodwork came back indicating celiac, especially with the other problems you have, it sounds like you DO have it. Please, take it seriously. A nutritionist MIGHT help, but you will also get great info here on how to control your diet. It isn't easy at first, but after a while it just becomes second nature. We can help you. :)

0

Share this post


Link to post
Share on other sites




Thanks for everyone's input. I will look around the site more, especially the links some of you have provided. I do need to take this more seriously and buckle down with the diet. I am greatful I found this forum :-)

0

Share this post


Link to post
Share on other sites

Hang in there with the diet, the first couple of months are by far the hardest as you get used to what you can eat. Once you get it figured out, it really is pretty easy to cook gluten-free. Going out to eat is trickier but not impossible.

It is important to be totally gluten-free to get the full benefit of the diet. If you are consuming gluten, you will have a state of inflammation in your body which could cause other autoimmune diseases to appear... it could have caused your hashimoto's to appear. I have hashis and ITP which I think could have been caused by celiac disease, or at least caused to manifest earlier than it might have otherwise.

You might be pleasantly surprised by improved health in areas that you don't realize are affected by gluten. i have GI symptoms, they weren't extreme but they were annoying, and those cleared up pretty quick. I was happily surprised when my migraines disappeared though, up until my diagnosis, I was having migraines about half of the time... it's lovely to have those gone.

Best wishes to you.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,336
    • Total Posts
      920,446
  • Topics

  • Posts

    • It starts as a piercing itch and the skin turns reddish with a few tiny red bumps. Then tiny watery vesicles appear and itch like crazy. The whole process from start to finish is about 3 weeks and the lesions leave a purplish skin tone and scab. I get them on the back side of both knees near the bend.  Sometimes it's just a few scattered vesicles in the same area. I've had Drs say eczema or herpes. My next step is to find a dermatologist familiar with dh. Thanks for the input.
    • DH can look like that but other things can as well. It would help if you described the way it acts/presents. You can get a dh biopsy. Read threads in this section to find out how the biopsy is done correctly. 
    • my celiac was triggered by pregnancy.  had no clue.  symptoms creeped up (started with indigestion, deemed as 'colitis' or 'ibs') but eventually all the ones you mentioned above all joined the party.  sounds like you are headed in the right direction.  one of the points of diagnosis is the reaction to the gluten-free diet.  keep digging.  half the people on here don't have a firm diagnosis (science really needs to catch up with this disease)  and a false negative blood test is fairly common, for whatever reason - if you've not been eating gluten every day for like 8 weeks, it may not detect antibodies, which is what these tests are measuring.  sorry you're having this dilemma!  hope you find some answers.
    • tom & chee!  good to know   they grill the sandwich on a separate pan?  or do you just order soup and salad.  so cool to find more places to eat out!!
    • Hi everybody,  I have had symptoms of Celiac since mid pregnancy and they have gotten worse over the last 5 months post partum. I have constipation, periods stopped, extreme fatigue,  joint pain, weak muscles, dizzyness, migraines, light sensitivity,  pins and needles in hands and feet, elevated TSH, depreason and anxiety. Was put on thyroid meds but it didn't help any of my symptoms. My doctor told me to try gluten free and reintroduce it. I tried it for 2 weeks and started feeling quite a bit better, then reintroduced it and felt worse than ever! It's definitely a gluten problem. She suggested I get the Celiac panel run so I got tested for Ttg iga, DGP igg and EMA all came back NEGATIVE! by this point I had only reintroduced gluten for a few days. She said my antibodies shouldn't go down by much in this time frame. Should I push for a referral to a GI doctor? I don't know why I feel the need for diagnosis? Probably my mother in law laughing when I said I can't eat gluten anymore and she tried to offer me things like donuts, saying it's just a little.  She just doesn't get it. So now, do I suffer for 6 weeks to get the biopsy or just stop eating gluten and be done with it.  I have also noticed while introducing new foods to my baby that he throws up whenever I give him anything wheat based. I doubt they can diagnose a baby and I refuse to damage his intestines for a diagnosis.  Maybe I should get my daughter tested as well? She is 3 and has been complaining of upset tummy and is frequently constipated. She is growing well though but is also quite thin. She is not a big eater. She may be constipated because she holds it. She is afraid to poop on the potty. Since I have had symptoms for only about 10 months, could there not be much damage yet? Sorry for the long post! 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,395
    • Most Online
      1,763

    Newest Member
    olenalrz
    Joined