Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Chronic Non-Specific Dermatitis...
0

10 posts in this topic

...was the result of my son's skin biopsy. Which quite frankly, I knew before I even took him to the doctor's office. I was kind of hoping to clear up the 'non-specific' part! So needless to say a little frustrated. And a little mad. When I spoke to the arrogant doctor (as previously documented on this forum :-) ) we discussed that he would take 3 samples - two blisters and a clear bit. When I took the dressings off, I saw he took the first two only. So I'm wondering if that's what's led to this result? Is it possible that such an inconclusive outcome is due to just taking two blisters and no clean skin?

0

Share this post


Link to post
Share on other sites


Ads by Google:

The biopsy HAS to be taken from CLEAR SKIN ADJACENT TO AN ACTIVE LESION. So the 2 biopsies he did don't count. :(

I feel like the arrogant doctor did this on purpose.

0

Share this post


Link to post
Share on other sites

I had wondered about the sabotage thing myself....it sounds horrid but wouldn't have surprised me. Especially since he told me specifically he would take clean skin and then didn't. I'm kicking myself for not actually watching him - but I had to turn away. And we had had the 'take it from the clean skin' discussion immediately prior so I thought we were sorted....*sigh*

0

Share this post


Link to post
Share on other sites

Yes, he scammed you--what an arrogant, arrogant doctor! Is there any recourse? Either you need to have a new derm do it over again or insist that the first one do it correctly. Bring in written information if you need to--this man needs to be educated!

0

Share this post


Link to post
Share on other sites

Problem is jlaw is in India so I don't know that there is much recourse for her over there. :(

0

Share this post


Link to post
Share on other sites




I have a sneaky technique - I'd go back and say there seems to have been a mistake and I know you were very keen to get a biopsy on clear skin as we know how important it is, so we can sort it out quickly today. Or something like that.

I had forgotten that you were in India with a very traditional doctor. Sometimes getting what you want without having the other person lose face is more important than winning an argument. You could even say you know you were upset on the day and are sorry you distracted him. Or something.

I have had to be sneaky and fawn a bit to get my son tested.

I hope you find a way. Go Mum, go!

1

Share this post


Link to post
Share on other sites

Good tactic mindwarp! It's worth a shot jlaw.

0

Share this post


Link to post
Share on other sites

Thanks all, and Mindwarp, you sound like the kind of person I wish I was more like! You are absolutely right, especially in this culture where everything is done in a round-a-bout way, as opposed to talking directly. Still, I do have a contact for another reputable dermatologist in this city...my poor little brave boy. Should not have to do this again...

Thanks all for your support

0

Share this post


Link to post
Share on other sites

Hugs for your brave little boy!

0

Share this post


Link to post
Share on other sites

Great if you can get him to another dermatologist. Sorry you have to see him go through that again. When I took my son for his skin prick gets and blagged a celiac panel I was great being strong while with him, but blubbed and shook once dh could take over. Just to say I feel for you.

Good luck, sounds like you are doing a great job x

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,906
    • Total Posts
      919,578
  • Topics

  • Posts

    • Kidney disease question
      GFR ranges are very strange.  We went through this with my husband.  Did you notice in Icelandgirl's link that there is no range that is considered good and normal?  I just had mine tested and the report said that normal was > 60.  As your report says, your value is only a problem if there is other evidence of kidney damage.
    • Kidney disease question
      Hi Matt I'd love answers to this one too. My own levels have varied since I have been monitored, over the last three or so years.   I asked my GP about this and I seem to recall she said to me that levels of hydration affect this number.  i.e. when my figures were in the 90s it was because I was super-hydrated. When my numbers were in the 70s she wasn't worried, either! I'm hoping someone with a better knowledge of these matters will chime in but the last time I was tested my gastroenterologist was very pleased with my kidney and liver function numbers - so it seems to me that when my own numbers were in the 70s on a couple of occasions I must have been  less well hydrated when I had the test those times? And that these numbers are therefore subject to variation.     
    • New to this gluten-free life
      Kareng is correct.  There are also a number of good reference books on celiacs and gluten free issues.  Also several magazines.  The main thing is to find out the hidden and unusual sources of gluten, and also to be very careful when eating at restaurants.  I got glutened quite a few times at restaurants before I learned to triple check and began to find safe places.  Good luck. 
    • Kidney disease question
      Hi Matt, Since celiac impacts the whole body...I think kidneys are affected.  I have kidney stones and they are super fun(not) and my urologist says that it's fairly common with celiac and malabsorption.  I don't know specifically about kidney disease, but when I was in the hospital passing my stones...prior to passing, my GFR was around 60.  A few weeks later when my doctor did bloodwork it was 87.  Here is some info that may help.   https://www.kidney.org/atoz/content/gfr
    • Most New Celiac Patients Show Normal Bone Density
      Some doctors recommend that patients with newly diagnosed celiac disease get scanned for bone density. Several researchers recently set out to assess the bone density results in a cohort of patients with celiac disease. View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,954
    • Most Online
      1,763

    Newest Member
    Olivia
    Joined