Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

What Aspects Cause What Symptoms?
0

3 posts in this topic

I have tried to find info on this and have somehow failed in my endeavor, so I'm hoping someone can link me to something.

My question is this: Which of the symptoms of celiac are caused directly by reaction to gluten, vs. which are caused by secondary factors resulting from long-term gluten damage (ex. having a damaged digestive system, malabsorption/vit deficiencies/etc.).

It seems like some of this is known but some is not, and like there's also overlap (quite a bit, actually), and there are certainly outside factors which are commonly associated that end up confounding the question further, so I know this isn't as simple a question as it seems. I am curious about what the current understanding is, though.

1

Share this post


Link to post
Share on other sites


Ads by Google:

My current (and personal) understanding is that reactions to gluten tend to be suddenly acute (D or C, aching bones and joints, migraines, dizziness, foggy thinking, swelling of the eye tissues, stuffy nose, etc., flu-like symptoms), whereas symptoms caused by malabsorption/nutritional deficiencies are more chronic: iron anemia, B12 deficiency (neuropathy, breathing difficulties, fatigue, etc.), night blindness, infertility, muscle and tendon issues, etc. There can also be further problems caused by auto-immune diseases that have been spawned by celiac, such as diabetes or thyroid problems. You should be tested often for these conditions and for nutritional deficiencies. I take Country Life Natural Vitamin D (which is easily absorbed because it contains Vitamin A and medium-chain triglycerides), a Vitamin B Complex plus a sublingual B12 supplement, chelated manganese, and a magnesium/calcium complex. Each person has individual needs, though, and you should establish what those are in your particular case.

Some symptoms may never resolve. In my case, I still have difficulty clotting due to my inability to absorb Vitamin K and I've been nightblind since the age of 11 due to malabsorption of Vitamin A.

0

Share this post


Link to post
Share on other sites

In addition to Rosetapper's excellent thoughts, may I suggest reading a copy of

Recognizing Celiac Disease by Cleo J. Libonati.

I think she really wrote it for health practitioners, but it is in layman's terms and I found it incredibly informative.

It helped me understand what had gone so horribly wrong in my own body from long unDXed celiac disease.

(all of the 65+ symptoms/conditions I suffered are in there)

It is a detailed explanation of what happens in the GI tract, the rest of the body and the resulting symptoms that occur from malabsorption. She explains vitamin/mineral deficiencies in plain English and how they can resolve.

Associated AI diseases and other complications are also discussed.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,502
  • Topics

  • Posts

    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined