Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Maltodextrin
0

7 posts in this topic

Does anyone else have a problem with maltodextrin?

I'm in the UK and have had pretty severe 'D' for days now. I think I've traced it back to ingesting products with quite large amounts of maltodextrin (it was the second listed ingredient, behind water). I'm in the UK so it's wheat-based maltodextrin.

Will definitely avoid from now on! I'm a VERY sensitive recently-diagnosed coeliac, I seem to react to anything that isn't naturally gluten-free.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Does anyone else have a problem with maltodextrin?

I'm in the UK and have had pretty severe 'D' for days now. I think I've traced it back to ingesting products with quite large amounts of maltodextrin (it was the second listed ingredient, behind water). I'm in the UK so it's wheat-based maltodextrin.

Will definitely avoid from now on!I'm a VERY sensitive recently-diagnosed coeliac, I seem to react to anything that isn't naturally gluten-free.

I am also very sensitive and found out 2 months after going gluten free that I could not have corn. Corn is in everything. Maltodextrin is corn most of the time. If you are not sure, call the 800 number on the product. Be good at reading labels. It has saved me many times. If you are celiac, then you can be sensitive to other foods. It is good to rotate your foods to give your body a break if you are sensitive to a food or do the IGG blood test and eliminate the foods that you are sensitive to. I have been lucky with Elisa food testing. It is expensive but it is well worth it if you want to feel good again. Good luck.
0

Share this post


Link to post
Share on other sites

I am also very sensitive and found out 2 months after going gluten free that I could not have corn. Corn is in everything. Maltodextrin is corn most of the time. If you are not sure, call the 800 number on the product. Be good at reading labels. It has saved me many times. If you are celiac, then you can be sensitive to other foods. It is good to rotate your foods to give your body a break if you are sensitive to a food or do the IGG blood test and eliminate the foods that you are sensitive to. I have been lucky with Elisa food testing. It is expensive but it is well worth it if you want to feel good again. Good luck.

Thanks Porkchop, but, as I said in my post, I live in the UK, where maltodextrin always wheat-based, so I doubt think it's a corn issue.

I have been rotating my (very limited range of) foods as much as possible, but my dietician said there wasn't a way to test for food allergies :S ???

Thanks again for the advice.

0

Share this post


Link to post
Share on other sites

Thanks Porkchop, but, as I said in my post, I live in the UK, where maltodextrin always wheat-based, so I doubt think it's a corn issue.

I have been rotating my (very limited range of) foods as much as possible, but my dietician said there wasn't a way to test for food allergies :S ???

Thanks again for the advice.

Your dietician is wrong.You can be tested for food allergies or I should say delayed food sensitivities. It has saved me. You can be tested through Entero labs (stool sample)and that is IGA which is more digestive and that is how my daughter found out she was gluten intolerant. When you do the blood test it is IGG testing and helps you figure out foods that you might react to a few days after you eat them. Sometimes you just can't do it on your own even if you journal which I do everyday. You might need to ask a different dietician or see natureopathic doctor or chiropractor. Someone has to do this testing. Go on line and google it. Hope this helps.

0

Share this post


Link to post
Share on other sites

Your dietician is wrong.You can be tested for food allergies or I should say delayed food sensitivities. It has saved me. You can be tested through Entero labs (stool sample)and that is IGA which is more digestive and that is how my daughter found out she was gluten intolerant. When you do the blood test it is IGG testing and helps you figure out foods that you might react to a few days after you eat them. Sometimes you just can't do it on your own even if you journal which I do everyday. You might need to ask a different dietician or see natureopathic doctor or chiropractor. Someone has to do this testing. Go on line and google it. Hope this helps.

http://www.mayoclinic.com/health/food-allergy/DS00082/DSECTION=tests-and-diagnosis

This is some basic info about food allergies. You will see that food allergy testing isn't completely accurate as they recommend more than just a skin prick or an IgE test to confirm an allergy. You will notice that Enterolab is not mentioned as it has never done the steps necessary to be recognized by the medical community.

0

Share this post


Link to post
Share on other sites




I am in the UK and have found most doctors sceptical about allergy testing except skin prick testing. My son did have a blood test done when he refused skin prick testing. You may have to be quite peristent and check out what services are available at your hospital and try and get referred. My GI was pretty dismissive, so I will have to try another route.

Good luck

0

Share this post


Link to post
Share on other sites

I am also very sensitive and found out 2 months after going gluten free that I could not have corn. Corn is in everything. Maltodextrin is corn most of the time. If you are not sure, call the 800 number on the product. Be good at reading labels. It has saved me many times. If you are celiac, then you can be sensitive to other foods. It is good to rotate your foods to give your body a break if you are sensitive to a food or do the IGG blood test and eliminate the foods that you are sensitive to. I have been lucky with Elisa food testing. It is expensive but it is well worth it if you want to feel good again. Good luck.

I've also noticed that corn is a big issue for me as well which only complicated things. I am also allergic to eggs and milk...this list of "what I can't eat" seems to be getting bigger and bigger. I think since corn is so widely used and it replaces wheat as another cheap manufactured grain, or strives systems react. Its quite frustrating!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,337
    • Total Posts
      917,376
  • Topics

  • Posts

    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,469
    • Most Online
      1,763

    Newest Member
    RichieF
    Joined