Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Hidden Gluten In Processed Food?how Do I Spot It, Or Is It A Myth?


ldslara

Recommended Posts

ldslara Rookie

Hi! I started eating gluten free about a month ago and have some questions about avoiding gluten in processed foods. I know, avoiding processed food is a good idea in general, but when I do partake, is a food safe if it doesn't say "wheat" "barley" or "rye" in the ingredient list, or is it really more compicated than that? My understanding is that any product with wheat MUST include in on the ingredient list on the label or with a "contains wheat" or, if cross contamination is a concerned, a warning to the effecgt that it may contain traces of wheat. And though I understand that barley and rye don't have to be listed so clearly, they typically are. Does that all sound right?

With this in mind, two products have me wondering in the past few weeks "Where's the gluten":

I read that Resse's peanut butter cups are gluten free, but holiday items (like the trees) have gluten. I bought some of the trees for my kids stockings, and I don't see any wheat in the ingredients or warning that it is there. Is there really gluten there, and if so, where is it hiding on the label? It's bothering me that I can't identify it...

I liked to eat oatmeal for breakfast, but I heard cross-contamination is a problem with most brands, so I've been planning on getting some that was certified gluten free. But I have noticed that there is no warning on regular containers of oatmeal, not even a statement saying it may contain traces of wheat. If cross-contamination is so common, how can they not say that on the label? When I mentioned this to my Gastroentronologist a couple week ago, he said that oatmeal was fine and I shoudn't worry about it at all. Is that right? Is croos contamination of oatmeal just a concern for people super sensitve to gluten? Or is my gastroentronologist misinformed?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

No. All the Celiac organizations recommend gluten-free oatmeal. In fact, it is usually recommended that a person with Celiac not eat oatmeal for at least 6 months as a small percentage react to it like gluten.

There is no law in the US that forces a company to say if something may accidentally have a gluten ingredient in it. If they add wheat, they must disclose this. Rye is rarely on anything except rye bread. Barley ( malt) is usually disclosed because it is a distinct ingredient.

Remember, your GI has had no diet training and, unless he is in a Celiac Center or has a child with Celiac, has no idea about gluten in food. A sad fact of life.

Link to comment
Share on other sites
rosetapper23 Explorer

When it comes to processed foods, if "gluten-free" isn't stated on the package, I call the company if I truly want to eat it. It's just not worth getting glutened.

Link to comment
Share on other sites
SensitiveMe Rookie

My digestive disease doctor didn't know about any connection between oatmeal and wheat either. Until you can get some glutenfree oats there are substitutes for hot cereal...for a similar consistency to oatmeal you might try Kasha which is roasted Buckwheat Groats or else Cream of Buckwheat (don't be intimidated by the name since buckwheat is actually a fruit and you should see the words glutenfree on the boxes). I am a big fan of quinoa flakes as a hot cereal which also should say glutenfree on the box...for a thicker consistency add less water to it but it does thicken up quite a bit on standing with the water amount recommendation on the box.

In regards to hidden barley there is a product called Rice Dream milk which uses a barley enzyme and doesn't mention it on the containers. You wouldn't know it because it says Gluten Free on it, and the ingredient involving use of the barley in it is partially milled brown rice. The company says they extract the barley and test but barley testing can supposedly be very inaccurate. I suggest you never use this product as I have heard of quite a few people (including myself) having reactions to it.

Best to read everything on all packages. Quite a few times I checked all the ingredients while in the store then got home and later saw some little small writing on it that says processed on equipment which also processes wheat.

Link to comment
Share on other sites
cavernio Enthusiast

In Canada I'm fairly certain cross contaminates don't have to be mentioned. If they knowingly put in wheat or other glutinous grains the law says that have to label it as containing them in an obvious way.

So while you might look at 2 different packages of, oh, nuts, and one says 'May contain traces of wheat' while the other one doesn't, that doesn't mean the one package is necessarily safe.

My GI told me to not even try oats, saying my intestines were too bad to even risk the gluten free ones. My sister has noticeable issues with oats but not wheat, (her blood test for celiac is negative...lets not get into testing and families etc here, just explaining my background), and I don't have a discernable gluten reaction, so it's a no-brainer for me to avoid them completely, at least until my intestines show healing. I have wondered about oat cross contamination in otherwise gluten-free flours though. I've seen at least one post in the forums about someone blaming traces of oats for their reactions to gluten free flours.

"The company says they extract the barley and test but barley testing can supposedly be very inaccurate."

I know this is off-topic, but I've wondered if this were a possibility myself when I started to wonder about how gluten is measured. Barley's 'gluten' doesn't have the same exact structure as wheat gluten. Do you have a reference or anything about that?

Link to comment
Share on other sites
psawyer Proficient

Neither the US nor Canada require "may contain" warnings. Canada has a policy that says they may be used only if, despite best efforts to clean/separate, a real risk still exists.

Contamination can happen at any point on the supply chain, not just at the final production facility. In the case of oats, this happens at every step of the way, because oats and wheat are grown on the same farms, harvested with the same equipment, etc. Commercial oats may contain as much as 1% wheat from unintentional sources.

In the US, look for oats labeled gluten-free. In Canada, look for "certified pure oats," or "uncontaminated oats." There are no "gluten-free" oats in Canada, as Health Canada considers oats to be a gluten grain.

Link to comment
Share on other sites
auzzi Newbie

REESE'S Peanut Butter Trees Ingredients

Peanuts, Milk Chocolate (Sugar, Cocoa Butter, Chocolate, Nonfat Milk, Milk Fat, Lactose, and Soy Lecithin, PGPR, Emulsifier), Sugar, Dextrose, Chocolate, Nonfat Milk, Contain 2% or Less of: Vegetable Oil (Cocoa Butter, Palm, Shea, Sunflower and/or Safflower Oil), Salt, Whey (Milk), Milk Fat, Soy Lecithin, TBHQ (Preservative), Vanillin, Artificial Flavor.

Purely guessing: I would say the dextrose - nothing else contains gluten .. unless it is manufactured in a gluten facitity/uses gluten starch to stop it sticking in/on the machinery/contaminated by not being separated ..

... If they say it is there, you can only accept it ..

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient
I would say the dextrose - nothing else contains gluten

Dextrose is pure sugar and is gluten-free. Other gluten-free sweeteners include aspartame, brown sugar, corn syrup, fructose, glucose, lactose, maltitol, maltose, mannitol, saccharin, sorbitol, stevia, sucralose, sucrose, and xylitol.

Link to comment
Share on other sites
GFinDC Veteran

Ingredients can vary by country also, so it is important verify the ingredients for the country where they are bought.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,060
    • Most Online (within 30 mins)
      7,748

    Demandcpm
    Newest Member
    Demandcpm
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zackery Brian
      I'm sorry to hear about the challenges you've been facing with your health. Dealing with celiac disease and multiple food sensitivities can indeed be overwhelming. Here are a few thoughts and suggestions based on your experience and the replies you've received: Confirming Diagnosis: It's great that your gastroenterologist confirmed your celiac disease diagnosis through additional tests. Understanding the specifics of your condition can help tailor your approach to managing it more effectively. Food Sensitivity Testing: While blood tests for food sensitivities can provide some insights, they may not always be completely accurate. As mentioned by others, false positives are common, and individual responses to specific foods can vary. Discussing your test results and symptoms with a healthcare professional knowledgeable about celiac disease and food sensitivities can help clarify your situation. Research and Education: Exploring conditions like Mast Cell Activation Syndrome (MCAS) and histamine intolerance could shed further light on your symptoms and provide additional avenues for managing your health. Gathering information from reliable sources and discussing your findings with your healthcare team can help you make informed decisions about your care. Dietary Management: Managing celiac disease and multiple food sensitivities can be challenging, but finding a balance that works for you is crucial. Working with a dietitian who specializes in celiac disease and food intolerances can help you develop a personalized dietary plan that meets your nutritional needs while minimizing symptoms. Stress Management: Chronic pain and health issues can take a toll on mental and emotional well-being. Finding healthy coping strategies to manage stress, such as mindfulness, relaxation techniques, or engaging in activities you enjoy, may help improve your overall quality of life. Remember, you're not alone in your journey, and seeking support from healthcare professionals, support groups, or online communities can provide valuable encouragement and guidance.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
    • knitty kitty
      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
×
×
  • Create New...