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#16
Posted 28 December 2012 - 09:02 AM
Confirmed celiac disease February 2011 from biopsies (had both gastroscopy and colonoscopy). Strictly gluten free March 18 2011.
Diagnosed with fibromyalgia April 13 2011.
3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.
Osteoarthritis in back and hips.
Chronic insomnia mostly due to chronic pain.
Aspartame free May 2011.
Dairy free August 15 2011. Can tolerate aged cheese Jan. 2012. Cannot tolerate much cheese at all 2013 so am eating lactose free cheese and drinking lactose free milk.
When our lives are squeezed by pressure and pain, what comes out is what is inside.
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#17
Posted 28 December 2012 - 04:06 PM
#18
Posted 28 December 2012 - 04:46 PM
Gluten free since Dec. 2008
New food sensitivities rear their ugly heads as time goes on.
Diagnosed with follicular Non Hodgkin Lymphoma Sept. 2010
#19
Posted 28 December 2012 - 10:34 PM
#20
Posted 29 December 2012 - 04:38 AM
I was diagnosed with Celiac Disease today. I got off work at 9:45pm and went to Wal Mart to see if they had a gluten free section. They do not, and I didn't get home until 12:40pm. RIDICULOUS. I left with maybe 10 items, and I had to really search for them. Between figuring out where the gluten free products were to figuring out which ones were truly gluten free, I am exhausted. I will be trying our Food Lion, Farm fresh as I have heard they have gluten free sections. Then i guess ill try trader joes even though the food is awful.
Welcome Revolverblue!
I remember well the frustration of reading every flipping label in the grocery store -- was reduced to tears a few times. Many here will suggest you stick to simple whole foods when newly diagnosed. This is great advice -- not only is it easier to find gluten free foods when you avoid processed items, you will heal more quickly.
When you hit the grocery store -- concentrate on the perimeter of the store -- where most of the naturally gluten-free foods are kept - produce, meat, dairy. Add a bag of plain rice and you'll have a basket full of food you know is gluten-free.
Good Luck to you
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
6/1/13 - Slowly trialing a few of the items above - haven't gotten any back, but some reactions have been less severe ![]()
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#21
Posted 29 December 2012 - 06:57 AM
Thank you for the advice. Luckily I have a very supportive wife. My only concern is passing it to my daughter. She eats great as it is but I do notice several symptoms on occasion. Thanks againWelcome Revolverblue!
I remember well the frustration of reading every flipping label in the grocery store -- was reduced to tears a few times. Many here will suggest you stick to simple whole foods when newly diagnosed. This is great advice -- not only is it easier to find gluten free foods when you avoid processed items, you will heal more quickly.
When you hit the grocery store -- concentrate on the perimeter of the store -- where most of the naturally gluten-free foods are kept - produce, meat, dairy. Add a bag of plain rice and you'll have a basket full of food you know is gluten-free.
Good Luck to you
#22
Posted 29 December 2012 - 09:10 AM
I agree that giving up all that processed junk is most healthy early on. It took some time for me. Emotionally I just couldn't let go for a while and looking back I see that while I felt better, I didn't see a significant improvement in my health until I gave up the bulk of those processed foods. And yes, it is also far less stressful. You'll get the hang of it in time.
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
#23
Posted 29 December 2012 - 09:26 AM
#24
Posted 29 December 2012 - 10:27 AM
Also worth noting is that Wal-Mart is notoriously crappy to its employees; it's nobody's dream job. The employees there are working there because they need they money, and they deal with stupid, irritating and rude customers all day. Most people, even well-meaning ones, don't know much about gluten unless they or someone they know can't eat it. It was unprofessional for the guy at walmart to hang up on the OP, but in general, it's kind of hard to totally blame a walmart employee for being clueless when being asked about gluten, because there's a good chance they don't really know what you're talking about unless they're gluten-free or someone they know is gluten-free.
#25
Posted 29 December 2012 - 11:55 AM
#26
Posted 29 December 2012 - 12:20 PM
No matter where you shop and how many times you have purchased something, ALWAYS READ THE LABEL.
#27
Posted 29 December 2012 - 01:08 PM
EXACTLY! We are responsible for our own health. I would not dare leave these decisions to others. Prior to my own celiac diagnosis I knew so very little about it and cannot expect everyone, including employees, to be well versed in it (though that would be lovely).ALWAYS READ THE LABEL!! Even if you shop in a store where they have a gluten-free section, some shopper might have picked something up in a different part of the store, then noticed they had a gluten-free version of it and just plopped the gluteny one on the shelf and taken the gluten-free one instead. Or maybe something that always used to be gluten-free has changed their recipe and it is no longer gluten-free. We can't rely on the employees to read the label and determine it no longer belongs in the gluten-free section.
No matter where you shop and how many times you have purchased something, ALWAYS READ THE LABEL.
Confirmed celiac disease February 2011 from biopsies (had both gastroscopy and colonoscopy). Strictly gluten free March 18 2011.
Diagnosed with fibromyalgia April 13 2011.
3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.
Osteoarthritis in back and hips.
Chronic insomnia mostly due to chronic pain.
Aspartame free May 2011.
Dairy free August 15 2011. Can tolerate aged cheese Jan. 2012. Cannot tolerate much cheese at all 2013 so am eating lactose free cheese and drinking lactose free milk.
When our lives are squeezed by pressure and pain, what comes out is what is inside.
#28
Posted 29 December 2012 - 04:21 PM
I do not do much shopping in the 'middle' isles. I may go down them to find a spacific thing (peanut butter i'ma lookin' at you), but elsewise i steer clear.
For example, the one store i normally go to has a gluten free section, but they also put 'organic' things at the bottom row....
Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
#29
Posted 29 December 2012 - 04:49 PM
For example, the one store i normally go to has a gluten free section, but they also put 'organic' things at the bottom row....
I think most stores do that, actually, One special diet merges into another, into and out of organic, gluten free, diabetic....
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
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