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Celiac And Hypoglycemia
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Has anyone on here had problems with hypoglycemia when first being diagnosed for Celiac. If so, how long after going gluten free did it resolve? How can I make sure my sugar is healthy until my intestine heals?

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Are you eating a lot of gluten free baked goods, pre-made gluten free foods, grains or fruit? Naturally gluten free foods (vegetables, meats, eggs, cheese, etc.) are also what is recommended to keep blood sugars stable, but ready made gluten free foods contain a ton of sugar that can cause blood sugar spikes.

If you are taking medication for diabetes, maybe you should talk to your doctor about adjusting your dosage?

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I had some problems with this that resolved within about 3 months of being gluten-free. I never saw a doctor about it, but if I didn't eat every 2-3 hours, I had the shakes and got headaches. I have low blood pressure so that didn't help... I ended up light headed and shaky a few times a week.

After 6 months gluten-free, this very rarely happens to me anymore, and I can easily go 6 hours without eating.I do eat less processed foods now, and not a lot of starches, so diet (beyond gluten-free) could have been a factor with me.

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My hypoglycemia was worse while I was eating gluten. Over the years I had learned to include protein with breakfast or pay the price after an hour or two. Now I eat few starches at all and have not been hypoglycemic at all! I never would have thought that I could eat vegetables and 1egg for breakfast, and those calories would hold me comfortably until lunchtime.

If you are eating the same as before but simply replacing gluten products with gluten-free products, then you may need to make more of a change for your body to be healthy. Good luck!

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Are you eating a lot of gluten free baked goods, pre-made gluten free foods, grains or fruit? Naturally gluten free foods (vegetables, meats, eggs, cheese, etc.) are also what is recommended to keep blood sugars stable, but ready made gluten free foods contain a ton of sugar that can cause blood sugar spikes.

If you are taking medication for diabetes, maybe you should talk to your doctor about adjusting your dosage?

No diabetes, thank goodness. I am doing a lot of the processed gluten free grains though. I am going to try more of the foods you mentioned and see if there is any improvement. Diabetes does run in my family, but I don't.

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My hypoglycemia was worse while I was eating gluten. Over the years I had learned to include protein with breakfast or pay the price after an hour or two. Now I eat few starches at all and have not been hypoglycemic at all! I never would have thought that I could eat vegetables and 1egg for breakfast, and those calories would hold me comfortably until lunchtime.

If you are eating the same as before but simply replacing gluten products with gluten-free products, then you may need to make more of a change for your body to be healthy. Good luck!

I'm glad someone else had this experience. I am trying to change my starch intake, as it is very high.

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I have to eat every few hours or I get light headed. That may be normal. People have posted some good ideas. I eat nuts and a safe cereal for breakfast and eggs many days as well. I do pretty good with that and always carry a safe granola bar too.

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Try eating more good fats, such as found in nuts, coconut products such as coconut milk, and avocados, besides switching some or most of the starches into higher protein versions.

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If you truly do have hypoglycemia, your Dr. should prescribe a meter for you so that you can test your blood sugar. If you have a prescription for both that and the test strips to be used with it, then your insurance will most likely cover it. If you have no insurance and/or your Dr. won't prescribe these things, then the Walmart brand is the cheapest one to buy. You want to keep your blood sugar somewhere around 80 at all times but your Dr. is the best one to ask about this. I have to keep mine from 90 to 130 but... I am a diabetic.

Another thing that could be happening is not low blood sugar at all but a big spike in blood sugar, followed by a quick drop. You may actually even have high blood sugar when this happens. So really you should run this by the Dr.

Are you eating or drinking fast acting carbs? Like white rice? White rice flour? Potatoes? Fruit juice? If so then you might need to change what you are eating to more complex carbs and/or things with fat in them.

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There is also an older topic on a similar subject (the focus is more on "rescue foods") that you may find useful:

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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