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Dh Rash Bleeding Now


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11 replies to this topic

#1 GFreeMO

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Posted 27 December 2012 - 09:04 AM

I've managed to scratch my DH that is all over my back at night and now it is itchy AND bleeding. Nothing like having a bleeding back! UGH. Any ideas on what I can do for this?
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#2 Adalaide

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Posted 27 December 2012 - 09:43 AM

Walgreens sells metal back-scratchers that are easy to clean and keep you from having blood under your finger nails. Wait, is that not the type of help you were looking for? :lol:

It took me all of about 2 days to scratch myself to bleeding. I saw my doctor immediately and got put on steroids. I think it was 20mg prednisone twice a day for 5 days. This with a low iodine diet didn't clear me up right away, but it really made a big dent in the itching and pain within days and made it bearable until it did clear up. These days, while I have to remain mostly low iodine, I have determined that I can infrequently indulge in a little bit of the "forbidden" foods without flaring up. I also caught it and recognized the rash immediately as it started and had the appointment with my doctor before a week was up. Few are so lucky. Do not forget to call the manufacturer of your prescription (if you go that route) before filling to verify that it is gluten free and free of whichever red dye it is we can't have. Not that I've ever seen red dyed steroids. Steroid creams can also help, although I doubt a doctor will want to prescribe both. I found some relief with calamine, only the pink one! but I've seen others say that it isn't particularly great. The best relief was standing in warm showers.

I haven't been paying much attention over this way, but if someone hasn't already told you this it is super important to make sure your soap, shampoo and lotion are all gluten free. While it may not be the world's biggest deal for other people as long as they aren't eating it, rashy people have to be careful.
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"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#3 rosetapper23

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Posted 27 December 2012 - 10:03 AM

You might want to test for staph--sometimes it invades the DH. If this is the problem, antibiotics will help resolve the rash. (Sorry about the bleeding--ouch!)
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#4 squirmingitch

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Posted 27 December 2012 - 05:50 PM

It's red dye #3 that has the iodine in it (in the USA). Sometimes they coat pills with red coloring & remember that red is used to make orange coatings.

GFMO, I did the same. I have no answers except to get OxiClean Max Force stain remover to get the blood out of the sheets. The CVS brand of Caladryl (copycat) worked for us pretty well but you have to put on 2 or 3 coats. And then sometimes it just doesn't dent the itch.

Adalaide ---- you say Walgreens has the metal back scratchers? :lol: :lol: :lol:
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#5 Adalaide

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Posted 27 December 2012 - 08:08 PM

It's red dye #3 that has the iodine in it (in the USA). Sometimes they coat pills with red coloring & remember that red is used to make orange coatings.

GFMO, I did the same. I have no answers except to get OxiClean Max Force stain remover to get the blood out of the sheets. The CVS brand of Caladryl (copycat) worked for us pretty well but you have to put on 2 or 3 coats. And then sometimes it just doesn't dent the itch.

Adalaide ---- you say Walgreens has the metal back scratchers? :lol: :lol: :lol:


I just knew it wasn't the #40 that was the problem. I swear my mind is going. I'm not old enough for that yet! You can get blood stains out of sheets? Who knew! Meh, they're soft and comfy and no one else looks at them so whatever. I'll worry about that next time when I haven't perma-stained them by putting them through the dryer 100 times by now.

Yes, yes they do. Wooden ones too, but those get blood stains. I am not telling you how I know this. :ph34r:
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"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#6 squirmingitch

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Posted 27 December 2012 - 08:21 PM

I know which red dye b/c my hubs must ask me 50 times a day! :lol: :lol: Every time he starts to eat something that is red he asks me. I feel like tattooing it on his hand so he won't keep asking me. And then he always says ---- are you sure? You're pushing it buster!

Oh yes! The Oxi Clean Max Force works like a charm for blood but you have to put it on for a few minutes before they go in the washer. Before I had dh I used to use something called S 32 for blood stains & it worked great too.

You keep me laughing Adalaide! Maybe the Oxi Clean will get the blood out of wood too. :lol: :lol: :lol: :lol:
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#7 Celiac Mindwarp

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Posted 28 December 2012 - 12:51 AM

It can help to wash/scrub in cold water 1st for blood stains, preferably ASAP. Hot water can set the stain. A quick scrub in cold, some oxy straight on then the washer is pretty good.
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#8 a1956chill

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Posted 28 December 2012 - 02:05 AM

My DD got me a metal back scratcher about 3 years ago ( the best present she ever got me :wub: )


You can get blood out of sheets ?? who knew :P

To the OP ,
staying low iodine is the only thing that works for my DH
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Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#9 L.J.

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Posted 28 December 2012 - 09:13 AM

Hi All of my GFF's! Welcome GFreeMO!
Some familiar names I see here! Oh the rash. It is wicked, yes?
For me, a metal back scratcher brings visions of horror movies into my mind! :D
I was on Prednasone for quite awhile...months--at the 20 mg...then tapered down. My dr. gave me Fluocinonide--prescription--it has been a great help--if I "catch" the rash early, the symptoms are *much* better! I wear gloves at night still...and have cut down on any spicy foods, tomatos, and did the "low iodine" for as long as I could...

SquirmyItch and others here gave me great advice regarding my rashes--I too bled on the sheets--but the stains come out like they say! If I scratch my rash, it becomes *much* worse--so I use the cream mentioned above...For me, a Lifesaver!

I also watch what I eat carefully! Changed ALL of my shampoos, creams, lotions, soaps, hair dye, and even makeup. My rashes (oh, dare I say this???? :D are better)!!! :wub: Not gone--but much improved.

Great advice being given to you above (although, the metal back scratcher is definitely a scarey one for me :D :D !

Keep checking back--never did I believe that the rash could get as good as it is now--Do not give up! And keep your head up! ;)
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#10 sisterlynr

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Posted 30 December 2012 - 05:07 AM

I've managed to scratch my DH that is all over my back at night and now it is itchy AND bleeding. Nothing like having a bleeding back! UGH. Any ideas on what I can do for this?



I have taken baths with Epson Salts and soaked my back. I use Sarna (sensitive) anti-itch lotion, it works better for me than any OTC product. It was less expensive at Wal-greens. I have read that you can add 1 Cup of bleach to a full tub of water for relief. I didn't do that but did go to the pool. I use a back scratcher and it doesn't tear up my skin as much as the finger nails. I use a teak wood scratcher and sanitize it with alcohol.

Peroxide will remove blood too. I had a surgeon's wife tell me she buys it in bulk for her wash. :unsure: I have ruined all of my sleepwear and my pillow covers. I stopped using pillow cases until my neck, shoulders and head lesions healed.

BTW, I have also applied athletic feet lotion to my lower back. It seems to work by drying the lesions. . . I know DH isn't from bacteria/etc. but, hey . . . also have used Prep H on my tail end and it soothed the lesions and gave relief to the itch. . . I guess if the Director of Nursing at the hospital I worked out could use it for wrinkle repair. . . :D I could use it for itchiness!
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Misdiagnosed DH symptoms for 30 years in the form of blisters on shoulders, scalp, sole of foot and lower back.
Type II Diabetes 1995  /   Fatty liver biopsy 2001  ~ Diagnosed with NH Lymphoma in 2007 metastasized to bones & Stage IV by 2008 Chemotherapy in 2008 ~ Breakout of rash from scalp to sole of feet. February 28, 2012 until present
Iron deficiency anemia - July of 2012  /  
Osteoarthritis. September 2012  2012 Rash was diagnosed as Eczema, Grover's Disease, Folliculitis per biopsies of the lesions. September 2012   Started Dapsone and Gluten-Free diet on October 20, 2012 ~ Diag DH 2012.  Not taking Dapsone due to sulfa reaction.  Biopsy in July 2013 indicates Lupus but my doctors do not agree on cause of rash for various reasons.  

 

~Lyn~


#11 tealiemonster

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Posted 30 December 2012 - 06:04 AM

I use Sarna (sensitive) anti-itch lotion, it works better for me than any OTC product. It was less expensive at Wal-greens.


I love Sarna! Its the best OTC product I have ever used for the itch!!! It literally saved my sanity during pregnancy when I had to stop all the topical corticosteriods, topical immunomodulators and sedative antihistamines (before I found it was DH and was being treat for severe eczema). I bought it at Walmart. Online too sometimes (free delivery) then I didn't even have to face the pubic :ph34r:
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Skin Scraping for microscopic analysis - negative for scabies 9/24/2012
Punch Skin Biopsy in 10% formalin for microscopic analysis - negative for eczema marker, vesiculobullous observed 10/9/2012
Prednisone 10mg 2x daily - no improvement 11/09/2012
Punch Skin Biopsy in michael's solution for Immunoflorescence IgA testing - Weak Positive 10/15/2012
Blood Serum test, Quest Diagnostics Comprehensive Celiac Panel (Ttg, EMA & EMA Titers) - Positve 11/26/2012
Blood Serum test, RAST Wide Geographic Screening (not Wheat) - Negative 11/26/2012
Dapsone 25mg 2x daily since 11/26/2012 (itching gone in 24 hrs, rash gone in 48 hrs, lesions healed in 1 mos)
Small intestine biopsy (EGD) 3 samples taken - Negative 12/18/2012
Diagnosed Dermatitis Herpetiformis by Dermatologist 11/15/2012, Diagnosed Celiac by Primary Care Physician 11/30/2012
Gluten Free 12/28/2012

#12 GFreeMO

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Posted 02 January 2013 - 01:25 PM

Thanks everyone!! I'm going to try your suggestions. Hopefully I can get some relief.
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