|
|
Celiac.com Sponsor: |
Dh Rash Bleeding Now
#1
Posted 27 December 2012 - 09:04 AM
#2
Posted 27 December 2012 - 09:43 AM
It took me all of about 2 days to scratch myself to bleeding. I saw my doctor immediately and got put on steroids. I think it was 20mg prednisone twice a day for 5 days. This with a low iodine diet didn't clear me up right away, but it really made a big dent in the itching and pain within days and made it bearable until it did clear up. These days, while I have to remain mostly low iodine, I have determined that I can infrequently indulge in a little bit of the "forbidden" foods without flaring up. I also caught it and recognized the rash immediately as it started and had the appointment with my doctor before a week was up. Few are so lucky. Do not forget to call the manufacturer of your prescription (if you go that route) before filling to verify that it is gluten free and free of whichever red dye it is we can't have. Not that I've ever seen red dyed steroids. Steroid creams can also help, although I doubt a doctor will want to prescribe both. I found some relief with calamine, only the pink one! but I've seen others say that it isn't particularly great. The best relief was standing in warm showers.
I haven't been paying much attention over this way, but if someone hasn't already told you this it is super important to make sure your soap, shampoo and lotion are all gluten free. While it may not be the world's biggest deal for other people as long as they aren't eating it, rashy people have to be careful.
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
#3
Posted 27 December 2012 - 10:03 AM
#4
Posted 27 December 2012 - 05:50 PM
GFMO, I did the same. I have no answers except to get OxiClean Max Force stain remover to get the blood out of the sheets. The CVS brand of Caladryl (copycat) worked for us pretty well but you have to put on 2 or 3 coats. And then sometimes it just doesn't dent the itch.
Adalaide ---- you say Walgreens has the metal back scratchers?
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
#5
Posted 27 December 2012 - 08:08 PM
It's red dye #3 that has the iodine in it (in the USA). Sometimes they coat pills with red coloring & remember that red is used to make orange coatings.
GFMO, I did the same. I have no answers except to get OxiClean Max Force stain remover to get the blood out of the sheets. The CVS brand of Caladryl (copycat) worked for us pretty well but you have to put on 2 or 3 coats. And then sometimes it just doesn't dent the itch.
Adalaide ---- you say Walgreens has the metal back scratchers?![]()
![]()
I just knew it wasn't the #40 that was the problem. I swear my mind is going. I'm not old enough for that yet! You can get blood stains out of sheets? Who knew! Meh, they're soft and comfy and no one else looks at them so whatever. I'll worry about that next time when I haven't perma-stained them by putting them through the dryer 100 times by now.
Yes, yes they do. Wooden ones too, but those get blood stains. I am not telling you how I know this.
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
#6
Posted 27 December 2012 - 08:21 PM
Oh yes! The Oxi Clean Max Force works like a charm for blood but you have to put it on for a few minutes before they go in the washer. Before I had dh I used to use something called S 32 for blood stains & it worked great too.
You keep me laughing Adalaide! Maybe the Oxi Clean will get the blood out of wood too.
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
#7
Posted 28 December 2012 - 12:51 AM
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
#8
Posted 28 December 2012 - 02:05 AM
You can get blood out of sheets ?? who knew
To the OP ,
staying low iodine is the only thing that works for my DH
Gluten free Oct/09
Soy free Nov/10
Completely grain free Feb/13
After a very, very long battle to keep dairy .I am dairy free
i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy .
Celiac :based on DH biopsy and diet response.
Hashimoto's thyroiditis disease . April/11
Diagnosed type 2 Diabetes March/13
#9
Posted 28 December 2012 - 09:13 AM
Some familiar names I see here! Oh the rash. It is wicked, yes?
For me, a metal back scratcher brings visions of horror movies into my mind!
I was on Prednasone for quite awhile...months--at the 20 mg...then tapered down. My dr. gave me Fluocinonide--prescription--it has been a great help--if I "catch" the rash early, the symptoms are *much* better! I wear gloves at night still...and have cut down on any spicy foods, tomatos, and did the "low iodine" for as long as I could...
SquirmyItch and others here gave me great advice regarding my rashes--I too bled on the sheets--but the stains come out like they say! If I scratch my rash, it becomes *much* worse--so I use the cream mentioned above...For me, a Lifesaver!
I also watch what I eat carefully! Changed ALL of my shampoos, creams, lotions, soaps, hair dye, and even makeup. My rashes (oh, dare I say this????
Great advice being given to you above (although, the metal back scratcher is definitely a scarey one for me
Keep checking back--never did I believe that the rash could get as good as it is now--Do not give up! And keep your head up!
#10
Posted 30 December 2012 - 05:07 AM
I've managed to scratch my DH that is all over my back at night and now it is itchy AND bleeding. Nothing like having a bleeding back! UGH. Any ideas on what I can do for this?
I have taken baths with Epson Salts and soaked my back. I use Sarna (sensitive) anti-itch lotion, it works better for me than any OTC product. It was less expensive at Wal-greens. I have read that you can add 1 Cup of bleach to a full tub of water for relief. I didn't do that but did go to the pool. I use a back scratcher and it doesn't tear up my skin as much as the finger nails. I use a teak wood scratcher and sanitize it with alcohol.
Peroxide will remove blood too. I had a surgeon's wife tell me she buys it in bulk for her wash.
BTW, I have also applied athletic feet lotion to my lower back. It seems to work by drying the lesions. . . I know DH isn't from bacteria/etc. but, hey . . . also have used Prep H on my tail end and it soothed the lesions and gave relief to the itch. . . I guess if the Director of Nursing at the hospital I worked out could use it for wrinkle repair. . .
Misdiagnosed DH symptoms for 30 years in the form of blisters on shoulders, scalp, sole of foot and lower back.
Type II Diabetes 1995 / Fatty liver biopsy 2001
Diagnosed with NH Lymphoma in 2007 metastasized to bones & Stage IV by 2008 - Chemotherapy in 2008
Breakout of rash from scalp to sole of feet. February 28, 2012
Iron deficiency anemia - July of 2012 / Osteoarthritis from shoulders down diagnosis. September 2012
2012 Rash was diagnosed as Eczema, Grover's Disease, Folliculitis per biopsies of the lesions. September 2012
PCP prescribed Dapsone and Gluten-Free diet on October 20, 2012 ~ Diagnosis of Celiac/Dermatitis Herpetiformis
Fifth Dermatologist seen noted DH on my chart per relief from Dapsone and diet. February 18, 2013
~Lyn~
#11
Posted 30 December 2012 - 06:04 AM
I use Sarna (sensitive) anti-itch lotion, it works better for me than any OTC product. It was less expensive at Wal-greens.
I love Sarna! Its the best OTC product I have ever used for the itch!!! It literally saved my sanity during pregnancy when I had to stop all the topical corticosteriods, topical immunomodulators and sedative antihistamines (before I found it was DH and was being treat for severe eczema). I bought it at Walmart. Online too sometimes (free delivery) then I didn't even have to face the pubic
Punch Skin Biopsy in 10% formalin for microscopic analysis - negative for eczema marker, vesiculobullous observed 10/9/2012
Prednisone 10mg 2x daily - no improvement 11/09/2012
Punch Skin Biopsy in michael's solution for Immunoflorescence IgA testing - Weak Positive 10/15/2012
Blood Serum test, Quest Diagnostics Comprehensive Celiac Panel (Ttg, EMA & EMA Titers) - Positve 11/26/2012
Blood Serum test, RAST Wide Geographic Screening (not Wheat) - Negative 11/26/2012
Dapsone 25mg 2x daily since 11/26/2012 (itching gone in 24 hrs, rash gone in 48 hrs, lesions healed in 1 mos)
Small intestine biopsy (EGD) 3 samples taken - Negative 12/18/2012
Diagnosed Dermatitis Herpetiformis by Dermatologist 11/15/2012, Diagnosed Celiac by Primary Care Physician 11/30/2012
Gluten Free 12/28/2012
#12
Posted 02 January 2013 - 01:25 PM
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users








