New With Questions
Posted 27 December 2012 - 09:10 AM
TIS TRANSGLUT AB,Iga My Value: >100 U/ml
Reference range: <4.0 (Negative)
Interpretation: Positive (>10.0)
TIS TRANSGLUT AB,IgG My Value: 1.6 U/ml
Reference range: <6.0 (Negative)
Also Ferritin Test Results...
My result 20 ng/ml Range: 20-300 ng/ml
Vitamin B12 Test Results...
My result 396 Range: > 200
Vitamin D Test Results...
25-HYDROXY D2 My result < 4.0
25-HYDROXY D3 My result 26
25-HYDROXY D TOTAL My result 26
Thyroid Test are negative
MRI test was negative for tumor that would cause the elevated Prolactin.
I have had a Colonoscopy that was done in June that showed nothing at all.
I had the Endoscopy done last Monday after which the Dr. that did the scope said that he did not see anything that would indicate Celiac disease and that maybe I am just sensitive to gluten. I have not received the results of the biopsies yet.
My questions are from what I have heard that a TTG test >100 is a pretty high value and I am wondering if the Dr should have seen anything during the endoscopy.
Also I have read that TTG can have false Positives for other Autoimmune Diseases and wondering if it is not Celiac if it could be something else with my TTG levels so high... or is the TTG so specific for Celiac that I have it and they did not find it or I am just sensitive to glutten. Or can you not have much damage to your intestine but have the neurological symptoms.
Thanks for any info or personal experiences you can provide.
Posted 27 December 2012 - 10:08 AM
Posted 27 December 2012 - 10:14 AM
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 27 December 2012 - 06:32 PM
- AGA (antigliadin antibodies)-IgA
- EMA (anti-endomysial antibodies)-IgA
EMA IgA is considered to be the most specific to celiac.
If your biopsy and other blood tests come up negative for celiac disease, you might want to look into thyroid testing (free T4, free T3, TSH, and TPO Ab) because many of your symptoms are those of hypothyroidism... Actually even if your celiac panel is positive you might want to get it checked since many celiacs have thyroid problems, a routine check is how I discovered my hashimotos (hypothyroidism), and I had MANY of the same symptoms as you.
After your testing is done, regardless of the outcomes, I think you should go on the gluten-free diet for at least a few months since ttg IGA can (and often does) indicate celiac disease. It can't hurt.
Best wishes to you. I hope you feel better soon.
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012
Celiac.com - Celiac Disease Board Moderator
Posted 29 December 2012 - 09:00 AM
Posted 31 December 2012 - 10:25 AM
Welcome to the forum! The good news is you now know why you have been sick. So you can start on the gluten-free diet and begin getting better. Don't be upset if it takes a few months to get past some of the symptoms. Actually it can take a year or more to recover. But everyone has their own body and timelines vary a lot.
Some starting the gluten-free diet tips for the first 6 months:
Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid sugars and starchy foods.
FAQ Celiac com
Newbie Info 101
What's For Breakfast Today?
What Did You Have For Lunch Today?
What's for dinner tonight chat?
Easy yummy bread in minutes
How bad is cheating?
Short temper thread
Non-celiac wheat sensitivity article
Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes
Super Easy Meal Ideas Anyone?
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users