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Itching, But Not Eczema, Or Dh, Or Shingles,....


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#1 jeanzdyn

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Posted 27 December 2012 - 05:52 PM

One of the main reasons I was not that surprised when I was diagnosed (via biopsy) with Celiac Disease is that one of my worst symptoms was itchy skin. This was primarily in the winter, and there is never any sign of a skin ailment, other than the marks I leave from scratching that burning, itchy skin.
No dry skin --believe me, I have tried lotions and ointments and antihistamines....

There is absolutely no sign of any skin rash or blisters or anything!! But I itch and it feels like it's on fire.

This is happening right now and has been going on for 48 hours at this point.
I do not know whether to call the gastroenterologist or the regular physician.

It's driving me crazy! Is this part of the celiac disease?
Have I been gluten-ed and not realized it?
  • 0
What is food to one man may be fierce poison to others. —--Lucretius


I miss bread! But I love Kinnikinnick gluten free pizza crust.


Diagnosed celiac disease: November 2011 (biopsy and endoscopy)
other conditions: asthma, arthritis

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#2 rosetapper23

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Posted 27 December 2012 - 06:34 PM

You may be sensitive to iodine. Do you take a thyroid medication (which would, of course, contain iodine). It took me years to stop itching, but, unfortunately, I'm sensitive to iodine because of the celiac disease....and the itch was incessant, since I couldn't stop taking my medication.
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#3 Adalaide

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Posted 27 December 2012 - 10:15 PM

This is going to sound really stupid, but it is actually possible to be allergic to the cold. No, as dumb as that sounds I'm not making it up. I would certainly go see a doctor. I'm sure there are a lot of possibilities.
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"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#4 mushroom

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Posted 27 December 2012 - 10:42 PM

This is going to sound really stupid, but it is actually possible to be allergic to the cold. No, as dumb as that sounds I'm not making it up. I would certainly go see a doctor. I'm sure there are a lot of possibilities.


Yes, it is possible to be allergic to the cold - my hubs is. But he gets real evidence of it - huge welts like humongous chilblains all over.
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#5 Adalaide

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Posted 28 December 2012 - 12:10 AM

Yes, it is possible to be allergic to the cold - my hubs is. But he gets real evidence of it - huge welts like humongous chilblains all over.


That would make me criminally insane. I was under the impression it is one of those "your reaction may vary" sort allergies where some people are like your husband and others only itch enough to appear crazy. I have been known to be wrong. I know more about the whole being allergic to water thing. (Which is equally stupid and crazy.)
  • 0

"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#6 jeanzdyn

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Posted 28 December 2012 - 08:13 AM

I could 'buy' allergic to the cold, but I don't believe that to be my problem. Although wearing more layers of clothing to keep warm enough may have a little to do with this, in my opinion.

As for allergic to water --lord only knows what may be in the water!! any place and every place. Where I live the water that comes out of the faucets has been through the water "treatment" processing plant of the community and it sometimes smells like chlorine to me.... so
allergic to water can open a huge "can of worms".

I do not take (or need) thyroid medication, and I don't think this itching is caused by iodine.

As of this morning I would say that I do now have what may be a rash. It is still tough to even know if it is a rash because I have been rubbing the itching area (a lot) rather than scratching it. It is still driving me to distraction.

I do appreciate the input folks. Any other ideas?

I know of 2 things that I have eaten since Tuesday that are things I have not eaten in a long time....
One is fudge, I ate some chocolate fudge on Wednesday.
The other is beans,... kidney beans and black beans, which are in some chili I made, along with a can of Rotel mild.
So, I am aware that one of these, very likely the beans :( may be the cause of the itching -- I ate some chili on
Wednesday evening and had it for lunch on Thursday. I am now avoiding eating the chili --and it's wait and see from here....

I have an appointment with the nurse practioner at my doctor's office, but not until next Wednesday.....

So, yes, wait and see...what happens with the itching in the meanwhile.... and also paying close attention to any
other symptoms that may crop up or get worse. (I can still go to a walk-in clinic...)
  • 0
What is food to one man may be fierce poison to others. —--Lucretius


I miss bread! But I love Kinnikinnick gluten free pizza crust.


Diagnosed celiac disease: November 2011 (biopsy and endoscopy)
other conditions: asthma, arthritis

#7 bartfull

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Posted 28 December 2012 - 11:06 AM

It sounds to me like "winter itch". You may not think your skin is dry, but it is. The outside air is dry in winter, and inside with the heat on it is even worse. I have gotten winter itch every year now for the past 20 or so years, and lotions really don't help much. One thing I have found that helps a little is that I have replaced my anti-perspirant with milk of magnesia. I know it sounds crazy, but it works better than any anti-perspirant and it doesn't dry my skin in that area. My back and my belly and my legs still itch, but if I don't scratch I'm usually OK. It's scratching that first time that makes the itching get worse. If I can just ignore it for a while the urge to scratch goes away after a few minutes.
  • 0

gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#8 GottaSki

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Posted 28 December 2012 - 11:40 AM

Ummm - I am allergic to heat but not why I am posting - I got my first insanely itchy session that lasted several weeks just prior to my celiac diagnosis. I had two more before dx and have only had one such occurance since I removed gluten almost four years ago. And I live in southern California - our "winter" isn't much different than the rest of the year.

I would make sure you have removed all sources of gluten along with keeping a food log to see if any other foods are the cause.

For me - soaking in a tub of epsom salt and baking soda calms the itch to tolerable levels.

Hang in there - itching is the pits!
  • 0

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#9 jeanzdyn

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Posted 30 December 2012 - 03:30 PM

I do have what appears to be a rash. I cannot figure out why though.
it itches all the time and nothing relieves it. nothing.

I have tried lotion, scrubbing, baby oil, anti-itch cream,..... nothing changes this at all.

I have been keeping track of what I eat (and drink), but since I have taken all new
foods out of the diet there has been no change. I am now going on the assumption
that the itching is not caused by anything I consume.

The only thing on my mind is shingles. I did have chicken pox as a child.
the only pictures I find of shingles look absolutely ghastly and nothing like what
my skin looks like right now.
I am wearing a t-shirt and I scratch the shirt -NOT the bare skin. However, scratch
or not it just itches all the time!!

I see a nurse practitioner on Wednesday. not soon enough for me!
  • 0
What is food to one man may be fierce poison to others. —--Lucretius


I miss bread! But I love Kinnikinnick gluten free pizza crust.


Diagnosed celiac disease: November 2011 (biopsy and endoscopy)
other conditions: asthma, arthritis

#10 GottaSki

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Posted 30 December 2012 - 03:38 PM

I do have what appears to be a rash. I cannot figure out why though.
it itches all the time and nothing relieves it. nothing.

I have tried lotion, scrubbing, baby oil, anti-itch cream,..... nothing changes this at all.

I have been keeping track of what I eat (and drink), but since I have taken all new
foods out of the diet there has been no change. I am now going on the assumption
that the itching is not caused by anything I consume.

The only thing on my mind is shingles. I did have chicken pox as a child.
the only pictures I find of shingles look absolutely ghastly and nothing like what
my skin looks like right now.
I am wearing a t-shirt and I scratch the shirt -NOT the bare skin. However, scratch
or not it just itches all the time!!

I see a nurse practitioner on Wednesday. not soon enough for me!


If it is DH - gluten can stay active in the skin for a very long time - hopefully the experts can add better info than I.
  • 0

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#11 Lisa

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Posted 30 December 2012 - 04:45 PM

One of the main reasons I was not that surprised when I was diagnosed (via biopsy) with Celiac Disease is that one of my worst symptoms was itchy skin. This was primarily in the winter, and there is never any sign of a skin ailment, other than the marks I leave from scratching that burning, itchy skin.
No dry skin --believe me, I have tried lotions and ointments and antihistamines....

There is absolutely no sign of any skin rash or blisters or anything!! But I itch and it feels like it's on fire.

This is happening right now and has been going on for 48 hours at this point.
I do not know whether to call the gastroenterologist or the regular physician.

It's driving me crazy! Is this part of the celiac disease?
Have I been gluten-ed and not realized it?


I don't think its a part of Celiac, but maybe in association of a compromised system, or
DH itself. Liver enzymes can be out of wack due to Celiac. It can be very common with a diagnosis (some can itch, others not). Meds, could also be a cause. Blood pressure meds or cholesteral meds could also be a player. Simply easy scratching can leave whelps. Add a cool compress to the agitated area.
  • 0
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#12 Adalaide

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    It needs to be about 20% cooler.

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Posted 30 December 2012 - 04:50 PM

My DH manifested as intense itching beyond anything I ever imaged before the rash appeared. I do not know if this is normal or not, but it is what happened to me. Best of luck with the doctor.

I blew through about half a bottle a day, and didn't find that it relieved the itching completely but I did find that Calamine lotion helped take the edge off enough that I wasn't driven criminally insane. It must be pink and not clear. Have you tried Benadryl? I don't know if it will help or not, but I don't see how it can hurt.
  • 0

"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#13 squirmingitch

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Posted 30 December 2012 - 05:07 PM

It's possible that it is dh rearing it's ugly head. I certainly hope not!!!!!!! But it is possible. The antibodies get into the skin & it can come & go at will until such time as all the antibodies get out of the skin.
We have had quite a few long time celiacs who never presented with dh (gluten-free for 8, 10 years these people) get cc'd or glutened & suddenly they break out in dh rash.

I'm going to excerpt a portion of this by Dr. Joseph Murray & also give the link for the entire paper.
http://members.ozema...liac/sprue.html

Excerpt:


What happens when a DH patient ingests gluten? In the intestine the
body's immune system mounts a response to the gluten. Part of that
response is the production of antibodies, which are like little
chemical messengers the body produces to attack things and help defend
itself. In DH patients those antibodies often get dumped under the
lining of the skin, where they just sit like little land mines for
days, months, or years. Then one day something triggers them
(sunlight, iodine in a cleanser, etc.) and you get this little
bursting forth as the skin's immune system begins attacking these
deposits thus forming the blisters. But the deposits occur originally
due to the intestine being exposed to gluten.

So you can understand better from this exactly how one can present with dh long, long after having been gluten-free or after being gluten-free & getting cc'd or glutened & then suddenly presenting with dh when you never did before.

Understand, I'm not saying your rash is dh but it could be.
Does it itch more at night & wake you up?
Is it symmetrical? Presenting on both sides of the body ie: both arms, both legs, both hands, both elbows?
Can you take photos & post them?
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#14 Lisa

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Posted 30 December 2012 - 05:25 PM

It is possible that there may be other causes for itching? :) I understand that there is a common theme here connecting DH with Celiac, but there are others causes,too. I am currently undergoing a variety of options, as I stated earlier.
  • 0
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#15 GottaSki

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Posted 30 December 2012 - 05:52 PM

Thanks Squirmy!

I never said "it is" only "if it is".
  • 0

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)



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