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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Hiatal Hernia And Schatzki Ring
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6 posts in this topic

I had my EGD today and it'll be about a week before I get the biopsy results back. But, the doc did give me her observations. Apparently I have a sliding hiatal hernia and a Schatzki ring (mild, non-obstructing) - and everything else looked normal. I haven't been able to really talk to my doc about it yet, because I was pretty out of it and didn't have such a great reaction to the sedation. From what I've gathered reading on my own today, it doesn't seem like either of these are a big concern right now, but should be watched to make sure they don't get worse.

I wonder if the hernia could have been caused by my constant severe bloating. I have often noticed that after a big meal, particularly when I'm with other people and can't burp, that I have trouble breathing. Does anyone have any experience with either a hiatal hernia or a Schatzki ring?

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Yes. Schatzki ring is damage associated with Eosinophilic Esophagitus.

My daughter has both Celiac and EE. There is now a known connetionc between Celiac and EE.

Do you have any of the scope pictures? Very tell tale sign of eosinophils are creamy colored speckles. I thought it looked like (what I imagined) a yeast infection. There must be a biopsy because eosinophils can be deeply embedded in "normal" looking tissue.

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Yes, my doc did give me a printout of some scope pictures. There's nothing in these pictures that looks like you describe, though the copies I have are black and white. I'll get the full report after the biopsy results are in. To have EE, wouldn't I also have elevated levels of eosinophils in my blood? The results of a blood test from October show that I had 2% eosinophil (relative) and an absolute concentration of 0.3 K/uL.

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I was found to have a hiatal hernia during a follow up endo. It sometimes causes me to cough, hiccup (at times together <_< ), and after a big meal it does seem a little hard to breathe--as though like there is pressure from below. I was glad I had the endo done because it answered why these things were happening--I never thought much of them.

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Hi Kat - my husband was diagnosed with both 2 years ago. He got an endoscopy and his esophagus was stretched. This helped a lot as before the procedure at times he was unable to swallow and always felt very full. He can no longer eat large meals.

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My daughter never had a blood test for eosinphil count. She was diagnosed by the count and damage in the esophagus.

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    • Newbie: mother to coeliac kids
      If uncooked, he might have difficulty digesting them because eating ANYTHING with a Marsh Stage 4 gut is bound to hurt.    If pickled, he might be reacting to any of the ingrediants even though they could be gluten free.   Often, celiacs develop several food intolerances.  Lactose intolerance is the most common.   I'd recommend keeping a food diary and well-cooked stews, soups for a few days or weeks until his symptoms improve.   Good Luck!  
    • Newbie: mother to coeliac kids
      Research indicates that the celiac disease blood test results do not necessarily correlate with intestinal damage.  My blood tests were "barely positive" yet I had a Marsh Stage 3B (moderate to severe damage).   But that's not important.  Your boy's health is more important!   I can see why he is suffering so much.  The good news is that he should feel well much faster because he is young.  My heart goes out to you and your family!  
    • Newbie: mother to coeliac kids
      Sorry, but I would have to remind you and those who are newbies, that a whole foods, well-cooked diet is probably best.  Avoid all processed foods.  If you have severe intestinal damage, the villi tips are so damaged (or non-existent) that they can not release all the necessary enzymes, etc. to help a person digest and absorb food well or barely!!!  Many celiacs are lactose intolerant until healing occurs (for life if you are genetically lactose intolerant like many Asians, for example).  Many celiacs have developed additional foods intolerances, so it is recommended that you keep a food and symptom journal.   Some folks might be corn intolerant and other might have issues with nightshades (like potatoes).  Others might have issues with even a good veggie like cauliflower.  I personally can not digest cauliflower after a good glutening for some unknown wacky reason.  What I am trying to say, is that everyone has to figure it out on their own because we all have different issues related to celiac damage.  Lactose intolerance is the most common and a good place to start especially with SEVERE intestinal damage like Marsh Stage 4.   
    • need advice
      Welcome!  The only way to find out if you have celiac disease is to get tested.  Here are the tests that your GP can order for you: http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/diagnosing-celiac-disease/screening/ THIS IS IMPORTANT!  YOU MUST BE CONSUMING GLUTEN DAILY FOR THE BLOOD TESTS TO BE ACCURATE.  THIS ALSO INCLUDES THE ENDOSCOPY (BIOPSIES) WHICH ARE DONE BY A GI.   Anxiety can be a symptom for celiac disease.  Please do some more research so that you can get a proper diagnosis.  Can you go gluten free?  Sure.  That's what my hubby did 15 years ago per the very poor advice of my allergist and his GP.   Twelve years later, I was diagnosed.  Weird, huh?  Anyway, hubby will tell you that I get way more support.  He get's a lot of eye rolling.  Plus, our kid (and my folks and siblings) get screened every few years because I have a diagnosis.  My kid gets tested every couple of years even without symptoms because you can be symptom free and still have celiac disease.  celiac disease is genetic.   It is an autoimmune disorder triggered by gluten.  It is the only autoimmune disorder that is triggered by something known.  If you have RA, MS or Lupus, for example, doctors do not know what actually triggers these other autoimmune disorders.   So, Keep researching.  
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