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Signs In Baby

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I just found out I have celiac- sprue and as I'm eliminating gluten from my diet, my son is 4 1/2 mos. and his dr. is starting him on cereal. He has been successfully breastfed with one or two times we had to suppliment (one time I was in er for dehydration and the other was after the abdominal cat scan I had) His dr. knows my diagnosis and said to try all the cereals and look for a reastion. Well, only rice cereal has casused painful :( pooping so I'm trying oatmeal now. My question is this: could a runny, congested nose be a sign of a gluten sensitivity? So far he hasn't shown any other bad reactions to the oatmeal but I believe his slightly runny nose has gotten worse. It's so tough looking at everything he does and wondering is that a reaction to gluten? We're starting him on the cereal so that he gets more iron and calcium in his diet w/o giving vitamin suppliments. He has grown 6" and gained 9lbs in the last 4 months, but I'm worried about what may happen as we introduce solid foods. Any suggestions greatly appreciated.



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I've had a runny nose and congestion due to gluten...

Now, my reactions are much different, though.

Good for you for spotting such a small reaction!!

You are "on the ball"!

Most people don't realize that foods can cause these things. If you are keeping a food/reaction diary for him, you can spot these reactions and have some proof of them when you begin to think you're just crazy! ;)



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My grandson showed severe reactions to milk at one to two weeks, such as stomach cramping, vomiting his formula, diarrhea, diaper rash, irritability, crying, and general overall distress following ingesting the milk. He was changed to soy and has thrived.

I ordered the full spectrum of tests from Enterolab ($368 for the panel), and after we sent a stool sample, along with a swab sample from the inside of his cheek, we received a diagnosis concluding that he is gluten sensitive and allergic to all milk and dairy.

He never had to start wheat cereal or oats, but twice I have seen the changes that take place when he accidentally gets wheat or milk. It is dreadful--fussiness and irritability within 20 minutes, writhing with stomach distress, sleeplessness, crying, loss of appetite--and that lasts for three days. I pray that he is fortunate enough to avoid the foods that are poisonous for him from now on. He is 8 months old.

I recognized that he was probably allergic because I have been that way since the age of 8. I often had a stuffy or runny nose after eating foods to which I am allergic. I am so glad you have learned what is causing your problems, and I hope that you will soon be able to identify what is going on with your son. Welda


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    • I understand. Poor thing, made doubly rough because 13 is a really hard age even in the best of times. OK, at 13 she should show the damage in the biopsies. I didn't know if she was 2 or 3 yrs. old & in those cases sometimes they just plain haven't lived long enough to be damaged where the biopsies pick it up - it can be so patchy then.  Gosh, I'm really feeling for her & you both and I so want to say take her off gluten the moment the endoscopy is over but I'm afraid to say that b/c I've seen some pretty weird things go on that you would never expect. Docs can be so uninformed! Please let us know how things turn out & send your daughter some hugs from me and tell her I believe her. Please let her know that most of us had been told by doctors they think it's all in our heads, didn't believe us, blew us off so we know exactly how she feels. Remind her her pedi believes her & he's been more helpful than the GI has.  Press the GI for 6-8 biopsies but a bare minimum of 6.  {{{{{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
    • I have seen articles linking celiac to Barretts and esophagitis.  I've actually been subtly hinting to my boyfriend to get tested for celiac as well because he has some strange Autoimmune arthritis as well as Barrett's  and some white spots on brain MRI Not MS). One of the articles I read on Celiac and Barrett's actually suggested that most of the patient did not have actual acid reflux symptoms. Not sure if you ever did antibody testing for celiac, but sounds like you certainly want to avoid gluten. 
    • Ahh good point! She is 13 and has been miserable for over two years. It started with chronic hives. We have been to a dermatologist, and a allergist and they brushed it off to her seasonal allergies and now she has joint pain,bloating,constipation,fatigue,headaches just all around miserable. I just want answers quick. she is getting depressed and says she hates her life cause she doesn't think anyone believes her. It's heart breaking . I hope we get answer soon. Thanks for the advice I will keep her on gluten. She is just miserable and I figured the sooner she is off gluten the sooner she will feel better. 
    • Welllllllll, in this particular case it would be best to keep her on gluten until the results come back. The reason I say this is b/c this GI seems whacky. There's a chance you may need to go to a different GI & have the endoscopy redone. I was going to say get a new GI but since the endoscopy is on Monday then I would go forth with it rather than waiting the time it would take to get a new GI & schedule an endoscopy. This GI seems set that it's not celiac & when they get that in their brain it's usually pretty darn hard for them to admit they were wrong. My concern is that she won't take enough biopsies from the right places b/c she's either dumb about how many & where or letting her personal (already formed) opinion influence what she will do. The problem is that you can't be there in the OR with them standing on the GI's shoulders making her do the right thing. Not knowing your daughters age, the other concern is that there may not be "enough" damage just yet, it may be patchy, etc..... that with the mindset this doc has, she will poo poo the dx.  Let me say that it would be a travesty & wholly awful IF you had to put your daughter through another endoscopy but we know how very important it is for her to have an official, dyed in the wool dx. So I'm just trying to think down the line & prevent problems before they come up. I mean, this doc may not even take any biopsies. That sounds insane I realize, but really, it happens more often than you would think. I can't tell you the number of times we've had people come on here after having an endoscopy for celiac where the doc didn't take any biopsies b/c the doc is so stupid as to think they can see the damage & doesn't realize there MUST be biopsies! If you take her off gluten & heaven forbid, you have to end up putting her back on it to get further testing then chances are she's going to get much, much sicker when she's put back on gluten. That most often happens with us and I'm talking about radically sick. See, I'm basing all my thinking on the fact that despite ALL the positive celiac blood work, this dimwit doc doesn't think it's celiac & instead it's all related to the constipation. That is just so far out there, it's NUTS! She's flying in the face of hard evidence! Every test you listed was positive. I can't even begin to understand how this GI comes to her insane conclusion. THAT'S why I am so concerned. 
    • Thanks for your reply. That's what my husband and I thought too. She has a ton of symptoms that's fit celiac. Also I was going to start her gluten free diet after her biopsy on Monday cause the dr said the results take two weeks. Is there a reason I should keep her eating gluten until we get the results? Thanks for your help.
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