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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Are Celiacs Really Slowly Dying?
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9 posts in this topic

Has anyone read this article?

http://scdlifestyle.com/2012/03/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/

Disturbing. I am following the gluten-free diet but am still having stomach problems all the time. I am wondering if I am sensitive to other things as well. Has anyone else dealt with issues even after going gluten-free? My stomach is always upset and I am worried about my overall health. Why isn't gluten-free working?

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Has anyone read this article?

http://scdlifestyle....e-slowly-dying/

Disturbing. I am following the gluten-free diet but am still having stomach problems all the time. I am wondering if I am sensitive to other things as well. Has anyone else dealt with issues even after going gluten-free? My stomach is always upset and I am worried about my overall health. Why isn't gluten-free working?

Dear Scouts,

Yes, it's true but don't let it disturb you. I've been a Celiac for 30 years (since 1983). I'm still alive! Still strugle with GI issues( IBS, Gerd, Divertilosis?). I struggle with spelling too. :rolleyes: I relapsed in 2007(cheated). Again, in 2012(cross contamination suspected) If you could tell the forum more about your situation, that would be helpful. Afterall, that's what this forum is all about. Lots of members willing to help you.

My best wishes for a long and happy life. A healthy one is up to you.

Edited by Opa3
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Sure feels that way when I'm at my worst -- thannkfully I've experience miraculous improvement as well. I try to focus on the latter :)

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Anyone can make any disease sound horrific if they string together enough negative research. I am not saying it is not very very tough sometimes, and many people on the board have had massive health problems. But, many people go on and lead good long and happy lives too.

We sure do need more research, but I am unsure of the motivation of this particular author.

There is a broad spectrum across celiac disease. I would hate newbies to think they are not going to make it to tomorrow.

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I would question where they are getting these healing " statistics"? Many Celiacs have had repeat biopsies after 2 years and been found to be healed. Some don't bother to do that because they feel good and their blood work is good.

This link is to a site that wants to sell things, not a medical research site, so I take that into account. Not sure of the credentials of those two guys pictured, either.

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My dear mother lived until 87 years old with diagnosed celiac disease.

My suggestion is to be compliant and enjoy life to it's fullest.
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Besides, we all start slowly dying from the day we are born :)

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This blog talks about a study of people who experience symptoms while on a gluten free diet. http://celiacdisease.about.com/b/2012/11/08/study-gluten-ingestion-symptoms-frequent-despite-gluten-free-diet.htm

You aren't alone there. I had that problem as well, and I have gotten rid of the symptoms by switching to a diet of mainly unprocessed foods, and by checking everything I eat with elimination/challenge diets. I put myself in the super sensitive celiac category.

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Besides, we all start slowly dying from the day we are born :)

Snort! Luv ya 'shroom! Happy New Year!

(Sorry, off topic.)

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