Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Are Celiacs Really Slowly Dying?
0

9 posts in this topic

Has anyone read this article?

http://scdlifestyle.com/2012/03/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/

Disturbing. I am following the gluten-free diet but am still having stomach problems all the time. I am wondering if I am sensitive to other things as well. Has anyone else dealt with issues even after going gluten-free? My stomach is always upset and I am worried about my overall health. Why isn't gluten-free working?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Has anyone read this article?

http://scdlifestyle....e-slowly-dying/

Disturbing. I am following the gluten-free diet but am still having stomach problems all the time. I am wondering if I am sensitive to other things as well. Has anyone else dealt with issues even after going gluten-free? My stomach is always upset and I am worried about my overall health. Why isn't gluten-free working?

Dear Scouts,

Yes, it's true but don't let it disturb you. I've been a Celiac for 30 years (since 1983). I'm still alive! Still strugle with GI issues( IBS, Gerd, Divertilosis?). I struggle with spelling too. :rolleyes: I relapsed in 2007(cheated). Again, in 2012(cross contamination suspected) If you could tell the forum more about your situation, that would be helpful. Afterall, that's what this forum is all about. Lots of members willing to help you.

My best wishes for a long and happy life. A healthy one is up to you.

Edited by Opa3
0

Share this post


Link to post
Share on other sites

Sure feels that way when I'm at my worst -- thannkfully I've experience miraculous improvement as well. I try to focus on the latter :)

0

Share this post


Link to post
Share on other sites

Anyone can make any disease sound horrific if they string together enough negative research. I am not saying it is not very very tough sometimes, and many people on the board have had massive health problems. But, many people go on and lead good long and happy lives too.

We sure do need more research, but I am unsure of the motivation of this particular author.

There is a broad spectrum across celiac disease. I would hate newbies to think they are not going to make it to tomorrow.

1

Share this post


Link to post
Share on other sites

I would question where they are getting these healing " statistics"? Many Celiacs have had repeat biopsies after 2 years and been found to be healed. Some don't bother to do that because they feel good and their blood work is good.

This link is to a site that wants to sell things, not a medical research site, so I take that into account. Not sure of the credentials of those two guys pictured, either.

1

Share this post


Link to post
Share on other sites




My dear mother lived until 87 years old with diagnosed celiac disease.

My suggestion is to be compliant and enjoy life to it's fullest.
0

Share this post


Link to post
Share on other sites

Besides, we all start slowly dying from the day we are born :)

2

Share this post


Link to post
Share on other sites

This blog talks about a study of people who experience symptoms while on a gluten free diet. http://celiacdisease.about.com/b/2012/11/08/study-gluten-ingestion-symptoms-frequent-despite-gluten-free-diet.htm

You aren't alone there. I had that problem as well, and I have gotten rid of the symptoms by switching to a diet of mainly unprocessed foods, and by checking everything I eat with elimination/challenge diets. I put myself in the super sensitive celiac category.

0

Share this post


Link to post
Share on other sites

Besides, we all start slowly dying from the day we are born :)

Snort! Luv ya 'shroom! Happy New Year!

(Sorry, off topic.)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,115
    • Total Posts
      919,446
  • Topics

  • Posts

    • I'm glad I found these forums!  I will spend some more time this evening reading through them.  But I wanted to get my question out there just to see if anyone else might have answers quicker than I can sift through the forum for them.      I've been feeling terrible for about a year, and after an elimination diet last month, figured out that if nothing else, gluten/wheat is a problem.  After lots of research, I abandoned the elimination diet and added gluten back in, so that I could get tested for Celiac.   I was off gluten for 3 weeks, from mid-June until early July.  I've had it back in my diet for almost 3 weeks now.    My question is this: Since I was off gluten for 3 weeks, and now back on for almost 3, is that enough time on to yield a positive Celiac blood test, if that indeed is what I have?  All the research I've done says 4-6 weeks for a gluten challenge, but is that really necessary if I was only not eating it for 3 weeks?  I am desperate to get this testing done and over with.  I feel terrible all the time and getting through the day is a struggle.  My doctor ran allergy panels already and everything came back clear except for a mild wheat allergy.  So if nothing else, I'll have to give up wheat for sure at the end of all this.  I get the feeling she doesn't know a ton about Celiac though, so I'm doing a lot of the research on my own. Any advice or information would be so appreciated! 
    • Hi Michael, That's quite a spike in blood pressure!  I haven't tested that myself and don't want to if it means I have to eat gluten.  Blood pressure testing to identify food reactions is something that has come up before.  It sounds like it might be possible but I don't know how much study has been done on it.  Probably not much since it is such a simple, straight forward idea. Welcome to the forum!
    • Hi Megan, Did the doctor test you for celiac disease?  You really shouldn't go gluten-free until all the testing for celiac disease is completed.  It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO.  Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't.  Occasionally I get hit but it is rare.  Simplifying your diet is a good first step.  Avoiding processed foods for a while and dairy also is good.  I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out.  If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
    • Finally, proof that non-celiac gluten sensitivity is real. ... for the 30 percent of consumers who choose to buy gluten-free products and the 41 percent of ... View the full article
    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,154
    • Most Online
      1,763

    Newest Member
    calla84
    Joined